Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question Re: Accidental Glutening

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Okay, here's my story:

This morning I did everything normal. Except, before I left the house, I thought I would prepare my dad some dinner (I was driving back up to school this morning, and thought it would be nice for him to open the fridge and have dinner there later this night).

I found some vegetarian pepperoni in the freezer, and decided to incorporate that into his meal - mostly because it is probably the last thing with gluten in our house.

So I was very careful, and took the baggies outta there and put them in the microwave. I did not touch the pepperoni, but did touch the bags (and obviously, there was stufff probably on the outside of them when I sealed them up months ago, it was definitely on my hands then).

Anyway, then I made breakfast, and my breakfast included some finger foods.

Could I have gotten glutened that way? (Because it was on my hands?) I hadn't washed my hands.

I felt brain foggy, got really tired and dizzy almost immediately after breakfast. My stomach became bloated, and I got really sad.

I wasn't in pain though, like I am most times I am glutened. Are there different levels? Could that have been a reaction that pepperoni?

Also, since then, I've pooed three times, which is definitely abnormal because for the last two weeks or so, I FINALLY became a once-a-dayer! (As opposed to many times a day).

I've only been gluten free for about 7 weeks, but anyway... Does this sound familiar to anyone?

Thanks!

I love this forum - you're all so helpful.

PS: where can I find gluten free candy corn (in Canada)? It's my favourite Autumn candy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merika Contributor
Merika
Posted

Yes, it could well be from breakfast preparations. This is why I get sooo paranoid about cross-contamination eating out/at other houses.

Occasionally, I'll have a day at home where I'm in the kitchen a lot - cleaning kitchen, cooking, feeding cat, etc - and i feel nearly OCD about washing my hands, lol. Like, this is the 3rd time in 15 minutes that I am washing my hands!!! :P But if I'm stirring soup, stop to feed the cat (wheat in cat food), stir soup again, load dishwasher and wipe down counter (non-gluten-free kitchen), stir soup again....you can see where there might be cross-contam issues.

Hope you are feeling better soon!

Merika

bluelotus Contributor
bluelotus
Posted

I am so OCD about things too, esp eating out and at other people's houses (or work)....so thanks for bringing that up, glad its not just me. I get worried about how well other's wash dishes (including my husband - I've gotten sick that way), how clean the inside of the microwave is at work (any little bits that will float/fall into my soup?), and I wash my hands a million times a day (my skin is so dry now!!) - making sure to use my own soap that I bring from home. Maybe I am going overboard, but if I wanted to be glutened, I'd eat chocolate cake, not from crumbs or trace amounts on hands/counters/dishes/etc.

nettiebeads Apprentice
nettiebeads
Posted
I found some vegetarian pepperoni in the freezer, and decided to incorporate that into his meal - mostly because it is probably the last thing with gluten in our house.

So I was very careful, and took the baggies outta there and put them in the microwave. I did not touch the pepperoni, but did touch the bags (and obviously, there was stufff probably on the outside of them when I sealed them up months ago, it was definitely on my hands then).

Anyway, then I made breakfast, and my breakfast included some finger foods.

Could I have gotten glutened that way? (Because it was on my hands?) I hadn't washed my hands.

I love this forum - you're all so helpful.

PS: where can I find gluten free candy corn (in Canada)? It's my favourite Autumn candy!

<{POST_SNAPBACK}>

Yep, classic cross-contamination. My kitchen is mostly gluten-free free, but since my hubby is normal (in dietary issues anyway :P ) I worry about cross-contamination alot. Constant handwashing, and drying them with papertowels in the kitchen, since he wipes down the counters with the dishtowel after he gets done preparing his non-gluten-free foods. And yes, there are different levels of reaction to being glutened. My husband accidentally glutened me last Friday, so I was tired Sat and a little irritable and soft stools, but no real D and not the overpowering fatigue like I've had in the past. And I'm glad this forum is here, too!

Hope you're better soon.

SharonF Contributor
SharonF
Posted

obsessive hand washer here, too. Fix kids' breakfast, wash hands. Pack lunch, wash hands. Clean out crumb tray (you know, I hated the stupid crumb tray in the toaster BEFORE I was diagnosed), wash hands. I go through a lot of soap.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.