Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Depressed..


lockerbear

Recommended Posts

lockerbear Rookie

Hi everyone I'm new here and I was just hoping to get some advice on what is wrong with me.

I went gluten free (after being negative for celiac) about six months ago after having a lot of problems and it helped immensely- all of my problems went away, but I got cc'd a few times and then things never got better..

I was becoming intolerant to things i ate a lot and i figured I may have leaky gut so i went on a rotation diet to heal it. I was finally seeing some improvement, but then out of the blue I became constipated. My stomach ballooned up and i felt horrible I couldn't eat because I was so full and eventually i had to take a laxative to get rid of it. Unfortunately though my symptoms have not really gone away

I now have a constant bloated stomach. It doesn't matter if i do or don't eat it will be bloated. When i was having food intolerance problems it would go down if I didn't eat anything I'm sensitive to but now it is always there. It goes from the top half of my abdomen to the bottom. I am not constipated however I feel like I am not completely emptying my bowels...

I also always feel full, i burp a lot when i eat I get flatulence especially when I wake up and after i eat and my food just sort of sits in my stomach. It often comes out undigested

Does anyone know what this might be? I'm really depressed at this point because every time I start getting better something else comes up to bite me... I'm scared that even if i figure this out that something else will happen and it will never end. I have become very underweight since this all started and I'm very scared to go on diets. I've become intolerant to most of the high calorie foods from my leaky gut...

Any help would be appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

lockerbear Rookie

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

Thanks for the reply :) I actually have been taking digestive enzymes for a while now with every meal, but it hasn't made much difference and probiotics haven't either unfortunately =\

1desperateladysaved Proficient

Make sure you haven't added something to your diet that has agravated gluten or other intolerances. My tummy bloat was constant, next swung form high to low, and currently is debloating. In the meanwhile I have been grain free for 7 months, began digestive enzymes, and vitamin B recently.

I hope you will get it straightened out. I like babies, but I hate to be taken for pregnant when I am not. I guess that would be especially sad for males!

tarnalberry Community Regular

You say that you are bloated whether or not you eat, which makes me suggest that you talk to a doctor. There may be non-digestive issues going on which are giving you your digestive symptoms.

lockerbear Rookie

Thanks so much for the replies guys.

I'm not sure if it would be another intolerance or something.. I have been rotating food so I never eat the same thing for 4 days and my stomach is the same every day and the only grain i eat is rice =\ i could try cutting it out though. i did notice i sometimes have reactions to fruit, but most of the time i don't and it can be with low or high fodmaps.. so i don't really know what that means.. I've tried to make an appointment with a gastro as well, but they all just took off for a month for holidays and even though i faxed an urgent referral to them over a month ago i still apparently don't have an appointment.

My ultrasounds and xrays have been fine and I found a really good naturopathy clinic online but they have been closed as well until next week. I have ordered a test for SIBO just recently which I am doing at home (or else i would have to wait 3 months for a test >< so happy they have the at home option) and hopefully that will show something. The only person i've been able to see is a doctor who gave me an antacid, but i just ignored it.. not really looking for any quick fixes. I'm considering going to a gyno as well because my mum told me about something called endometriosis which can (uncommonly) grow on the intestines and honestly (TMI sorry) when i am menstruating the pain is comparable to when my appendix burst inside my stomach... I don't think i have it, but i want to rule everything out since doctors aren't any help. Man I can't believe I thought it was just "go gluten free and get better" doctors should really warn people about this stuff!

Sorry for posting my life story lol! if anyone has experience with anything i've mentioned or any more suggestions for me I'd be glad to hear it =]

JNBunnie1 Community Regular

It is entirely appropriate to check on the idea of endometriosis, that's a good avenue to explore.

Hopefully you get some answers and start feeling better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.