Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here's My "i Glutened Myself Through Sheer Stupidity" Story...


Monklady123

Recommended Posts

Monklady123 Collaborator

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Sounds more like someone else glutening you, than you glutening yourself.  This is the kind of thing that has almost entirely prevented me from going out to eat.  People do not seem to realise what gluten actually is.  I went to a restaurant that knew I was coeliac and was offered cous-cous as an alternative starter until I pointed out that cous-cous was made from wheat.  Fortunately we know the chef and he came out of the kitchen to tell me what I could have. 

 

Good luck with next month's meal! (At least you know you can have the soup ;-)  )

DutchGirl Apprentice

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Oh man!! That totally stinks, I bet she felt bad!

 

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

pricklypear1971 Community Regular

Oh man!! That totally stinks, I bet she felt bad!

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

That IS a difficult thing, when people mean well and to be safe you just have to say no. Sometimes it would be safe, other times no. But there's no way for YOU to know.

Smylinacha Apprentice

I hear you on that..my mother in law cooks for us every Monday. She is really truing to stick to gluten free. She made stew the other night, said no gluten in it but I was sick hours after eating it. I got sick on her food last week too.

gatita Enthusiast

Oh man, what a sad story! And I've done the same thing too many times... Don't beat up on yourself for having a "normal" moment, you're going through enough misery!

Pegleg84 Collaborator

In order to eat anyone else's cooking, I feel like I have to interrogate them at gunpoint to get a full list of ingredients (now with soy and dairy on my no list, this is extra important).

I've had more than a few stupid glutening moments. Most recent was this xmas. My stepbrother cooked a turducken (overkill) for dinner and I asked him, is it ok for us celiacs (ie: me and my mom). sure, he says. (I should have pulled out the big guns at that moment)

instead, while happily chewing away on my chicken/duck and tasting the familiar but alarming texture of breadiness, I ask, Um, is there stuffing in this? Uh, yeah, of course. 

Thanks a lot bro.

Thankfully my mom was smart and took the very outside of the turkey. I don't think she's quite as sensitive as me though.

The glutening didn't really kick in for a few days, but man was I sick! No fun at all.

So really, 40% mad at him, 60% mad at myself for being stupid enough to believe him. Never again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.