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Capsule Endoscopy Vs. Traditional Endoscopy: Thoughts?


powerofpositivethinking

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powerofpositivethinking Community Regular

so as i'm getting ready for my follow-up GI appointment, I've been reading up on endoscopy. to me the capsule encoscopy seems much more appealing...i wouldn't have to be put under, plus it goes through your entire small intestine even in difficult-to-reach places. i know a biopsy wouldn't be taken with the capsule, but if it can give you more access to hard-to-reach places, the only downside I see is the hardware you have to wear when it's going through you. Lucky for me, I'm not looking to make a fashion statement :lol:

i've been reading some info off a philly hospital website Open Original Shared Link and although it's very informative if you have any pros and cons, please share!


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Opa3 Apprentice

The "pillcam" is used to Dx refractory celiac disease if you don't respond to a GFD.

Opt for getting tissue biopsies first.

The thought of being ".....put under" was the best 30 minutes of sleep I ever had. :)

peeptoad Apprentice

My GI doctor is a big supporter of these; I think he actually helped develop one of them. Anyway, he told me the real downside is that if you need to take a biopsy or do anything procedural, then a standard ensocopy would need to be done anyhow. The real plus, as you said, is that the small intestine can be visualized and much of that is virtually inaccessible via either colonoscopy or gastroscopy.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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