Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

49 Yo Bodybuilder Needing Advice.


charlesalyea

Recommended Posts

charlesalyea Newbie

Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I have luck with adding blanched vegetables to nut or coconut water based smoothies. Zero to very little fruit. You may try adding bean powder or cooked beans to smoothies? Or, make bean cakes? Lots of recipes out there.

What about squash/pumpkin? I could see both in smoothies or a "pattie". I use leftover squash to make a pan fried pattie to lay fried eggs on...I eat that before a workout.

Assaf Newbie

There are gluten free energy bars, the ones I've had so far are Perfectly Simple (by ZonePerfect), Pure organic, ThinkThin, ProBar and ProMax.

I haven't conducted an extensive study into every flavor, you should verify each one individually by label and by eating only one kind a time to see your actual reaction.

 

Have you really tried all the carbs? There are quite a few of them... Quinoa, amaranth, teff, oats (has to be certified gluten-free though, not just any oats), sorghum, tapioca, corn, beans, legumes, and plain old rice.

You will probably have to prepare it all yourself since restaurants in general can’t be trusted. I’ve gotten quite decent at making my own bread out of these things, most of which I never heard of before becoming gluten intolerant.

charlesalyea Newbie

Thank you all for replying I will try some of the things you have described.any help I can get means a lot .

  • 3 weeks later...
charlesalyea Newbie

I am a silent celiac .I don't know when I'm being glutened,however my joints seem to ache when I do get glutened.I have reactions to any grains especially quinoa.I am not sure if I should still eat it knowing its gluten free and a great source of complex carbs or is it hurting me to eat.I am still in recovery mode.Will it retard my healing to eat it ?

mushroom Proficient

Not all reactions are to gluten.  Some of us have additional intolerances.  I cannot eat quinoa, nor millet or amaranth.  However, I handle sorghum, buckwheat and teff perfectly well.  You will have to identify your own intolerances.  It makes no sense to eat something that makes your joints ache.

  • 2 weeks later...
Assaf Newbie

Quinoa does need to be washed, it has a natural pesticide which will cause you some reaction if not washed properly. You might be racting to that and not the grain itself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
DerpTyler Newbie

Rice, corn pastas, gluten-free bread, some fruits

cahill Collaborator

Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

If you are fatiguing due to the lack of good complex carbs try upping your fat intake . Save your sweet potatoes for post workout and try increasing your consumption of good fats,,,, nuts and seeds .

While the bodys preference may be  complex carbs it will utilize the fats in the same way .

Sweet potatoes are not a nightshade. Regular potatoes are a night shade and can be  highly inflammatory .

charlesalyea Newbie

Thank you very much I will try rinsing and upping my fat intake as well

taynichaf Contributor

Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

Hmm.. You should try a low carb/high fat diet. The first few weeks are tough, but after that you get continuous energy and no need for carbs! For body builders though, they have a "refeed" day, where you eat low fat and high carb to restore your glycogen stores... Just a suggestion, if you can't find much carby things to eat. Ohh, and this diet is also amazing for fat loss! It's actually the diet that helped me realize my gluten intolerance!

  • 4 weeks later...
charlesalyea Newbie

Thank you Tay.I will definitely look into upping fat intake .i am really trying to increase my lean mass .

  • 2 weeks later...
ndw3363 Contributor

I'll try upping my fat intake as well.  If was feeling SO sluggish at the gym for awhile...upped my carb intake and my energy was great...however, my body hates carbs in all other ways (my skin breaks out in seborrhea, I bloat like crazy, get headaches, standard candida reaction stuff).  Doing a massive grocery shopping trip followed by cooking this weekend - guess I'll be stocking up on avocados and almond butter as well.  Desperately need to find the right balance - I hate those gym days where your muscles have the potential to do so much more than your energy stores will allow

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.