Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pictures Of Dh Rash, Biopsy Site And Skin Shedding.
0

28 posts in this topic

My iron is so low I was having cramps that contorted my legs. I woke up screaming one morning. The roundish rash on my right hand came from me biting myself to stop from screaming long enough to tell the husband to get me hot water, Epsom salts, towels and the tablet so I could Google I kept the left veggie drawer from my fridge by the bed with cool Epsom salt water for days and one day decided to sit on the freaking towel because NOTHING would stop the itch on my legs and butt. It freakin' works OMG.....downside. Dries the crap out of u and makes it worse later on. I have no tub either. But I would sit in a bucket if I thought it would help. I got so angry at the rash on my scalp I took the salt scrub I made and dumped it over my head. It broke the rash on my head. It hasn't come back but the pain nearly made me faint so I do not think I could do it elsewhere on me. I am using Aquaphor and Eucercin Intensive Repair and Moisturel w/ menthol right now. Vinegar dousing and a cool fan works for me sometimes but again the drying is bad. But I get some sleep. The derm said wait and see, they are better. The Hibiclins is working and the poison ivy treatment dried it out but hurt like a mofo. I am CCing, not sure from what. I have to go slow on what I am taking out of my diet and meds, too much at once is just having me chase my tail.

I am allergic to Sulfa drugs. Bactrim DS almost killed me. I am taking a HUGE risk taking a sulfone drug like Dapsone. But as one molecule can make air or a bomb....one molecule may be enough to allow me to continue with the Dapsone.

I can feel your itch, sting and burn! I posted some pics on the site for photos. Covered on my head, face, arms, knees, R foot, buttocks and total back. I did sit in an Epson salt bath with some relief. Oddly enough, I have used extra strength Prep H on my buttocks and other private area and it did relieve the itch. I actually used a tanning booth a couple of weeks ago. I did not have an adverse reaction and some lesions seem to heal. I used a stand up booth for 5 minutes. I am scheduled to see a dermatologist at the university and he is planning to use light therapy on me. The doctor tells me it is very soothing to the DH rash, we'll see in February.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am 100MG a day. I am really scared right now it looks like four or five are wounds like infected. I am calling the derm tomorrow but i'm kinda freaked out right now. My first Dapsone dose was Nov. 27th 2012, 25MG I titered up to 100MG. This rash started in August, My right hand, the one pictured was clear on Sept. 27th. I have a nail polish picture of my clear hand. I am really bad. I might end up in the hospital, I cannot really show the extent of the rash as the pictures show nudity. My face has healed. Most of my scalp has healed. Some between and under my breasts have healed. By healed I mean they are scarred or hyper-pigmented. BUT healed. Sadly I am now dealing with another secondary infection. I had a double ear infection (first time in my life) then a left ear infection. I've done a course of Keflex and two courses of Doryx since September. Now....I assume I'll be back on Doryx with the Dapsone. I know a lot of people forgo Dapsone but I look at their pictures and pray I looked like that. I would turn it down too. But I have more than 50% coverage of my body. They can't find a GOOD spot to try and do a clean IFA biopsy though they want to try again. AND I am still reacting. We had to degluten the house again and I've been exposed several times. So I am still looking at days of reactions to come. But if you mean all the posts I made gosh I've done more hours of research on Celiac and DH than most Celiac trained doctors and osteopaths. It's kinda hard to put it all down, unless I am responding to something.

Here are what we think are the infected spots. This is as of Dec 11,2012. I have them covered. I use raw honey on these type of wounds with a surgeon and two derms ok. I cannot use Cleocin Liquid anymore nor neosporin so I started using honey with my doctor's approval.

8262600797_db4964775e_m.jpg

I think you need to give the Dapsone some more time. I started it on Oct 20, 2012 and this is what my rash looked like then.

http://i1323.photobucket.com/albums/u584/lindareading56/siderashclose.jpg

I was covered with this scalp to bottom of R foot. I posted to a couple of your posts and am losing track of where I posted. LOL

Hang in there. Someone suggested to me that I could have Staph or MRSA but my doctor disagreed. I have applied Bacitracin to the lesions to help in healing. I am healing and now just have a few spots that are still red. Most of my skin is turning the dark purple/red that goes with scarring. I sure feel for you!

0

Share this post


Link to post
Share on other sites

sisterlynr, I hope you will let us know how the light therapy turns out! That could be something we all could use if it proves to be of value.

When you used the tanning booth ---- do you attribute any healing to the use of the booth or to Dapsone or can you say definitively? And since I'm not up on the latest with tanning booths these days -- I may be asking a dumb question here ---- was the one you used using UVA or UVB light or both?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,355
  • Topics

  • Posts

    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,134
    • Most Online
      1,763

    Newest Member
    Alinapep
    Joined