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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Grahamsnaturalworld replied to Grahamsnaturalworld's topic in Related Issues & Disorders3Refractory celiac disease
Ok, thanks for the advice, the only advice I've had that's made sense after 21years since my slight symptoms all my life turned into nasty symptoms 21 yrs ago and around 50 gp's and specialists all chasing the symptoms and not looking for the cause, after 9 years of misery I discovered my symptoms matched celiac disease and a blood test proved anti bodies... -
- trents replied to QueenBorg's topic in Gluten-Free Foods, Products, Shopping & Medications3
New to gluten-free
Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct? -
- Jenny (AZ via TX) replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications2gluten-free stool softener needed for after surgery
Thanks for the reply. I’ll call Colace to be sure. I was just wondering if anyone had already gone through this:) I have not seen any gluten-free labeling on the package but I know that doesn’t mean it’s not gluten-free. The labeling is more of a comfort thing for me. Do you think I need to worry about cross contamination if they say no gluten ingredients? I’m... -
- QueenBorg replied to QueenBorg's topic in Gluten-Free Foods, Products, Shopping & Medications3New to gluten-free
Thanks for the information. I will definitely be doing a lot more investigating in the future! -
- Scott Adams replied to Rebeccaj's topic in Coping with Celiac Disease1
symptomatic ?
Living or working in environments where gluten exposure is a constant risk can be incredibly challenging, especially when neurological symptoms are involved. For those with celiac disease or severe gluten-related disorders, airborne gluten (like flour dust in kitchens or shared workspaces) can trigger indirect exposure through inhalation or cross-contact...
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By Grahamsnaturalworld · Posted
Ok, thanks for the advice, the only advice I've had that's made sense after 21years since my slight symptoms all my life turned into nasty symptoms 21 yrs ago and around 50 gp's and specialists all chasing the symptoms and not looking for the cause, after 9 years of misery I discovered my symptoms matched celiac disease and a blood test proved anti bodies to gliadin but it was too late it has changed into r.c.d. thanks again. -
Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
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By Jenny (AZ via TX) · Posted
Thanks for the reply. I’ll call Colace to be sure. I was just wondering if anyone had already gone through this:) I have not seen any gluten-free labeling on the package but I know that doesn’t mean it’s not gluten-free. The labeling is more of a comfort thing for me. Do you think I need to worry about cross contamination if they say no gluten ingredients? I’m so strict with being gluten-free but realize many manufacturers may have cya statements and the products are safe Will look into Phillips as well. The surgeon recommended Colace and to add MiraLAX if needed so I actually need to get both as he says one of the worst things is to get constipated post surgery. -
Thanks for the information. I will definitely be doing a lot more investigating in the future!
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By Scott Adams · Posted
Living or working in environments where gluten exposure is a constant risk can be incredibly challenging, especially when neurological symptoms are involved. For those with celiac disease or severe gluten-related disorders, airborne gluten (like flour dust in kitchens or shared workspaces) can trigger indirect exposure through inhalation or cross-contact, though true celiac reactions typically require ingestion. However, non-celiac gluten sensitivity (NCGS) or wheat allergy can sometimes cause airborne-triggered respiratory or neurological symptoms (e.g., headaches, brain fog, or even seizure-like episodes in rare cases). Your focal seizure could stem from chronic inflammation, vagus nerve irritation, or neuroglial activation if accidental ingestion occurred—but it’s also worth exploring PTSD-related responses if anxiety around exposure is severe. Many with celiac report delayed neurological symptoms (hours to days later), making it hard to pinpoint triggers. Since your family isn’t gluten-free, shared kitchens may pose risks (e.g., crumbs, toaster use, or cookware residue). Suggestions: Workplace Safety: If airborne flour was a factor, request accommodations (e.g., ventilation, PPE) under disability protections—though proving causality is tough. Medical Follow-Up: Push for neurological testing (EEG, MRI) to rule out other causes, and consider a gluten-free household trial to see if symptoms improve. It’s unfair you were let go without clearer answers. Keep documenting symptoms and exposures.
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