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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Treen replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
I’m thinking if the $159 package comes back negative, I’ll wait a month — continue eating gluten 😖— and then purchase the $340 complete and comprehensive package. Thanks again to everyone who has responded. I feel more hopeful than I have in a long time. -
- RMJ replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
I think keeping the information to yourself is a good idea. In fact, many doctors won’t give an official diagnosis without a biopsy so if someone asks if you have celiac disease and all you have are blood test results a “no” answer wouldn’t be totally wrong🙂. Until I had a biopsy my medical chart just said positive celiac antibodies, not celiac disease. ... -
- Mettedkny replied to Mettedkny's topic in Gluten-Free Foods, Products, Shopping & Medications29
Progesterone pills - are they gluten free??
My vitamin D is a bit low, but now too low, and I have just started taking 5000 IU again. In the past I have done 50.000 IUs at times to get the levels up higher, and might try that again, after I speak to my doc this week.- high gluten
- hormone-related
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- Treen replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
Wow. Okay. I’m definitely going with private testing. And since my sister was diagnosed just last month, I’ll have her as a great resource. I’m otherwise in excellent health for a 60 year old woman. No diabetes, normal blood pressure and cholesterol levels. I work out regularly, although I’m too thin because I’m afraid of food. I appreciate both of your h... -
- Scott Adams replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
Celiac disease was considered a pre-existing condition that affected costs before the ACA, and I was paying life insurance premiums at age 45 that a 70 year old would have to pay because of it (this was back when it was my only diagnosis--not that case now). I don't disagree with @plumbago's approach here either, but just keep in mind, it will be on...
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