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Peppa-minto

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Peppa-minto Apprentice

I went on a gluten diet for three months and then underwent both a colonoscopy and an endoscopy. I have an appointment to see my gastro on the fifth of March (seems like a long time for a follow up!). The initial paperwork he gave me said "r/o early barrett's" and I was too drowsy to ask what that meant. Does that mean I have early barrett's or it is suspected? Also, I apparently have internal hemmeroids(sp?). Are these symptoms of celiac? Or am I looking at something completely different? I really only suspected celiac because my sister has it. Was I on the wrong track?

Thanks for your help, everyone!


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mushroom Proficient

"r/o" means he is trying to rule it out as a diagnosis. Anyone can get hemorrhoids, unfortunately, especially those straining over passing stool.

There is not much way of knowing about celiac at this point. It is unlikely that he found any evidence of it on your endo with your extended period of gluten free. As I recall, you did not get much relief from not eating gluten? But it can take a while for things to improve. What are your current symptoms?

Peppa-minto Apprentice

well i was three months gluten free but then I was back on gluten for three months. Mostly my problem is a BM, which is both strained but usually loose if not diahrea. I go several times a day, but I dont always get results, if you know what I mean. And no matter what I ate during the day, I am always extremely bloated by the end of the night and uncontrollably gassy. Sometimes I get relief from gas-ex but it is usually so hit and miss I don't even bother. Also fatigue. That is probably the worst symptom. I never have energy.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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