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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


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    • trents
      @rjane, yes, it often feels overwhelming in the beginning. But let me encourage you by saying that it will get easier. You and your husband will develop, over time, a sixth sense of how gluten is typically hidden in the food supply and where it is found and you will develop an inventory of foods that you can trust and to stock your pantry with. The largest risk involves eating out at restaurants. Even if you order things that are naturally gluten free, you have no control over cross contamination happening back in the kitchen in how things are prepared and handled. Another trap is eating at other people's homes who are trying to accommodate your husband's need to eat gluten free but who lack knowledge about how gluten may be hidden in the food supply. I mean, who would expect to find wheat in soy sauce or Campbell's tomato soup? I know you aren't going to want to hear this, but you may want to consider making your kitchen entirely gluten free to eliminate the possibility of accidents and cross contamination. It would also simplify your meal preparation. Yes, I'm talking about both of you eating gluten free in the home. Many couples find this is the easiest and most practical approach to being consistent and keeping their celiac loved one safe. You might find this helpful:  
    • rjane
      I am not sure if they have tested him for SIBO  should I ask the hospital if they have tested him for that, there is so much to learn in the beginning I am not sure what or who to ask I am thinking the good folks on this site will help me, thanking you for your help  
    • trents
    • trents
      Has your hubbie been checked for SIBO (Small Intestinal Bacterial Overgrowth)? This is not uncommon in the celiac population. https://my.clevelandclinic.org/health/diseases/21820-small-intestinal-bacterial-overgrowth-sibo
    • terrymouse
      Update: I got a call on Monday from the GI doctor's office, they had a cancellation and an appointment opened up for Tuesday. Not much time to prepare, but I went ahead and did it anyway. I haven't been gluten free at any point, but I haven't really loaded up as much as was recommended, either. It takes another 6-8 weeks to get the results, so I'd rather get it done now. I just hope it will be enough and I won't have to try again and delay it even longer. Thanks for the recommendations and thoughtful responses, much appreciated. I will be following up with my GP soon to check for nutritional deficiencies while I'm waiting on the test results.  
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