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Still Get The Runs And Don't Know What To Do


mommyto2kids

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mommyto2kids Collaborator

I have a cycle going on with imodium. I get the runs take imodium, get stopped up and then get the runs again and then take imodium again. I really want to break the cycle and need help. I get so much pain from the imodium or from I don't know what from. What else can I do when I get the runs other than imodium? My dh says sometimes people get d when your body pushes the poop around hard stool. I just feel so frustrated and am getting discouraged. I am eating gluten-free. Should I stop dairy? I really don't know where to turn. Thanks for listening. I have to do a lot of driving this week and really don't want to have to take imodium. I don't want to have an accident either.


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mommida Enthusiast

Have you looked into "dumping syndrome"? Do you have a gallbladder? (I do mean your own gallbladder)

Keep a food journal to track down another food intolerance.

ravenwoodglass Mentor

I would say yes to dropping dairy and soy for a bit to see if it helps. If you do get some relief after dropping them wait for at least a couple weeks and then add them back in one at a time and see if the D starts again.

It is not uncommon at all for us to be intolerant of other things and dairy and soy top the list.

Also is your house gluten free or just you? If others in the home are not gluten free are you doing all we need to do to prevent CC?

shadowicewolf Proficient

I second the gallbladder idea. When i still had mine, after i went free, it would act up then dump the acid :ph34r: -shiver- bad memories.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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