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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease2
Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
- knitty kitty replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse... -
- trents replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers. -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
We have. She is so limited as to what she can eat. She has a nutritionist, but they are even at a loss. Right now, her pain is so significant that she can only eat 5-10 bites a meal. We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot. She also is positive for 3 tickborne illnesses. Thanks for your... -
- RMJ replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
A much better suggestion than that of the new doctor!
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