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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    GLUTEN-FREE DINING IN MAUI, HAWAII


    Melissa Blanco

    Celiac.com 10/19/2010 - The plane soared above the vast, blue Pacific Ocean as the gorgeous state of Hawaii loomed beneath it.  When we descended into our tropical destination of Maui, my stomach was a bundle of excited energy, with visions of walks along the beautiful sandy beaches and lounging poolside, soaking in the sun’s rays.  My husband and I’d planned this trip for months—budgeted for the most cost effective airfare, researched affordable hotels, packed swimsuits and summer clothing for our family of five.  Yet, as every person with celiac disease understands, traveling has its hidden dangers of gluten-contaminated food, restaurants that aren’t attuned to the needs of food intolerance sufferers, and the common question of: what am I going to eat when I’m away from my comfort zone, away from my home?
              
    Our adventure began in a resort on the Ka‘anapali Shores of Maui, as the sun was setting and a warm breeze rustled through the swaying palm trees.  While my family mapped out their wish list of activities to embark on during our paradise vacation, I brainstormed what I’d eat in the land of sugar cane, flowered leis, and tropical fruits.  As the warm sun rose each morning, I ate the breakfast bars I’d packed in my suitcase along with a cup of Hawaiian Kona coffee, which we purchased after arriving.  For coffee lovers, I highly recommend it, www.konacoffee.com.  Kona coffee was available at the hotel gift shop, grocery store, and sold as whole beans packaged at the local Starbucks.
              
    Although my diet for the week relied heavily on grilled chicken salads, fresh fruits, vegetables, and almonds, I also sampled local restaurants with my family.  We were interested in venues that offered a children’s menu, had a welcoming and fun atmosphere, and were possibly places providing a chance for exploration and cultural experience.


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    Cheeseburger in Paradise
    Anyone who’s ever listened to the song, “Cheeseburger in Paradise” by Jimmy Buffet, will understand my desire to eat at the restaurant.  Maui’s Cheeseburger in Paradise is located on Front Street in beautiful Lahaina.  The two story restaurant sits beside the water, as a cool breeze wafts through a windowless dining area, while patrons enjoy cocktails and their signature burgers and steak fries.  When I spoke to the hostesses, dressed in festive grass skirts, I was informed that they did not have a gluten-free menu, but could accommodate gluten intolerant guests by serving burgers without buns and salads.  Although I contemplated ordering one of the grilled salads, I ultimately decided upon the signature Cheeseburger in Paradise, minus the bun, and a basket of sweet potato fries.  I might have been tempted to try the steak fries as well, but learned from my server that they are flavored with a seasoning salt containing gluten.  It was a pleasant experience and my only wish was that I’d have brought a license plate to hang on the restaurant wall with others from across the country.  If interested, check out their website at, www.cheeseburgerland.com.

    Old Lahaina Luau
    Also located on Front Street in Lahaina, Hawaii, this Luau is worth attending if only for the traditional Hawaiian Hula performance.  The Old Lahaina Luau is a family affair located beside the ocean, providing a beautiful sunset view, as ceremony and tradition are celebrated following pre-dinner learning activities for both adults and children.  Upon entering the Luau, girls are presented with a flower for their hair and everyone is given a fresh flower lei.  Adults are offered the signature island alcoholic beverage, a Mai tai—it is up to the patron whether or not to accept it.  Before attending the Luau we called in advance and requested a gluten-free menu.  This gluten-free request was confirmed by my server when I arrived.  Additionally, I was presented with a complete food ingredient list by him for the buffet.  I would advise anyone with a gluten intolerance to request a gluten-free meal because while reading the ingredient list, I discovered most of the dishes contained soy sauce.  As I joined my family in choosing fresh fruits, salad, and vegetables from the buffet line, my server placed a warm, freshly prepared gluten-free meal of grilled chicken breasts and steamed vegetables where I was seated.  Overall, it was an amazing night and a wonderful time to experience a traditional Lu‘au while enjoying a delicious meal.  For more information or to make a reservation: www.oldlahainaluau.com.

    Pacific Whale Foundation Lana‘i Snorkel and Dolphin Watch Eco-Adventure
    The non-profit Pacific Whale Foundation offers several eco-adventures for people wishing to experience the marine life of Hawaii.  We chose to take the five hour Snorkel and Dolphin Cruise, which provided a continental breakfast, barbeque lunch, and refreshments.  After departing from Lahaina Harbor, snorkel gear and flippers in hand, we sailed patiently through the choppy waters of the Pacific Ocean in search of dolphins.  We weren’t disappointed when about an hour into our adventure we spotted several spinner dolphins spectacularly jumping out of the pristine blue water to entertain us.  In preparation for this voyage, I called ahead to inquire about food offerings and was assured that a gluten-free meal would be provided to me.  I came to find out, while on the cruise, that it was basically a standard meal for all passengers, in which I was to choose only the food that didn’t contain gluten.  As I live with a family who normally consumes gluten, this picking and choosing was not uncommon to me.  For breakfast, I sampled fresh pineapple and passed on the banana bread.  For lunch, I ate barbecued chicken with lettuce and tomato.  As a service to vegetarians, a veggie burger is provided upon request.  I would certainly recommend this cruise for people that are interested in dolphin sightings or who want to be introduced to snorkeling.  For those who have celiac disease, I’d also suggest bringing along some extra snacks.  For more information, www.pacificwhale.org.

    Hard Rock Café Maui
    In an effort to introduce my children to the cultural likes of good old rock and roll, I suggested that we eat dinner at the Hard Rock Café, located in the Old Lahaina Center, of Maui.  I was happy to find that a children’s menu was available, but slightly disappointed to learn that a gluten-free menu wasn’t.  Our server, however, was more than helpful, willing to look at food ingredients in the computer for me and alert me to items containing gluten.  Unfortunately, the nachos I’d been craving contained wheat, so I instead ordered a cheeseburger, minus the bun.  It was my second cheeseburger of the week and I was truly unable eat a quarter of it because it was such a generous portion.  The atmosphere was lively and loud, nothing less than what I’d expect from a Hard Rock Café.  It was a fun night out and I was happy to leave with a Hard Rock Café Maui tee-shirt from the restaurant gift shop.  If you’re looking for a quieter venue and are interested in seafood, there is a Bubba Gump Shrimp Company located directly across the street from the Hard Rock Café, providing shrimp and lots of Forrest Gump memorabilia.  Hard Rock Café’s website is www.hardrock.com.  Bubba Gump Shrimp’s website is www.bubbagump.com.

