Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw Gi Today, "i Think It's Just Ibs" Grrrr

SeekingSarah

Recommended Posts

SeekingSarah Apprentice
SeekingSarah
Posted

Horrible day for symptoms too...blood this am with bm. Ate a turkey sandwich on a wheat deli thin before appt and I don't know why had such horrible bloating and cramping while there, driving home felt I need to puke too...got home nothing but flem when I tried to puke, and even more blood and clotting with bm (I have fissure and hemmoriods, but there was no pain associated with the bleeding like usually with the fissure). I curled up in a ball and went to bed at 6 pm. I can't function like that, I'm taking an online class and at this point going to withdrawal since I'm usually sleeping when not working. 

 

BUT....oh yeah Dr. GI initial thought is it's "just" IBS. He asked a few questions, felt my abdomen...then said "be right back"...came back into exam room with samples of a medication. I don't even know the name right now, I'm too pissed off to open the bag again. I'm not taking it until I see the blood results. Oh yes, on the positive side he agreed to at least do the Celiac testing. He ordered blood work, I don't know what all he ordered, I asked the lab woman and she said CBC was on of them, and the 4th vial she didn't know what it was exactly but it was going to be sent to the Mayo Clinic, so tell me 4 vials of blood, only 1 being sent away...think they do the full Celiac panel from one tube? I can check the results myself online in a few days....that is GREAT! He said since I had a colonoscopy in 2009 that was normal, no need to repeat it...thank you. I asked about an endoscopy, he said he'd be willing to do one and take a biopsy, let's see what the blood work results are....oh and he thinks seeing a dermatologist for the "skin issue" is a good idea. 

 

He doesn't advise anyone to go on a Gluten free diet unless it's necessary since it's "such a restrictive diet"...us um doctor but if it STOPS all these symptoms by simply excluding a food...it's a good thing! Tonight I threw together a chicken sausage, spinach, onion, mushroom, quinoa dinner....yes I know processed sausage not the best but it is Adele's which claims to be gluten free...thank goodness I can cook...I think I can adjust to Gluten free quite well just waiting for all the test so I can give it try.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

One of my kids Celiac panel was 1 vial sent to Mayo. So hopefully.....

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

One of my kids Celiac panel was 1 vial sent to Mayo. So hopefully.....

Thank you! I didn't want to make him mad by pulling out my list and asking that he make sure all were done, he already wasn't completely on board...and I know my PCP in FL (next time I see her, I live in Ohio now) would order anything he did not order.

mamat78 Apprentice
mamat78
Posted

Hopefully you get the answers you are looking for! Dr's can be great but they can also be very frustrating. Mine didn't even consider celiac the first time I mentioned it (over 2 years ago) but gave me the blood requisition anyways (which I didn't do) and then the fill in doc that I went to said to me "that doesnt really look like just atopical dermatitis..." on my severely blistered legs but had nothing to add other than, if the cortisone cream (stronger one than I was on) doesnt work, come back. (also ordered a celiac test) By the time I came back, I had researched DH and was ready with the info to be tested. Unfortunately she did it completely wrong so it will likely come back negative. 

I hope you hear very soon! 

 

 

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

Initial blood results back CBC, CMP, and SED rate...the CBC and CMP look normal to me...SED rate which measures inflammation normal is 0-20...mine is a 65.

Gemini Experienced
Gemini
Posted

Most people who have never followed a gluten-free diet think it restrictive and that statement comes out of ignorance.  It is not a restrictive diet.  I am eating more variety of foods that I never knew existed before.  Ask anyone if they have ever heard of quinoa or teff flour before.  The only thing that is restrictive with the gluten-free diet is that you cannot have too much processed food or fast food......we all know people need more of that!  :rolleyes:   I really hate GI doctors and refuse to ever go to one.  My functional medicine doctor was the one who agreed to run the Celiac blood panel and lo and behold, I had my answer!

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

I know, I'm like hello FUNYUNS are gluten free...I'm GOOD. LOL Joking...sorta. I already eat a lot of unproccessed food, I was eating MORE "whole grain fiber" foods to HELP with the supposed IBS from the last GI who brushed me off...now this one is saying IBS without even having the other's records or any test yet...so you get IBS from pushing on my abdomen? Well...a lot of post weight lose surgery patients have constipation...um that's NOT what I have, I have a combination...I actually have 2-3 BM a day....trust me I'm active in the WLS community and see others talk about going DAYS with no bm....that is not what I have going on here....not to mention the rash, etc, etc, etc, etc. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


EmiPark210 Contributor
EmiPark210
Posted

That's a sucky answer to get! Very frustrating as well. If you are considering the biopsy, you'll need to stay on gluten, just going to put that out there. I'm two and a half weeks away from my biopsy and I had to go back on gluten after 3 weeks off and I'm about ready to call in sick for the semester. Going back on is a lot harder than staying on. 

 

And here I am with the unpopular opinion... perhaps you could have IBS and Celiac? I don't know how common it is but I had an IBS diagnosis in 2010, but with the symptoms I can identify now that I have that under control and am back on gluten, I think the celiacs just started within the past year or two when I know the IBS started in 2006. I have a completely separate reaction to foods that are high in sodium, have caffeine, have lots of super processed corn, among other things than I do to eating gluten. Unfortunately, that doesn't work with your doctor's excuse that eating gluten free is so restrictive... Have you seen how much caffeine normal college students consume? :P  I'm not saying that your self diagnosis of celiacs is wrong, but there could be other things happening as well that need attention too, like other food intolerances. 

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

Oh yes, I've been a college student and I used to work at a university in Student Affairs....caffeine is a best friend. I am going to get the GI records from 2009 just to see what blood tests were actually done and what the results were...just curious. The IBS dx was basically in 2009 was basically because the Celiac and Chrohns were negative. If what the rash I have is DH then I've had it waaay before 2009. I do plan on staying on gluten until after an endoscopy per what I read here and definitely do not want to go off then back on. I noticed the IBS meds the GI just gave me is different name than the meds the NP prescribed (I never picked up), not taking either IBS meds until I see the latest blood results. Glad the hospital I went to has online chart so I can access them myself. Oh I don't doubt I have LOTS of issues...this would just another of the "odd" health issues I have...or the solution to many of the "odd" issues. I need to put them in signature here...is there a space limit??? LOL

frieze Community Regular
frieze
Posted

with electronic med recs, he could have seen the old recs.  which kinda defeats the "2' opinion" visit.

I know, I'm like hello FUNYUNS are gluten free...I'm GOOD. LOL Joking...sorta. I already eat a lot of unproccessed food, I was eating MORE "whole grain fiber" foods to HELP with the supposed IBS from the last GI who brushed me off...now this one is saying IBS without even having the other's records or any test yet...so you get IBS from pushing on my abdomen? Well...a lot of post weight lose surgery patients have constipation...um that's NOT what I have, I have a combination...I actually have 2-3 BM a day....trust me I'm active in the WLS community and see others talk about going DAYS with no bm....that is not what I have going on here....not to mention the rash, etc, etc, etc, etc. 

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

The GI I saw in 2009 was in Miami, FL, this new doctor was in KY as I have moved back to Ohio...they didn't even have the 2009 GI name nor a release from me to get the records. I offered the name and phone at check in but the receptionist said they get it from me if the Dr wanted them...

shadowicewolf Proficient
shadowicewolf
Posted

IBS is a symptom not a diagnosis. IBS is a part of celiac.

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

My thoughts exactly...I've also read a few places on IBS forums that IBS would not cause the elevated SED rate....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,891
    • Most Online (within 30 mins)
      7,748
    RyanDunn
    Newest Member
    RyanDunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.