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Need Help Understanding All This!


Karah

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Karah Newbie

Hi, everyone. This is my first time posting but I could really use some help and support right now. I had never had food allergies until my onion one in 2000. I got really sick overseas and when I came back home I was given two rounds of antibiotics. For 2-3 months after that I had major digestive upset that no one (doctors/tests) could figure out. I was basically told IBS deal with it. I got better, for the most part, when I figured out I couldn't have onion anymore. Then last June I was given the Celiac diagnosis along with a couple of other food allergies. I started feeling a lot better until 2-3 months ago. I just had more food allergy testing done on Tuesday and was given a bigger list...mostly vegetables, tuna, oranges, watermelon, and squash. These are things I eat all the time! Now I can't. I already found I can't have legumes, soy, gluten, bananas, buckwheat, wheat, peanuts, corn, nuts, and dairy. Why am I having all these allergies/intolerances all of a sudden, I feel soon I won't be able to eat anything! Is there a way to fix this? Thanks for any help/suggestions!


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stri8ed Rookie

Hi

 

Many people with celiac disease also have a leaky gut, which can cause you to develop new food allergies. Please refer to my post here.

Lisa Mentor

How were you tested for Celiac Disease? This is the test ( full panel ) that you should have been tested for Celiac:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Although other food intolerances are common, often times it's only discovered when gluten is totally removed from your diet.  It does sound like you were allergy tested.  Celiac is not an allergy, rather an autoimmune disease. And it's offen is triggered by an illness, stress, pregnancy, etc...

 

Oh ....and Welcome!

Juliebove Rising Star

What kind of allergies are these?  IgE?  IgG?  What kind of test was done?  What kind of Dr. did this test?

Karah Newbie

@stri8ed thank you for the link to the other post!

@Lisa I had the full blood panel done. My doctor has Celiac and has no gluten symptoms other than the severe damage shown on his biopsy. It looked really bad when he showed me. I do have a wheat allergy but I also have Celiac which is not a food allergy. We are going to start testing for other autoimmune diseases because we don't think Celiac is the only one I have. Thank you for the welcome!

@Juliebove I had an allergist/immunologist administer the allergy tests. I had food and environmental tests done. I know the foods were IgE tests. I had them done twice, once last June and then again on Tuesday. I had way more foods show up this time than last. I am also finding I am intolerant to a lot of foods. The foods that showed up this time are all foods I eat all the time since my first allergy test, and now I can't eat those. I am so overwhelmed and running out of things to eat. Today I am in really bad pain due to consuming soy and corn, but I kind knew that would happen. I also had a pretty bad reaction to some new fish oil pills. I am allergic to tuna, but there was no tuna in them. They caused hives, dizziness, and breathing problems.

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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
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    • trents
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