    Our vacation to Maui was primary restricted to the beautiful Ka‘anapali Shores and town of Lahaina, therefore I didn’t explore a lot of the island, nor did I locate any grocery stores providing a gluten-free selection.  This is not to say that they don’t exist, rather, that I was not able to shop at one.  I’d recommend travelers to take their own gluten-free snacks, as long as they are approved through the agricultural inspection.  Hawaii is a state full of fresh produce, including savory pineapple, seafood, and sweet potatoes, which provide many healthful options for those with celiac disease.  My family also enjoyed the thirst quenching and tasty shaved ice, www.ululanisshaveice.com, and the extremely delicious frozen treat, gelato, and its dairy-free counterpart, sorbetto, www.onogelatocompany.com.

    For the residents of Maui, I appreciate your understanding and willingness to accommodate my gluten intolerance.  To you I say, “mahalo.”


    Image Caption: Gluten-free travel to Hawaii is possible! Photo: CC-Jordan Emery
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    Guest Jens Kitchen

    Posted

    Informative and interesting experience you have shared. Thanks. An addition to the list of destinations where gluten free food is available.

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    I went to Maui a year ago.

     

    The luau I went to was the Feast at Lele. There is no buffet. They bring all the food to the table. When the dish contained gluten my server would bring me a similar dish that had been made gluten free. I did not miss out on anything.

     

    Lunch at Ma'la in Lahaina was wonderful. They did not have a gluten-free menu, but they said a gluten free meal was not a problem. We got there before lunch time and they opened early to serve us. We had organic chicken, rice and garlic spinach. Normally we would have had fish, but this was the last day and I wanted something other than fish.

     

    LuLu's Lahaina Surf Club & Grill located near the Safeway store was also very gluten free friendly. Again, no gluten-free menu but they made us some gluten free omelets with potatoes for breakfast. They are not open every day for breakfast.

     

    The best fish we had was the fresh fish we bought and grilled at our condo.

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    From a person who wants to eat out in Maui, this is not really a very detailed response. Driving from the airport at the first intersection you can go right and very soon there is a new whole Foods. If you continued from the airport to Ka‘anapali as on all maps, you drive right past a natural foods store where I have shopped for my gluten free items for 10 years.

    Cheeseburger in Parasise - do not eat any of their fries, in fact do not eat any fries in Maui - 99% of them seasoning or not have a light flouring on them to keep them crispy and so they do not melt or expire or flop on your plate due to the humidity. Neither Cheeseburger in Paradise, Hard Rock Cafe or Bubba Gumps serve people with celiac disease very well and their knowledge is poor. If you try Bubba Gumps the only thing you can have there are steamed peel and eat shrimp. There are MANY gluten free places on Maui - explore a little more and get away from the chains.

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    Guest Melissa Blanco

    Posted

    From a person who wants to eat out in Maui, this is not really a very detailed response. Driving from the airport at the first intersection you can go right and very soon there is a new whole Foods. If you continued from the airport to Ka‘anapali as on all maps, you drive right past a natural foods store where I have shopped for my gluten free items for 10 years.

    Cheeseburger in Parasise - do not eat any of their fries, in fact do not eat any fries in Maui - 99% of them seasoning or not have a light flouring on them to keep them crispy and so they do not melt or expire or flop on your plate due to the humidity. Neither Cheeseburger in Paradise, Hard Rock Cafe or Bubba Gumps serve people with celiac disease very well and their knowledge is poor. If you try Bubba Gumps the only thing you can have there are steamed peel and eat shrimp. There are MANY gluten free places on Maui - explore a little more and get away from the chains.

    Thank you Lynda for your comment. I would like to reiterate that this was my first time to Maui and that I was also traveling with small children who share an opinion in where we eat. I'm sure readers will be interested in knowing about the Whole Foods. As I stated in the article, I did not have an extended opportunity to explore the island. My vacation was brief, but if I had been there longer, I'd have more time to sample other restaurants serving gluten-free food. The point of this article was to provide travelers with information on my experience and to also give them tools to eat out gluten-free while traveling.

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    Mala in both Lahaina and Wailea has to be one of the best gluten free restaurants I have ever been to anywhere. My husband and I were blown away by the quality of the dishes. Many on the gluten free menu were merely minus the soy sauce (bring your own!!!!) which we miss the flavor of, so we instead asked the server to ask the chef to recommend what he thought would be best. Wow, was that an amazing decision. We ended up with a Thai inspired curry that we still talk about almost a year later. The food can't be fresher and it's amazing. Definitely your nice night out though.

    Also there is a Whole Foods very near the airport, stop there before continuing on (also a Costco if you are a member, it's a good place to get staples reasonably). In Kihei go to Hawaiian Moons Store for more gluten-free selection than even Whole Foods and a great hot bar with many gluten-free options. Maui Tacos is a local chain with fabulous gluten-free options for those who love Mexican, and any nice restaurant can make you fresh fish and veggies that will blow you away. Also try the local Maui beef, it's served in many restaurants and sold at Whole Foods and Longs Drugs. It's all grass fed and so good..... Maui takes a little work (b/c most things are made with soy sauce), but it's so worth it. Call ahead and ask the chef about their accommodations. Also don't forget to go to Flatbread in Paia (on the way to Hana or the North Shore)... great gluten free pizza (call ahead to make sure they have gluten free crusts and prepare to wait a little or call your order in early as all gluten-free pizzas are made separately). Most restaurants on Maui are family style and want your kids to be happy too, they are happy to substitute baked potatoes if fries aren't ok or grilled chicken or steak instead of chicken fingers, etc. Be nice and tip well and they will work hard for you. Your business is their livelihood.

