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Pictures Of Dh Rash, Biopsy Site And Skin Shedding.
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My iron is so low I was having cramps that contorted my legs. I woke up screaming one morning. The roundish rash on my right hand came from me biting myself to stop from screaming long enough to tell the husband to get me hot water, Epsom salts, towels and the tablet so I could Google I kept the left veggie drawer from my fridge by the bed with cool Epsom salt water for days and one day decided to sit on the freaking towel because NOTHING would stop the itch on my legs and butt. It freakin' works OMG.....downside. Dries the crap out of u and makes it worse later on. I have no tub either. But I would sit in a bucket if I thought it would help. I got so angry at the rash on my scalp I took the salt scrub I made and dumped it over my head. It broke the rash on my head. It hasn't come back but the pain nearly made me faint so I do not think I could do it elsewhere on me. I am using Aquaphor and Eucercin Intensive Repair and Moisturel w/ menthol right now. Vinegar dousing and a cool fan works for me sometimes but again the drying is bad. But I get some sleep. The derm said wait and see, they are better. The Hibiclins is working and the poison ivy treatment dried it out but hurt like a mofo. I am CCing, not sure from what. I have to go slow on what I am taking out of my diet and meds, too much at once is just having me chase my tail.

I am allergic to Sulfa drugs. Bactrim DS almost killed me. I am taking a HUGE risk taking a sulfone drug like Dapsone. But as one molecule can make air or a bomb....one molecule may be enough to allow me to continue with the Dapsone.

I can feel your itch, sting and burn! I posted some pics on the site for photos. Covered on my head, face, arms, knees, R foot, buttocks and total back. I did sit in an Epson salt bath with some relief. Oddly enough, I have used extra strength Prep H on my buttocks and other private area and it did relieve the itch. I actually used a tanning booth a couple of weeks ago. I did not have an adverse reaction and some lesions seem to heal. I used a stand up booth for 5 minutes. I am scheduled to see a dermatologist at the university and he is planning to use light therapy on me. The doctor tells me it is very soothing to the DH rash, we'll see in February.

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I am 100MG a day. I am really scared right now it looks like four or five are wounds like infected. I am calling the derm tomorrow but i'm kinda freaked out right now. My first Dapsone dose was Nov. 27th 2012, 25MG I titered up to 100MG. This rash started in August, My right hand, the one pictured was clear on Sept. 27th. I have a nail polish picture of my clear hand. I am really bad. I might end up in the hospital, I cannot really show the extent of the rash as the pictures show nudity. My face has healed. Most of my scalp has healed. Some between and under my breasts have healed. By healed I mean they are scarred or hyper-pigmented. BUT healed. Sadly I am now dealing with another secondary infection. I had a double ear infection (first time in my life) then a left ear infection. I've done a course of Keflex and two courses of Doryx since September. Now....I assume I'll be back on Doryx with the Dapsone. I know a lot of people forgo Dapsone but I look at their pictures and pray I looked like that. I would turn it down too. But I have more than 50% coverage of my body. They can't find a GOOD spot to try and do a clean IFA biopsy though they want to try again. AND I am still reacting. We had to degluten the house again and I've been exposed several times. So I am still looking at days of reactions to come. But if you mean all the posts I made gosh I've done more hours of research on Celiac and DH than most Celiac trained doctors and osteopaths. It's kinda hard to put it all down, unless I am responding to something.

Here are what we think are the infected spots. This is as of Dec 11,2012. I have them covered. I use raw honey on these type of wounds with a surgeon and two derms ok. I cannot use Cleocin Liquid anymore nor neosporin so I started using honey with my doctor's approval.

8262600797_db4964775e_m.jpg

I think you need to give the Dapsone some more time. I started it on Oct 20, 2012 and this is what my rash looked like then.

http://i1323.photobucket.com/albums/u584/lindareading56/siderashclose.jpg

I was covered with this scalp to bottom of R foot. I posted to a couple of your posts and am losing track of where I posted. LOL

Hang in there. Someone suggested to me that I could have Staph or MRSA but my doctor disagreed. I have applied Bacitracin to the lesions to help in healing. I am healing and now just have a few spots that are still red. Most of my skin is turning the dark purple/red that goes with scarring. I sure feel for you!

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sisterlynr, I hope you will let us know how the light therapy turns out! That could be something we all could use if it proves to be of value.

When you used the tanning booth ---- do you attribute any healing to the use of the booth or to Dapsone or can you say definitively? And since I'm not up on the latest with tanning booths these days -- I may be asking a dumb question here ---- was the one you used using UVA or UVB light or both?

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    • sorry i did not see this until a year later.  i changed all my cat food to gluten free products.  right now i'm using a dry food made by Nature's Variety Instinct Raw Boost.  it has both dry food and freeze dried meat.  since my cats lick my face i had to make the switch.  i did not mean to remove your pets from your home.  they are loved ones and they can be eased into the diet if you have not already tried.  the wet food for my other cat is easier to find gluten free but it is expensive.
    • You might want to check out the Gluten Free Watchdog - just google it - and join. Very smart lady there who also has celiac disease. She's gone to the mats for us many times. She knows her stuff! 8 products are tested per month and there are many great articles and videos as well. She's the same lady who does the Gluten Free Dietician but on the Watchdog site, you get the test results of products as well as faster info. on breaking news.
    • After reading these few posts, I really think it all depends on where you live and the doctors attitude about the whole process. I think a biopsy is not always needed.  It depends on the circumstances and symptoms, etc.  Sometimes it is harder to piece together a proper diagnosis while other times it's so obvious.  Many people now do not even have GI issues, which used to be the hallmark of Celiac. This is why it is so difficult for some.  It would be nice if there was a very definitive test that was either positive or negative, with 100% accuracy!
    • Not to beat a dead horse here but I looked at the linked article you provided and it talked about exposure to animal feed in enclosed spaces, not driving or walking near wheat fields on a windy day.  Unless you are a farm hand, feeding cattle or horses with gluten containing feed in an enclosed, non-well ventilated area, it's not an issue. The Fasano diet is a short term diet for those who are slow to heal. Some people do have problems with grains and they found that putting them on a whole foods diet only, many of them went on to heal and could then consume processed gluten free food items like bread.  Lots of people do this in the beginning for faster healing. But it only works for people with Celiac Disease and you aren't even sure that is what the problem is. I posted this so anyone new to the diet reading these things will not become confused and think you cannot walk past a wheat field or a bakery. Inhaling visible wheat flour in a bakery is not a good idea for anyone with Celiac Disease and will make you sick/react and you won't be able to work in one but walking past bread or any gluten containing food is not cause for concern.
    • I react to certified gluten free breads, but it is NOT a gluten issue.  I react to Xanthan Gum.  I do just fine making my own baked goods from scratch subbing out the Xanthan Gum for guar gum.  My gluten-free hubby does well on commercially gluten-free baked goods.  It is just a food intolerance issue in my case.   Look to other ingredients.    
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