Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Add To My List Of Problems...


bellybattle

Recommended Posts

bellybattle Apprentice

First off, I just want to say that everyone here has been wonderful and it is great to have a place to get answers from people who have first-hand knowledge on this subject.

I am still in the pre-diagnosis stage. As some of you may know, my blood tests showed up as "weak positive", so I am scheduled to have a biopsy done in a couple of weeks.

I have been feeling pretty bad the past few weeks, and on Saturday, I noticed a decent sized white spot on the back of my throat (I believe it's on my tonsil). My throat doesn't really hurt, it's just a little irritated where the spot is. I've tried gargling and throat sprays, and it just won't go away. I don't think it's strep, because I've had that almost 8 times and I know what that is like. Also, the past week I've been experiencing a tight feeling in my chest with a little bit of a dizzy feeling at times. Sometimes my heart will feel a little fluttery too. I had an EKG done a few months ago and that turned out ok. Also, I took my temp and I don't have a fever or anything. Has anyone out there ever experienced this? Maybe I'm just getting too stressed out (sometimes I tend to "overthink" myself to death). :lol:

Any input would be greatly appreciated! Thanks a lot!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmandaD Community Regular

BB - A white spot on your tonsil may be strep - or it may just be some past inflammation of your sore throat. If I were you I'd just get on the horn with the doctor and explain some of your symptoms - don't self-diagnose...let them help you and reassure you that you're fine.

As for the tightness in your chest and fluttery feeling...that sounds a bit like anxiety or stress. If you're picking up that you're "overthinking" things - you probably are...I do the exact same thing. Take a deep breath and have a good talk with your general practitioner about some of the "overthinking" or stress you might be feeling...when you're in the midst of going through the Celiac diagnosis it can stress you out, quite simply...

First off, I just want to say that everyone here has been wonderful and it is great to have a place to get answers from people who have first-hand knowledge on this subject.

I am still in the pre-diagnosis stage. As some of you may know, my blood tests showed up as "weak positive", so I am scheduled to have a biopsy done in a couple of weeks.

I have been feeling pretty bad the past few weeks, and on Saturday, I noticed a decent sized white spot on the back of my throat (I believe it's on my tonsil). My throat doesn't really hurt, it's just a little irritated where the spot is. I've tried gargling and throat sprays, and it just won't go away. I don't think it's strep, because I've had that almost 8 times and I know what that is like. Also, the past week I've been experiencing a tight feeling in my chest with a little bit of a dizzy feeling at times. Sometimes my heart will feel a little fluttery too. I had an EKG done a few months ago and that turned out ok. Also, I took my temp and I don't have a fever or anything. Has anyone out there ever experienced this? Maybe I'm just getting too stressed out (sometimes I tend to "overthink" myself to death).  :lol:

Any input would be greatly appreciated! Thanks a lot!

<{POST_SNAPBACK}>

bellybattle Apprentice

Hmmm... I was thinking of calling my general practitioner, but I've had so many appointments over the past couple of months - I don't want them to think I'm a hypochondriac (sp?). I thought I just may be getting some sort of cold, but who knows anymore! Maybe a quick call wouldn't hurt. Better to be safe than sorry!

tarnalberry Community Regular
I have been feeling pretty bad the past few weeks, and on Saturday, I noticed a decent sized white spot on the back of my throat (I believe it's on my tonsil). My throat doesn't really hurt, it's just a little irritated where the spot is. I've tried gargling and throat sprays, and it just won't go away. I don't think it's strep, because I've had that almost 8 times and I know what that is like. Also, the past week I've been experiencing a tight feeling in my chest with a little bit of a dizzy feeling at times.

<{POST_SNAPBACK}>

Sounds like the bug that was going around where I was and got my asthma going. Seriously, "tightness in my chest and a bit of a dizzy feeling" is how I usually feel if my asthma is acting up. Well, add spontaneous coughing to the list, at least.

If you feel it's something serious, go it, but it also sounds like just a bit of a cold/congestion thing going on. You know your body best, so do what you think is right.

But that was yesterday, so I hope you're starting to feel better. :-)

ravenwoodglass Mentor
, I noticed a decent sized white spot on the back of my throat (I believe it's on my tonsil). My throat doesn't really hurt, it's just a little irritated where the spot is.

Any input would be greatly appreciated! Thanks a lot!

<{POST_SNAPBACK}>

What you are probally seeing is something called an apholous (spelling may not be right) if it looks like a kind of fuzzy patch. My daughtrr used to get these before diagnosis. Have your doc look at it to be sure but if it is that it is harmless and will go away when you are gluten-free..

Jenn2005 Contributor

It may also be that your tonsils have something like craters in them that catch food particles and the form hard white spots that will eventually fall out. I saw a Ear Nose & Throat specialist for this problem. Mine only happens on the left tonsil. It is harmless he told me to gargle daily with mouth wash and to NOT try and scrape or remove the spots. Its always better to call the doctor and make sure of what it is.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.