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    There is also an Outback restaurant in Maui, this Australian chain is amazing for celiacs, they have a dedicated gluten free menu, and their dessert "Thunder from down under" is to die for! Chocolate brownie with whipped cream,syrup, nuts and a cherry on top!well worth visiting. I found the Hard Rock Cafe very uninformed and limited.

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    Informative and interesting experience you have shared. Thanks. An addition to the list of destinations where gluten free food is available.

    You missed Penne Pasta in Lahaina. For a small charge, they will make you gluten free pasta, and they know what they're doing.

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    Hi I went to Maui a few years ago I found Marie's Bakery all gluten free goodies too bad you missed that.

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    Guest Charmaine Stillwell

    Posted

    It was a very informative article and I enjoyed hearing about her trip. Food choices are a challenge in every day living but sometimes travel can be almost impossible but improving more each day.

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    Guest Shayna

    Posted

    Thanks for the useful info. Just FYI to anyone visiting, the Kahului Ale House is NOT GLUTEN FREE friendly, as it is listed on some reviews. It is under new ownership and does not have any gluten free options. The hostess looked at me like I had 2 heads when I asked about their gluten free options.

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    Guest A. Nelson

    Posted

    I live on Maui and HIGHLY suggest all celiacs make their 1st stop Mana Foods in Paia. It is close to the airport and blows Whole Foods outtadawatah for gluten-free foods, packaged and prepared!

    As was mentioned above Flatbread makes a good gluten-free pizza, and yes...there is an Outback in Kihei.

    Also Mama's Fish House is very accommodating, and Cafe Mambo in Paia has many options.

    More important is where you stay. You can try www.homeaway.com for house rentals, or Maui Sports Vacations, but a house, condo or apartment is always e best bet for Celiacs because of the obvious. With a house & Mana Foods, you can have a great vacation on Maui...and save money too!

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    Guest Jack Darrington

    Posted

    Great ideas, thanks. I'm dating a girl with celiac and we're planning a trip to Hawaii so I really needed some direction. Quick question, I've heard that coffee from the tropics is to die for and I really want to try some Hawaii coffee beans. Now I want to be sensitive to my girlfriend's gluten intolerance so I was wondering if coffee had gluten in it or not? Probably a dumb question but I'm new to all this.

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    Guest AmandaonMaui

    Posted

    You missed Penne Pasta in Lahaina. For a small charge, they will make you gluten free pasta, and they know what they're doing.

    Penne Pasta has bad cross contamination issues. They cook the gluten free pasta in the same pasta cooker as the regular pasta. Twice in one evening (after sending back my first plate of food) I found a gluten containing noodles in with my brown rice pasta. I contacted the restaurant but I didn't get any response about possibly changing the way they do things.

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    Guest AmandaonMaui

    Posted

    From a person who wants to eat out in Maui, this is not really a very detailed response. Driving from the airport at the first intersection you can go right and very soon there is a new whole Foods. If you continued from the airport to Ka‘anapali as on all maps, you drive right past a natural foods store where I have shopped for my gluten free items for 10 years.

    Cheeseburger in Parasise - do not eat any of their fries, in fact do not eat any fries in Maui - 99% of them seasoning or not have a light flouring on them to keep them crispy and so they do not melt or expire or flop on your plate due to the humidity. Neither Cheeseburger in Paradise, Hard Rock Cafe or Bubba Gumps serve people with celiac disease very well and their knowledge is poor. If you try Bubba Gumps the only thing you can have there are steamed peel and eat shrimp. There are MANY gluten free places on Maui - explore a little more and get away from the chains.

    I agree about not eating fries here on the island. None of the restaurants on island are using separate fryers, as far as I know. If there are, please let me know. I want fries!

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    Guest AmandaonMaui

    Posted

    Mala in both Lahaina and Wailea has to be one of the best gluten free restaurants I have ever been to anywhere. My husband and I were blown away by the quality of the dishes. Many on the gluten free menu were merely minus the soy sauce (bring your own!!!!) which we miss the flavor of, so we instead asked the server to ask the chef to recommend what he thought would be best. Wow, was that an amazing decision. We ended up with a Thai inspired curry that we still talk about almost a year later. The food can't be fresher and it's amazing. Definitely your nice night out though.

    Also there is a Whole Foods very near the airport, stop there before continuing on (also a Costco if you are a member, it's a good place to get staples reasonably). In Kihei go to Hawaiian Moons Store for more gluten-free selection than even Whole Foods and a great hot bar with many gluten-free options. Maui Tacos is a local chain with fabulous gluten-free options for those who love Mexican, and any nice restaurant can make you fresh fish and veggies that will blow you away. Also try the local Maui beef, it's served in many restaurants and sold at Whole Foods and Longs Drugs. It's all grass fed and so good..... Maui takes a little work (b/c most things are made with soy sauce), but it's so worth it. Call ahead and ask the chef about their accommodations. Also don't forget to go to Flatbread in Paia (on the way to Hana or the North Shore)... great gluten free pizza (call ahead to make sure they have gluten free crusts and prepare to wait a little or call your order in early as all gluten-free pizzas are made separately). Most restaurants on Maui are family style and want your kids to be happy too, they are happy to substitute baked potatoes if fries aren't ok or grilled chicken or steak instead of chicken fingers, etc. Be nice and tip well and they will work hard for you. Your business is their livelihood.

    Maui Tacos now states that none of their food is considered gluten free friendly as they cannot prevent cross contamination. They have removed their gluten free statement from their website at my request. I no longer dine there myself due to too many times of getting sick in the past year.

     

     

    Two other stores in Kahului with more gluten free options are Alive & Well on Hana Highway next to the Birkenstock store, and Down to Earth on Dairy Road.

