Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If Celiac Is Caught And Treated Early Is There Still Risk For Other Autoimmune?


guest134

Recommended Posts

guest134 Apprentice

As some of you know I may be diagnosed with early celiac. If my ab's don't go down and it is proven celiac and we treat it am I still at risk for developing other autoimmune diseases? We already checked 15 different antibodies, negative for everything so as of right now it is just the possibility of early celiac. Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It is always possible to develop one. I think the fact that ya have one already puts ya at a slightly higher risk, but treating it early enough probably stopped it from getting any higher.

GottaSki Mentor

That is a very good question. I doubt anyone can give you odds on this one. All autoimmune disorders are top on my list for much more research needed.

What I can tell you is if your next round of antibody tests does not have lower numbers -- I would advise you (as I would my own children) -- to remove ALL gluten for at least three months - six is better - then test blood again to see if antibodies are reduced.

AI symptoms can occur with celiac disease - without "classic" symptoms.

You have done a great deal of research - I believe you will find a good path that will lead to health and limit the risks that gluten may cause you.

nvsmom Community Regular

From what I've read, yes, once your body has started making antibodies against itself you are more likely to develop another autoimmune disease than someone who does not have AI diseases. Some medical circles are even starting to classify the diseases into groups: celiac disease falls into the Type III Polyglandular Autoimmune Syndrome. Heres's a quick overview:

Open Original Shared Link

It makes sense to me when I consider my own personal experiences because my immune system has attacked my intestine, thyroid and platelets, and I suspect it is attacking my soft connective tissues too.

Celiac disease is not the main link in this syndrome, it's thyroiditis that is the common disease. I do wonder if my celiac had been discovered earlier if I would have devloped my problems but after reading about all the diseases and how they often overlap, I kind of doubt it was the cause... although it might have helped it to appear earlier in my life that it might have otherwise.

This is just my opinion and interpretation of what I've read though. I could be way off.

ButterflyChaser Enthusiast

I was talking to a prof of Weil Cornell the other night, and she confirmed that a) we don't know much about these disorders, especially because they involve multiple organs, and B) it is more correct to talk of "a condition of autoimmunity" rather than of singular diseases, ie a body's tendency to attack its own tissues.

That said, you may create antibodies and never develop the disease: my endo has arthritis rheumatoid, and has had antithyroid antibodies for twenty years, but she never developed thyroid disease.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.