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And Now We Wait!
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I went on a gluten diet for three months and then underwent both a colonoscopy and an endoscopy. I have an appointment to see my gastro on the fifth of March (seems like a long time for a follow up!). The initial paperwork he gave me said "r/o early barrett's" and I was too drowsy to ask what that meant. Does that mean I have early barrett's or it is suspected? Also, I apparently have internal hemmeroids(sp?). Are these symptoms of celiac? Or am I looking at something completely different? I really only suspected celiac because my sister has it. Was I on the wrong track?

Thanks for your help, everyone!

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"r/o" means he is trying to rule it out as a diagnosis. Anyone can get hemorrhoids, unfortunately, especially those straining over passing stool.

There is not much way of knowing about celiac at this point. It is unlikely that he found any evidence of it on your endo with your extended period of gluten free. As I recall, you did not get much relief from not eating gluten? But it can take a while for things to improve. What are your current symptoms?

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well i was three months gluten free but then I was back on gluten for three months. Mostly my problem is a BM, which is both strained but usually loose if not diahrea. I go several times a day, but I dont always get results, if you know what I mean. And no matter what I ate during the day, I am always extremely bloated by the end of the night and uncontrollably gassy. Sometimes I get relief from gas-ex but it is usually so hit and miss I don't even bother. Also fatigue. That is probably the worst symptom. I never have energy.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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