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    Guest AmandaonMaui

    Posted

    Mala in both Lahaina and Wailea has to be one of the best gluten free restaurants I have ever been to anywhere. My husband and I were blown away by the quality of the dishes. Many on the gluten free menu were merely minus the soy sauce (bring your own!!!!) which we miss the flavor of, so we instead asked the server to ask the chef to recommend what he thought would be best. Wow, was that an amazing decision. We ended up with a Thai inspired curry that we still talk about almost a year later. The food can't be fresher and it's amazing. Definitely your nice night out though.

    Also there is a Whole Foods very near the airport, stop there before continuing on (also a Costco if you are a member, it's a good place to get staples reasonably). In Kihei go to Hawaiian Moons Store for more gluten-free selection than even Whole Foods and a great hot bar with many gluten-free options. Maui Tacos is a local chain with fabulous gluten-free options for those who love Mexican, and any nice restaurant can make you fresh fish and veggies that will blow you away. Also try the local Maui beef, it's served in many restaurants and sold at Whole Foods and Longs Drugs. It's all grass fed and so good..... Maui takes a little work (b/c most things are made with soy sauce), but it's so worth it. Call ahead and ask the chef about their accommodations. Also don't forget to go to Flatbread in Paia (on the way to Hana or the North Shore)... great gluten free pizza (call ahead to make sure they have gluten free crusts and prepare to wait a little or call your order in early as all gluten-free pizzas are made separately). Most restaurants on Maui are family style and want your kids to be happy too, they are happy to substitute baked potatoes if fries aren't ok or grilled chicken or steak instead of chicken fingers, etc. Be nice and tip well and they will work hard for you. Your business is their livelihood.

    If you are extremely sensitive to cross contamination of any kind, skip flat bread. I have about a 50/50 rate of illness after eating their gluten-free pizzas. I spoke with their chef, and they do try very hard to prevent cross contamination, but it's a pizza place and they do make their own gluten crusts and have giant bags of flour just sitting out in the restaurant.

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    Guest AmandaonMaui

    Posted

    Hi I went to Maui a few years ago I found Marie's Bakery all gluten free goodies too bad you missed that.

    Sweet Marie's is on Kauai.

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    For us, it is harder to come across gluten-free (vegan or "healthy"-eating) in North of Lahaina and into Ka'anapali.

    We travel to Maui several times a year and tend to stay Kihei or south (Makena/Wailea) area. I agree with the above poster that Mala is fabulous. Cafe O'Lei will also accommodate diners but to a lesser degree. Joy's Place for lunch in Kihei cannot be beat!

    We always spend time in Paia and yes, we do dine at Flatbread and their salads are amazing alone (w/o the pizza)! [Paia is also the town with Mana foods.] As the poster right above mentioned, Cafe Mambo is da' bomb!!!

    So yes, a little detective-work is necessary for your dietary needs, but not difficult for this particular travel destination!! ALOHA!

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    Hey all gluten-free Maui eaters. The latest update. I'm from Maui, now live on mainland so visit often. Here's what and where we ate w three of the four of us being celiac and sensitive... All w out reaction. Kimo's in Lahaina.... Amazing sunset view, have a gluten-free menu and accommodated us beautifully with the manager checking in as well. Stella blues in Kihei has long been a favorite. Manager personally answered all questions and guided our ordering. Ribs and fish were awesome!!! Flat bread pizza was great as always and even have added gluten-free brownies Ala mode! The kids were so excited. Call ahead for seating as it gets really crowded. Lastly our new discovery was wholefoods in Kahului is now doing gluten-free pizzas to go. These became our go to when we needed food to travel. We even took them on the plane home. Hawaiian Moons and Mana Foods are great local markets for all things gluten-free and more convenient depending on where you stay. FYI if flying through LAX, bring food. No good options there at all...

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    Hey all gluten-free Maui eaters. The latest update. I'm from Maui, now live on mainland so visit often. Here's what and where we ate w three of the four of us being celiac and sensitive... All w out reaction. Kimo's in Lahaina.... Amazing sunset view, have a gluten-free menu and accommodated us beautifully with the manager checking in as well. Stella blues in Kihei has long been a favorite. Manager personally answered all questions and guided our ordering. Ribs and fish were awesome!!! Flat bread pizza was great as always and even have added gluten-free brownies Ala mode! The kids were so excited. Call ahead for seating as it gets really crowded. Lastly our new discovery was wholefoods in Kahului is now doing gluten-free pizzas to go. These became our go to when we needed food to travel. We even took them on the plane home. Hawaiian Moons and Mana Foods are great local markets for all things gluten-free and more convenient depending on where you stay. FYI if flying through LAX, bring food. No good options there at all...

    I second the Whole Foods option. We stop there straight from the airport & stock up (there's plenty of prepared food too), then head for our condo. I love Kimo's. Look for sushi places, just don't use the soy sauce. There's a wonderful Asian noodle house in a more industrial part of Lahaina with rice noodles etc. Count on eating rice instead of fries as a side dish. Have fish that's grilled or sauteed with no breading. I have both dairy & wheat allergies, and I do fine here.

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    Guest Kevin

    Posted

    WOW, all you folks are awesome! My wife just figured out that gluten was her problem for all these years. We were worried about going back for our 2nd trip to Maui (what do you expect? we're silly mainlanders, don't know a thing...) Thanks for all the personally-gained experience and for sharing all the info.

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    Guest Matthew

    Posted

    I am new to celiac disease, as I just found out about 2 months ago and this was extremely helpful. I had a trip planned to Maui in a week and was dreading having to find places to eat and feared i wouldn't be able to go out to dine at all. I have emailed a number of places and will be sure to update on my trip and the restaurants that I find. Thanks again!

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    Maui Brick Oven is a new 100% Gluten Free Restaurant on Maui....and their food is Awesome! In Kihei, next to Longs.

