Fad Gluten-Free Dieters Fueling Mistaken Claims of Gluten-Sensitivity

Sounds to me like you're gaslighting the people who honestly report their symptoms, only to be dismissed by their doctors LIKE SO MANY OF US WHO EVENTUALLY DID GET DIAGNOSIS FROM BLOOD WORK AND/OR BIOPSY. 

On 9/2/2019 at 9:24 AM, Guest Finally diagnosed celiac said:

Sounds to me like you're gaslighting the people who honestly report their symptoms, only to be dismissed by their doctors LIKE SO MANY OF US WHO EVENTUALLY DID GET DIAGNOSIS FROM BLOOD WORK AND/OR BIOPSY. 

 

 

 

Doesn't sound like that to me.  Data are data, and a lot of people are claiming gluten sensitivity that really have other problems.  That's not surprising to anyone who's been out with a big group and found like 50% of them claimed gluten issues - there's just no way it's that many people.  Also, honestly, it does folks very little good if they think they have celiac disease but never get diagnosed and really have the FODMAP carb disorder or some other problem they aren't treating correctly.

I was diagnosed with celiac disease when I was about two years old (1939). Mother described large abdomen, skinny legs, failure to thrive. Lived on bananas and buttermilk for two years. I've  had exzema for as long as I remember,  later diagnosed mctd or uctd, lupus, uveitis, Sjogren's, pah, Parkinson's/not Parkinson's, paravertebral myopia, cardiac issues, and more. A rheumatologist did a test (no biopsy) and told me I do not have Celiac disease.  Recent bouts with GI problems, weakness and fatigue convinced me to try a gluten free diet. If I feel better after a month I will have found an answer and a treatment.

1 hour ago, Guest DeLene said:

I was diagnosed with celiac disease when I was about two years old (1939). Mother described large abdomen, skinny legs, failure to thrive. Lived on bananas and buttermilk for two years. I've  had exzema for as long as I remember,  later diagnosed mctd or uctd, lupus, uveitis, Sjogren's, pah, Parkinson's/not Parkinson's, paravertebral myopia, cardiac issues, and more. A rheumatologist did a test (no biopsy) and told me I do not have Celiac disease.  Recent bouts with GI problems, weakness and fatigue convinced me to try a gluten free diet. If I feel better after a month I will have found an answer and a treatment.

The celiac antibody testing requires 12 weeks of eating gluten before the testing.  It takes only 3 to 4 weeks of eating gluten for the endoscopy testing.  Celiac disease does not go away, so if you had it as a child you have it now.  Congrats on going gluten-free again, I hope you feel better soon.

After six months of various testing and blood work, the doctor determine that I did not have Celia disease but could be wheat sensitive.  I have been on a gluten free diet for three months and all my symptoms have disappear.  You won't be able to convince me that it was something else. And when I eat wheat accidentally, my body tells me so.   

36 minutes ago, kanucme2019 said:

After six months of various testing and blood work, the doctor determine that I did not have Celia disease but could be wheat sensitive.  I have been on a gluten free diet for three months and all my symptoms have disappear.  You won't be able to convince me that it was something else. And when I eat wheat accidentally, my body tells me so.   

So... the doctors were right? Can you eat barley? I found the easiest way to test is if you can eat Kellogg's Rice Krispies or drink a malt, neither of which are tolerable for Celiac but are perfectly fine for those with wheat allergies.

On 9/24/2019 at 3:56 PM, Richard D said:

So... the doctors were right? Can you eat barley? I found the easiest way to test is if you can eat Kellogg's Rice Krispies or drink a malt, neither of which are tolerable for Celiac but are perfectly fine for those with wheat allergies.

Haven't tried barley or rye yet.  Will give it a try once my insides heal some more

If you have celiac disease you should NOT eat barley or rye.

This is outrageous. This is pure speculation, and is obviously wrong. Intelligent people do not say that they are gluten sensitive if they are not. They may say that they think that they are gluten sensitive, but I tell people that I am. I often get sick because of hidden gluten that I find when I investigate after getting sick. I have been gluten free for over 10 years. My sensitivity is a fact, unlike someone who is merely tested, which people think is proof. Tests indicate results. Extensive empirical evidence over a decade is proof.