Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results Of My 8 Year Old

pryforma

Recommended Posts

pryforma Newbie
pryforma
Posted

I finally got a copy of the results of my 8 year old, so here it goes...trying to write exactly how it shows

 

IgE - 116                                               reference range <91 

 

Gliadin, IgA, tTG Ab IgA 

IgA       106                                          reference range 41-368

 

 

Iadin (deamidated ) Ab Pnl , IgA/IgG

DGP Antibodt IgA      25.67                 reference range <20.00

 

 

DGP IgA Reference Range

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

 

GP Antibody , IgG        44.36          reference range <20.00

 

DGP IgG Reference Range

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

TISSUE TRANGSGLUTAMINASE Ab,  IgA 

tTG Antibody , IgA        98.67          reference range <20.00

 

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive 

 

IgE 116

DGP Antobody IgA 25.67

DGP Antobody IgA result    - weak positive

 

DGP Antobody , IgG 44.36

DGP Antobody , IgG - Positive

 

tTg antobody IgA 98.67

tTg antobody IgA result - Positive

 
She was off gluten for 10 days when she had the blood test done 
 
Any opinion?
 
UPDATE ON THE ENDOSCOPY-
 
She had her endoscopy today, before it was done I asked her gi doctor how many "pieces" he was gong to take out for the biopsy, I was worried that it wouldn't be enough so when he said 15 to 20  I was pleased because I knew the chances of missing would be very little...
 
I asked  if  maybe he would be able to tell me anything today, he said that sometimes he can see something , sometimes nothing at all but of course we would talk about after the procedure and  even if he didn't see anything the biopsy would give the results of course.
 
Mind you she was GLUTEN FREE FOR 3 WEEKS then BACK ON GLUTEN FOR 10  DAYS for the biopsy today. When she had her blood test done she was gluten free for 10 days .
 
After the biopsy he came back and said  that pretty certain is  celiac from what he saw which was  lots and lots of redness everywhere, he showed me one picture of a small red lump ( can't remember the name) that was ready to burst so with all the inflammation/redness this is it he said to go gluten free from now on....BUT whatever the results were going to be, she was going to be back on gluten free diet today,  I was not going to wait for the biopsy , regardless of the results I was going to get her back on her diet, she feels so much better no way I was going to put her through more pain just because of the results , she even wants to be back on gluten free and she is the pickiest eater so no doubt she feels really crappy when she eats gluten.
 
A little relieved that we found for sure what is going on with her.
 
Thank you for the replies .I will update with her biopsy.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

From what i've seen, I'd say, yeah, it may indeed be celiac, especially since that was taken after a short period of being gluten free and still be positive. Are you going to do the biopsy?

Lisa Mentor
Lisa
Posted

Has anyone asked about you or your spouse about your medical history?  Do either of you have digestive or other issues.? It can be piece of the puzzle, as well.

pryforma Newbie
pryforma
Posted
  • Author

Yes she is having a biopsy soon.

No my husband and i don't have any problems with gluten .

She  has stomachache , gas, bloated, constipation, very irritable , got worse since last year.

 

 

Anybody else wants to help me out? Would you consider based on this test a diagnosis for celiac?

 

Thanks!

GottaSki Mentor
GottaSki
Posted

Yes.  She has Celiac Disease - in my opinion.

 

With those blood results on gluten light - she needs to be seen by the best celiac gi pediatric specialist you have locally.  

 

Don't remove gluten until you have the endoscopy - not all gi's are equal  when it comes to celiac disease.  No need to overdo the consumption.  One half of a grilled cheese should be fine until the biopsy.  Oh...there is a great article with regard to proper endo procedure...

 

Open Original Shared Link

 

Mushroom gets credit for this one.

 

Let us know how it goes...and feel free to ask more ?s

nvsmom Community Regular
nvsmom
Posted

I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

pryforma Newbie
pryforma
Posted
  • Author

I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

Thank you for your reply ,eventually we will all get tested,it was hard to put her back on gluten she got all of her symptoms back , stomachache , paleness , low energy, thank goodness this will be over soon and we will be back on gluten free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pryforma Newbie
pryforma
Posted
  • Author

an anybody tell me if he will be able to give me any information after the endoscopy like if he saw anything ,.. can he tell me anything after? I know I have to wait for the biopsy but I was just wondering if he will be able to give me any info ..

 

Thank you

shadowicewolf Proficient
shadowicewolf
Posted

Generally speaking, unless in the cases where it has gone undiagnosed for a long period of time, there probably won't be visible damage. They do, generally, say if they see something though from my experience.

GottaSki Mentor
GottaSki
Posted

My doctor tells me what he sees -- more like tells my hubby as I am out of it from the sleepy drugs they use.

 

Then there is a written procedure report from doctor -- this is often ready before the written pathology report which takes about a week.

Cara in Boston Enthusiast
Cara in Boston
Posted

She very clearly has celiac disease.  Even if the biopsy is negative, she should still go gluten free.  Think of the diet as the "final" test.  Trust your instincts.

 

You may think you and your husband don't have an issue with gluten but you could be surprised.  I tested positive after my son was diagnosed and we started the diet together.  I thought I was just getting old (aches and pains, headaches, brain fog, insomnia, etc.) and all that went away when I went gluten free.

 

If you have other children, they should be tested - regardless of symptoms.  And re-test every 2 years.

 

cara

pryforma Newbie
pryforma
Posted
  • Author

an update on my first post

pryforma Newbie
pryforma
Posted
  • Author

Hi I updated about the endoscopy of my daughter on my first post , but I have a question... is it possible to come back negative the biopsy after what doctor saw on the endoscopy? He said to go off gluten but I didn't like the fact the he said before that of the biopsy is negative she does not have celiac :/ regardless we will be gluten free, just wondering what do you all think ....

 

thank you@!

GottaSki Mentor
GottaSki
Posted

A biopsy being negative does NOT rule out Celiac Disease.  Have you received the results?

 

I do think that once the endoscopy is complete it is time to remove gluten.

 

Hang in there Mom!

pryforma Newbie
pryforma
Posted
  • Author

her biopsy came back and it's positive, thanks everybody for the help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.