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    Guest Ginny F

    Posted

    Recently went to Maui. Shopped at Mana, local fruit stands and Long's drug store. Spent two weeks there and never ate out. This is our third visit, just love Maui. Had plenty of time to explore and talk to the people. Every day is a good day when you don't have tummy troubles. We are a family of five, with three gluten-free.

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    Just leaving Maui this week and found the comments above helpful. We shopped at Whole Foods as well. In the area, where we stayed, there is a farmers market store that has gluten-free foods. We also went to the Seahouse restaurantat Napili Beach which has a very nice gluten-free menu. Safeway in Lahaina has some gluten-free products (bread in the Frozen food section). Thanks for all the comments.

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    Destiny Stone
    This is the time of year when familiestake vacations and travel the world. Traveling can often be stressfuleven under normal circumstances; packing problems, flight delays,getting lost, are all possible when trying to get from point A topoint B. So imagine how stressful it can be for a celiac orgluten-sensitive person to get ready for a big trip, especially to alocation that doesn't cater to the gluten-free lifestyle.The following tips are geared towardhelping even the most sensitive celiac to have a fun filled andgluten-free vacation while minimizing the stress factor as much aspossible. This article covers the following: preparing for yourgluten-free travel adventure, gluten-free travel by plane,automobile, train or ship, gluten-free accommodations, gluten-freemeals and snacks, what to do if you accidentally ingest gluten.
    Before beginning your vacation, thereare many important things you will want to consider, like method oftravel, your destination, and gluten-free options in the city ortown in which you will be staying. To help find gluten-freeaccommodations and eatery's in your location, perform a “Google”search for 'gluten-free restaurants and accommodations' in the areayou will be traveling to.

    Planes Trains and Automobiles-Tips forGluten-Free Travel by Danna Korn Gluten-Free Transportation
    Traveling by car is the best way totravel, if you have a choice. That way you can stop at stores asneeded and load up on your gluten-free snacks. Trains are also good,because they allow and encourage you to bring your own food on the train. Planesand ships are where it starts to get a little trick, especially if you have a long trip ahead of you.
    Airlines are fairly easy to manage,because you can bring your own food aboard the flight. However,there is a limit to what and how much you are allowed to bringaboard, which can be a problem on a long flight. While many airlinesoffer vegetarian or Kosher options for those with special dietaryneeds, most airlines do not have gluten-free menu options for thoseof us with gluten-intolerance. However, Continental Airlinescurrently offers gluten-free food options. Although, if you areextremely sensitive to cross-contamination, it is still safer tobring your own food.

    More Gluten-Free Airline Travel Tips
    Continental Airlines
    However, if you are planning to travela cruise-line, most cruise-lines do not allow you to bring your ownfood aboard. So in this situation it is important to find acruise-line that will accommodate your special needs. RoyalCaribbean Cruise-lines, and Orbridge ships are two cruise-lines thatoffer gluten-free menu options, as well as catering to other dietaryneeds.
    Royal Caribbean Cruise Orbridge
    Gluten-free accommodations
    Most motels or hotels offer acontinental breakfast and that's about it. Short of eating coffee andorange juice for breakfast,there usually isn't much in the way ofmeal options for a celiac. However, many small bed and breakfast'swill accommodate you special dietary needs if you talk to them andset it up in advanced, and some even offer gluten-free options. To find a gluten-free Inn, perform a “Google” search for'gluten-free accommodations' in the area you will be traveling to.
    Staying with family or friends can bestressful if they aren't sensitive to your dietary needs. It can alsobe difficult to explain to your friends and loved ones, what it meansfor you to be gluten-free, and who really wants to spend their entirevacation educating the everyone you meet on what it means to beceliac or gluten-sensitive? That could literally take the entirevacation. If cross-contamination is an issue for you and you areconcerned about eating in a gluten based house, the following linkwill help you determine what you need to be free from gluten whileyou are staying with others. It might be a good idea to print theinformation and share it with your host, maybe even emailing them alink with the information, prior to your visit.

    What to do if you can't have agluten-free kitchen Gluten-Free Meals and Snacks
    Finger foods, gluten-freechips/crackers, veggie sticks, gluten-free sandwiches, these are allwonderful foods to keep with you on a trip. Bring as muchgluten-free, shelf-stable food with you as possible. Find out wherethe local farm market is, for fresh and local, organic produce andbuy fresh produce when you arrive at your location.
    Many people getting ready for a trip,will place an order online in advance and have it delivered to thelocation they will be visiting. The Gluten-Free Mall is veryaccommodating and can ship shelf stable food Nationally andInternationally and frozen goods can be shipped within theContinental US. Having a package of gluten-free food delivered toyour location, gives you one less thing to worry about. No extrapacking, or extra luggage, no worries about your food getting crushedor apprehended at customs or tossed out at an airport. It's assimple as placing an order online or by phone.

    Gluten-Free Mall The National Foundation for CeliacAwareness (NFCA) works very hard to train chefs and kitchen staff allacross the globe, on the dos and don't s of cooking gluten-free fortheir guests with extreme gluten sensitivities. Check out the listthey have compiled of of GREAT kitchens that have the stamp ofapproval from NFCA for a possible location near you.

    NFCA GREAT Gluten-Free Kitchens list Unfortunately, not all restaurants havethe GREAT seal of approval from NFCA and the likelihood of one beingat your chosen destination is pretty slim, and finding a dedicated gluten-free restaurants are also rare depending on where you travel. That's why it is important to knowwhat to do when you go out to eat with a group of gluten-eaters.There is a great deal of information on this subject, but here aresome links to get you started.

    How to eat a gluten-free breakfastwhile traveling Eating gluten-free when traveling What to do if you Accidentally Ingest Gluten
    There are varying opinions of what thebest thing to do is when you accidentally ingest gluten, drink gingertea, take laxatives, hot water bottle on the abdomen; there really isno right answer, as everybody is different and has differentreactions to gluten. However, here are some tips that might help ifyou accidentally ingest gluten.

    Accidental Gluten Ingestion What to do if you accidentally eat gluten
    The most important thing you can do for yourself is to have fun. Stress can affect how youdigest your food, and then it won't matter if you avoid gluten, you stillwon't feel good. 
    Happy and safe travels everyone!


