Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results Of My 8 Year Old


pryforma

Recommended Posts

pryforma Newbie

I finally got a copy of the results of my 8 year old, so here it goes...trying to write exactly how it shows

 

IgE - 116                                               reference range <91 

 

Gliadin, IgA, tTG Ab IgA 

IgA       106                                          reference range 41-368

 

 

Iadin (deamidated ) Ab Pnl , IgA/IgG

DGP Antibodt IgA      25.67                 reference range <20.00

 

 

DGP IgA Reference Range

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

 

GP Antibody , IgG        44.36          reference range <20.00

 

DGP IgG Reference Range

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

TISSUE TRANGSGLUTAMINASE Ab,  IgA 

tTG Antibody , IgA        98.67          reference range <20.00

 

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive 

 

IgE 116

DGP Antobody IgA 25.67

DGP Antobody IgA result    - weak positive

 

DGP Antobody , IgG 44.36

DGP Antobody , IgG - Positive

 

tTg antobody IgA 98.67

tTg antobody IgA result - Positive

 
She was off gluten for 10 days when she had the blood test done 
 
Any opinion?
 
UPDATE ON THE ENDOSCOPY-
 
She had her endoscopy today, before it was done I asked her gi doctor how many "pieces" he was gong to take out for the biopsy, I was worried that it wouldn't be enough so when he said 15 to 20  I was pleased because I knew the chances of missing would be very little...
 
I asked  if  maybe he would be able to tell me anything today, he said that sometimes he can see something , sometimes nothing at all but of course we would talk about after the procedure and  even if he didn't see anything the biopsy would give the results of course.
 
Mind you she was GLUTEN FREE FOR 3 WEEKS then BACK ON GLUTEN FOR 10  DAYS for the biopsy today. When she had her blood test done she was gluten free for 10 days .
 
After the biopsy he came back and said  that pretty certain is  celiac from what he saw which was  lots and lots of redness everywhere, he showed me one picture of a small red lump ( can't remember the name) that was ready to burst so with all the inflammation/redness this is it he said to go gluten free from now on....BUT whatever the results were going to be, she was going to be back on gluten free diet today,  I was not going to wait for the biopsy , regardless of the results I was going to get her back on her diet, she feels so much better no way I was going to put her through more pain just because of the results , she even wants to be back on gluten free and she is the pickiest eater so no doubt she feels really crappy when she eats gluten.
 
A little relieved that we found for sure what is going on with her.
 
Thank you for the replies .I will update with her biopsy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

From what i've seen, I'd say, yeah, it may indeed be celiac, especially since that was taken after a short period of being gluten free and still be positive. Are you going to do the biopsy?

Lisa Mentor

Has anyone asked about you or your spouse about your medical history?  Do either of you have digestive or other issues.? It can be piece of the puzzle, as well.

pryforma Newbie

Yes she is having a biopsy soon.

No my husband and i don't have any problems with gluten .

She  has stomachache , gas, bloated, constipation, very irritable , got worse since last year.

 

 

Anybody else wants to help me out? Would you consider based on this test a diagnosis for celiac?

 

Thanks!

GottaSki Mentor

Yes.  She has Celiac Disease - in my opinion.

 

With those blood results on gluten light - she needs to be seen by the best celiac gi pediatric specialist you have locally.  

 

Don't remove gluten until you have the endoscopy - not all gi's are equal  when it comes to celiac disease.  No need to overdo the consumption.  One half of a grilled cheese should be fine until the biopsy.  Oh...there is a great article with regard to proper endo procedure...

 

Open Original Shared Link

 

Mushroom gets credit for this one.

 

Let us know how it goes...and feel free to ask more ?s

nvsmom Community Regular

I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

pryforma Newbie

I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

Thank you for your reply ,eventually we will all get tested,it was hard to put her back on gluten she got all of her symptoms back , stomachache , paleness , low energy, thank goodness this will be over soon and we will be back on gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pryforma Newbie

an anybody tell me if he will be able to give me any information after the endoscopy like if he saw anything ,.. can he tell me anything after? I know I have to wait for the biopsy but I was just wondering if he will be able to give me any info ..

 

Thank you

shadowicewolf Proficient

Generally speaking, unless in the cases where it has gone undiagnosed for a long period of time, there probably won't be visible damage. They do, generally, say if they see something though from my experience.

GottaSki Mentor

My doctor tells me what he sees -- more like tells my hubby as I am out of it from the sleepy drugs they use.

 

Then there is a written procedure report from doctor -- this is often ready before the written pathology report which takes about a week.

Cara in Boston Enthusiast

She very clearly has celiac disease.  Even if the biopsy is negative, she should still go gluten free.  Think of the diet as the "final" test.  Trust your instincts.

 

You may think you and your husband don't have an issue with gluten but you could be surprised.  I tested positive after my son was diagnosed and we started the diet together.  I thought I was just getting old (aches and pains, headaches, brain fog, insomnia, etc.) and all that went away when I went gluten free.

 

If you have other children, they should be tested - regardless of symptoms.  And re-test every 2 years.

 

cara

pryforma Newbie

an update on my first post

pryforma Newbie

Hi I updated about the endoscopy of my daughter on my first post , but I have a question... is it possible to come back negative the biopsy after what doctor saw on the endoscopy? He said to go off gluten but I didn't like the fact the he said before that of the biopsy is negative she does not have celiac :/ regardless we will be gluten free, just wondering what do you all think ....

 

thank you@!

GottaSki Mentor

A biopsy being negative does NOT rule out Celiac Disease.  Have you received the results?

 

I do think that once the endoscopy is complete it is time to remove gluten.

 

Hang in there Mom!

pryforma Newbie

her biopsy came back and it's positive, thanks everybody for the help!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.