Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eye Drops And Gut Reaction


flowerqueen

Recommended Posts

flowerqueen Community Regular

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

flowerqueen Community Regular

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

Yes it did.  If you think about it, it makes sense.  When you put eye drops in, they drain down through the nose, and things which drain through the nose end up in the stomach.  That's why some people of here are worried about inhaling flour, wheat etc.

Gemini Experienced

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.

 

 

Here are some links that will be useful to you:  Open Original Shared LinkOpen Original Shared Link

 

Open Original Shared Link

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

flowerqueen Community Regular

Many thanks for replying.  I had already tried the sites you had spotted and drew a blank with the NHS one, mainly because it appears that the information is sourced from a third party and not NHS themselves. I had also seen the information you had spotted on wikipedia, like you, I am always sceptical about the information on there as you don't necessarily know who has provided the information.  Having said that, because it mentioned wheat sensitivity, it made me question whether I was right in my assumption. 

 

I will look into everything else you said, as it pays to be open minded in these things. Thanks :)

Here are some links that will be useful to you:  Open Original Shared LinkOpen Original Shared Link

 

Open Original Shared Link

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    2. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,232
    • Most Online (within 30 mins)
      7,748

    Linda1964
    Newest Member
    Linda1964
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.