    Connor Burns
    If you have ever traveled to Newport, RI then you know there are plenty of great restaurants to choose from. But if you have celiac disease or a gluten-intolerance then you know that dining out in an unfamiliar city is very difficult. Luckily, Newport has many gluten-free friendly restaurants that can easily be found if you know about them. I have comprised a list of celiac friendly restaurants in this scenic, colonial city. These restaurants have responded to a survey that was sent to over 100 restaurants and bakeries in Newport. All of the places listed have also stated that they are familiar with the necessary precautions that come with preparing gluten-free food such as avoiding cross-contamination. I have attempted to verify the accuracy of the statements provided by the restaurants to the best of my ability. If you are a tourist or local, I hope this list can help in keeping your gluten-free lifestyle.

    Places that offer gluten-free menus:
    Brick Alley Pub
    140 Thames Street Newport, RI
    (401) 849-6334
    www.BrickAlley.comEva Ruth's Specialty Bakery
    796 Aquidneck Avenue Middletown, RI
    (401) 619-1924
    www.EvaRuths.com
    * Eva Ruth's is located 10 minutes out of downtown Newport and specializes in making only gluten-free products.
    O'Briens Pub
    501 Thames Street Newport, RI
    (401) 849-6623
    www.theobrienspub.com
    Safari Room at Ocean Cliff (Sunday brunch menu)
    65 Ridge Road Newport, RI
    (401) 849-4873
    www.newportexperience.com
    Tucker's Bistro
    150 Broadway Newport, RI
    (401) 846-3449
    www.tuckersbistro.com
    Yesterday's and the Place
    28 Washington Square Newport, RI
    (401) 847-0116
    www.yesterdaysandtheplace.com

    Places that are familiar with gluten-free foods and offer gluten-free options:
    A Little Café
    27 Connell Highway Newport, RI
    (401) 849-0123
    www.Alittlecafe.usBouchard Restaurant and Inn
    505 Thames Street Newport, RI
    (401) 846-0123
    www.bouchardnewport.com
    Callahan's Café Zelda
    528 Thames Street Newport, RI
    (401) 849-4002
    www.cafezelda.com
    Castle Hill Inn
    590 Ocean Drive Newport, RI
    (401) 324-4522
    www.castlehillinn.com
    * Castle Hill Inn is working with Eva Ruth's bakery to offer more gluten-free options.
    Diego's
    11 Bowen's Wharf Newport, RI
    (401) 619-2640
    www.diegosnewport.com
    Fathoms Restaurant at the Newport Marriott
    25 Americas Cup Avenue Newport, RI
    (401) 849-7788
    Fluke Wine Bar and Kitchen
    41 Bowens Wharf Newport, RI
    (401) 849-7778
    www.flukewinebar.com
    Gas Lamp Grille
    206 Thames Street Newport, RI
    (401) 845-9300
    www.gaslampgrille.com
    * Gas Lamp Grille is in the process of creating a gluten-free menu.
    It's My Party Bake Shoppe
    84 William Street Newport, RI
    (401) 619-4600
    www.itsmypartynewport.com
    * Must call in advance to place an order for gluten-free products at It's My Party Bake Shoppe.
    Lucia Italian Restaurant
    186 B Thames Street Newport RI
    (401) 846-4477
    www.luciarestaurant.com
    Mamma Luisa Restaurant
    673 Thames Street Newport, RI
    (401) 848-5257
    www.mammaluisa.com
    SAPO Freaky Burrito
    16 Broadway Newport, RI
    (401) 847-1526
    www.freakyburrito.com
    Sardellas Restaurant
    30 Memorial Boulevard W Newport, RI
    (401) 849-6312
    www.sardellas.com
    * Sardella's carries gluten-free pasta, but it is recommended that you call in first to make sure that they have it in stock.
    Sushi-go
    215 Goddard Row Newport, RI
    (401) 849-5155
    www.sushi-go.com
    Tallulah on Thames
    464 Thames Street Newport, RI
    (401) 849-2433
    www.Tallulahonthames.com
    The Barking Crab Restaurant
    151 Swinburne Row Newport, RI
    (617) 206-8294
    www.barkingcrab.com
    The Mooring Seafood Kitchen
    1 Sayer's Wharf Newport, RI
    (401) 846-2260
    www.mooringrestaurant.com
    The Smokehouse Café
    31 Scotts Wharf Newport, RI
    (401) 848-9800
    The White Horse Tavern
    26 Marlborough Street Newport, RI
    (401) 849-3600
    www.whitehorsetavern.us
    *Some of these restaurants may only offer naturally gluten-free items, but will be more than willing to accommodate any changes to their options if asked


