Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Are The Great Doctors?


gatita

Recommended Posts

gatita Enthusiast

So many times I see posts here advising "get a new doctor" when someone's MD or GI is clearly behind the times. I've said it myself!

 

But now I'm wondering where all these new and better doctors are hiding? In a small town like mine, we don't have many choices.

 

So where are the forward-thinking doctors as far as NCGI and celiac? Are we talking like 3 or 4 in the whole country or something? It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa.

 

(Hey, and are any in Northern California?)

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TNfarmgirl Newbie

I have the same problem.  I have Gastroenterologist that diagnosed me with Celiac and GERD in Oct.  Basically all I received was a phone call with the biopsy results and told to go gluten-free. I was given 'handouts' to explain celiac disease and that's as far as it went.   They now want another upper scope done to 'see how I'm doing'.  After 4 months is there going to be any noticeable difference?  And then what?  Another handout?  

 

Is there such a thing as a doctor that treats a patient as a whole person?  I go to a Neurologist, Orthopedist, Hematologist and Gynecologist and somewhere in there my GP will put a word in.  However, none of my "body part" physicians seem to be able to link all of my symptoms and some just smirk when I mention that I am a Celiac.  Is an Osteopath a viable option?  I would like someone familiar with celiac disease and the other auto-immune difficulties that are associated with the disease.  I am at the end of my rope and wallet as well.  Any ideas?]" It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa." is right!

pricklypear1971 Community Regular

Some people have luck with integrative medical groups.

I see a naturapath. I started with one, lasted for a year and then it started getting nutty.

So I looked for a new "whatever". Ended up with another nd that was an RN and teaches at a major university medical/nursing school. Much better to have that background.

I've tried DO's - saw nothing that different from an md.

So, nd's generally treat the whole person but can be nutty as heck. Good news is they generally state their concentration up front and hint at their style - sometimes on a website. You never get that out of MD's. And nd's don't hold an exclusive license on nutty - just read the "what doctors have said (or something like that)" thread on here.

TNfarmgirl Newbie

Guess I need to link up with some Celiacs in my area to ask this question.  I have run into some ND's and either the fees are so expensive or they are slightly off the deep end of the treatment bend.  Just wishing for someone that recognizes celiac disease and its complications.   

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,527
    • Most Online (within 30 mins)
      7,748

    Katinka
    Newest Member
    Katinka
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.