    Phyllis Morrow
    Celiac.com 04/16/2013 - For a celiac traveler from the United States, New Zealand is a pleasure. Gluten awareness is widespread, there are gluten-free food options virtually everywhere you go, and product labeling for allergens and gluten is typical. Because New Zealand is English-speaking, there is no problem communicating gluten-free needs. And, of course, it’s summer there when it’s winter here and it’s beautiful. Who could ask for anything more (other than a shorter plane flight)?
    When my husband and I were planning an extended trip in 2009, I decided that traveling gluten-free would be easier in NZ than in the other destinations that we considered: Bali and Thailand. While Southeast Asian cuisines are rice-based and do include many gluten-free foods, conversations with friends who have lived there made me hesitate. The main problem for us is that we travel mostly on bicycle and like to be away from the major tourist areas. While staff at tourist hotels and luxury resorts may be familiar with food intolerance, once you go off the beaten track, people are unused to accommodating the “odd” requests of foreigners. I knew that in Southeast Asia language barriers would be an issue. My friends warned that the idea of food allergies and intolerance is not well-known there and they thought, too, that cultural conventions of politeness might lead people to assure us that foods were safely gluten-free when, in fact, they were not. On the other hand, my son had spent a week in New Zealand and his scouting report read: “gluten-free products, including bread and crackers, are easy to find even in the smallest convenience stores.”  
    We bicycled in New Zealand again in 2012, and once more we spent two months there. Now, I have suggestions and experiences to report from both North and South Islands.
    First, it’s always good to do some homework.  Before leaving and also while In New Zealand, I suggest  cruising the Internet for information. A useful site is http://www.glutenfreeliving.co.nz/ which displays restaurant and retail store options for various locations. The information is not always up to date (restaurants may close or change hands), but “no worries, mate,” as they say. Other gluten-free options are almost always easy to find.
    If you are traveling on New Zealand Air, be sure to order gluten-free meal options on your trans-Pacific flights. In 2009, I had some concern when I saw the term “low-gluten” in the subject line rather than “no-gluten” or “gluten-free” when customer service replied to my e-mail, but that may have been a legal precaution on their part. In addition to requesting gluten-free meals well in advance, be sure to double-check at the airline counter to make sure that the requests are in the system. I found the food entirely acceptable (and a choice of 77 in-flight movies also helped pass the time…). In fact, on the most recent flight there was an unexpected benefit to being gluten-free: special meals are the first to be served. While the flight attendant was handing my tray to me, the plane hit turbulent air. Meal service was instantly suspended and as far as I could tell I was the only passenger who got to eat for the next hour. Of course, I always take the precaution of carrying some gluten-free food/snacks, as well. You never know when you might need them.
    Actually, I did need them on the 2012 trip – but ironically that was when I couldn’t have them! We had decided to layover for a few days in Fiji to break up the long flight. I anticipated (correctly) that there would be little gluten-awareness in Fiji, so I was traveling with plentiful supplies. But I was dismayed to find that arriving passengers were required to discard all food items, without exception, at the airport. That made the next five days in Fiji a little challenging. I relied on cooking locally available basic resources that I bought in public markets, such as eggs, vegetables, coconut, fish, meat and yams. It was hard to find food that I was sure would be safe in grocery stores and almost impossible in restaurants.
    Because I am a budget traveler, and because I want good control over what I eat, I do prefer to buy and cook my own food in any case. In New Zealand, food items tend to be clearly labeled, much better than they are in the US. All of the larger supermarkets, such as New World, Pack n’ Save, Woolworth’s (locally known as “Woolli’s”), and Countdown have gluten-free breads of various sorts, as well as rice crackers, sweets, and an array of pre-packaged items such as soups, risotto, and curries that may be labeled gluten-free. However, there are always hidden surprises; for example, it was hard to find hummus that did not indicate the possible presence of wheat in the chickpeas (only Lisa’s Organic hummus was gluten-free). The ubiquitous smaller grocery outlets, such as dairies (the equivalent of convenience stores) might or might not have much in the way of gluten-free foods. Traveling by bicycle in more remote areas, such as heading towards East Cape from Opotiki, stores were sometimes far apart and minimally stocked. I occasionally found myself with nothing to eat for lunch but tinned salmon or sardines. Anyone traveling in a car could easily avoid such a situation, though.
    As might be expected, health food and organic food stores typically have a selection of gluten-free food items including bread, snacks, baked goods, pasta and alternative grains. Sometimes they carry gluten-free meat pies and other entrees in the freezer case. They tend to have easily identifiable names, such as Homestead Health, Bin Inn Wholefoods, Commonsense Organics (which carries, among others, Breadman brand fresh baked breads), etc. Always use your own commonsense, though. I did see occasional red flags, such as purportedly gluten-free baked goods unwrapped and sitting in a display case next to other goods baked with wheat flour. In those situations, I politely say that I would like to buy certain items but cannot do so if there’s a chance of gluten contamination. Also, I tell them that I worry that if this is an issue in one part of the store, I can’t be sure about other items they carry. They usually listen carefully to requests that might improve their sales.
    Having stocked upon gluten-free items at a shop in Auckland before a long train trip on the Tranz Scenic to Wellington, I discovered that I would have done fine without that precaution. The canteen on the train featured a line of prepackaged meals under the Wishbone label, all of which were very visibly marked for dietary restrictions including dairy free, gluten free, no meat, low fat, and low glycemic index. I enjoyed the "butter chicken"(tandoori spiced chicken with rice and sliced almonds) for lunch and saved my gluten-free groceries for dinner. On the other hand, when traveling by bus over long distances, I found it necessary to carry my own food. Meal stops on the bus routes were rarely more than ½ hour, and generally restricted one’s choice to a single café or cafeteria-style restaurant that did not have much for the gluten-free traveler.
    We stayed mostly in "backpackers," hostels that have kitchen facilities. They are found everywhere. One tip is to pick backpackers that have high ratings in the BBH New Zealand backpackers network guide. These will be the cleanest and best-organized places. The more highly rated hostels will cost more (it’s okay – they are worth more), but you will save a bit with a BBH membership. Backpacker accommodations range from dormitory-like arrangements to private rooms with bath. They may be large and full of boisterous young people, or small and quiet. With small places, you may have the kitchen almost completely to yourself. In the communal kitchen and eating area there will be a varying selection of cookware, utensils, and dishware. We carry camping gear including a thin plastic cutting board, a nesting pot set, lightweight cups, bowls and utensils, and plastic storage containers labeled with our name. I often used our own cooking pots and plates in backpacker hostels since hostel guests do not always do the best job of cleaning up their dishes. If I did use communal pans or utensils, I washed them thoroughly beforehand, using something other than a possibly contaminated communal sponge or dishrag. It is a good idea to cook and eat outside of the most crowded mealtimes, particularly at large, popular hostels. Otherwise, the atmosphere of “combat cooking” may defeat your efforts to keep gluten off surfaces and people may assume that your newly washed pot is there for them to use.  But it is wonderfully convenient to be able to cook your own food and refrigerate your groceries and leftovers. You need to bag your food, clearly label it with name and date, and make sure that it is sufficiently protected to prevent contamination from other people’s food in a stuffed refrigerator.
    A lot of restaurants and cafés throughout New Zealand offer gluten-free menus or menu options. While you need to be prepared for this not to be true in the more remote areas, even there you will often have pleasant surprises. I do recommend that you advise the waitperson that you are celiac.  If they look at you blankly, say that this requires that you be very strictly gluten-free. If they still look blank, go somewhere else to eat. In a properly gluten-free-conscious place, the staff will confirm with the chef that your menu choice is safe and note the need for special care on your order. I had one worrisome experience after eating at an Indonesian restaurant in Napier. The Dutch owner seemed very knowledgeable about celiac and told me exactly what I could have, including sauces. Afterwards, as we were paying for the meal, I saw that some of the bottled sauces were for sale. I read the label on one and it clearly contained wheat. The owner was mortified and assured me that these were from older stock and that the sauces I was actually served were gluten-free. Life as a celiac is never risk-free – but since I had no reaction later, I can hope he was right.
    The bottom line is that New Zealand really is a great destination for the gluten-free traveler.

    Vanessa Oakley
    Celiac.com 08/06/2013 - I recently went camping with a good friend of mine and her boyfriend. This was a last minute trip that I knew I was kind of going solo. I have never been camping without a partner or at least a tent mate. So this was the first time I only had to think of me. How cool is that?!
    I start every out of town adventures the same way—I make a trip calendar to plan out my clothes, meals and supplies (If I could only show you guys all the lists I make!).  I find that when I'm camping there is a level of community in the supplies and food department. I forgot forks, no worries buddy I brought extra. Try this, I made it myself or I brought too many hot dogs, eat them. This can be dangerous for a celiac. No one wants to be the guy that has to read everything in sight before they touch it. Or maybe you do, that's cool too—be yourself. I have always subscribed to the theory that if I don't know what it is or what's in it, I simply say "no thank you," even if it kills me to say no, and makes me think about how yummy that thing could have been.
    The day before I went camping I took my list and headed to the grocery store. When I got home and packed I was pretty happy with my haul. I know that I have a lot—more than enough to feed myself for the trip, including snacks. I am self-sufficient…as long as they have some sanitizer and some biodegradable soap for dishes. But I had everything else I needed...I hoped.
    To my delight and surprise my lovely friend and her lovely boyfriend had over-packed in the food department with stuff that happened to be gluten-free. I know that some things she would have packed with me in mind (thank you Lindsay!), but other things were as much a surprise to her as they were to me. Between the both of us we all ate like kings that weekend!
    It is a bit difficult to write about gluten-free trials and tribulations when everything works out. Where there is no worry about cross-contamination or drunken mix-ups. I was the only person to bring out "bread." I found some hotdog buns that looked promising. They got toasted over the fire in a wire basket thing and were so good!
    There are, of course, some things to look out for when you are camping. Be aware of a stove top or grill if you have things like that at the site. You never know what someone else cooked on that, even if it's just meat it may have been seasoned with things that contain gluten. Also, don't mix up your hotdog stick with someone else, unless everyone also has gluten-free dogs. Don't borrow shampoo or face wash. There are so many things that can have gluten in them!
    I definitely learned some stuff about myself on this trip. I learned that I am lucky enough to have surrounded myself with good caring, thoughtful people.  I love camping and I never knew how easy celiac disease would eventually become for me. Did I mention that I am also terrified of spiders!

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com

    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com

    Jefferson Adams
    Celiac.com 04/16/2018 - A team of researchers recently set out to investigate whether alterations in the developing intestinal microbiota and immune markers precede celiac disease onset in infants with family risk for the disease.
    The research team included Marta Olivares, Alan W. Walker, Amalia Capilla, Alfonso Benítez-Páez, Francesc Palau, Julian Parkhill, Gemma Castillejo, and Yolanda Sanz. They are variously affiliated with the Microbial Ecology, Nutrition and Health Research Unit, Institute of Agrochemistry and Food Technology, National Research Council (IATA-CSIC), C/Catedrático Agustín Escardin, Paterna, Valencia, Spain; the Gut Health Group, The Rowett Institute, University of Aberdeen, Aberdeen, UK; the Genetics and Molecular Medicine Unit, Institute of Biomedicine of Valencia, National Research Council (IBV-CSIC), Valencia, Spain; the Wellcome Trust Sanger Institute, Hinxton, Cambridgeshire UK; the Hospital Universitari de Sant Joan de Reus, IISPV, URV, Tarragona, Spain; the Center for regenerative medicine, Boston university school of medicine, Boston, USA; and the Institut de Recerca Sant Joan de Déu and CIBERER, Hospital Sant Joan de Déu, Barcelona, Spain
    The team conducted a nested case-control study out as part of a larger prospective cohort study, which included healthy full-term newborns (> 200) with at least one first relative with biopsy-verified celiac disease. The present study includes 10 cases of celiac disease, along with 10 best-matched controls who did not develop the disease after 5-year follow-up.
    The team profiled fecal microbiota, as assessed by high-throughput 16S rRNA gene amplicon sequencing, along with immune parameters, at 4 and 6 months of age and related to celiac disease onset. The microbiota of infants who remained healthy showed an increase in bacterial diversity over time, especially by increases in microbiota from the Firmicutes families, those who with no increase in bacterial diversity developed celiac disease.
    Infants who subsequently developed celiac disease showed a significant reduction in sIgA levels over time, while those who remained healthy showed increases in TNF-α correlated to Bifidobacterium spp.
    Healthy children in the control group showed a greater relative abundance of Bifidobacterium longum, while children who developed celiac disease showed increased levels of Bifidobacterium breve and Enterococcus spp.
    The data from this study suggest that early changes in gut microbiota in infants with celiac disease risk could influence immune development, and thus increase risk levels for celiac disease. The team is calling for larger studies to confirm their hypothesis.
    Source:
    Microbiome. 2018; 6: 36. Published online 2018 Feb 20. doi: 10.1186/s40168-018-0415-6