Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New


Susansmum

Recommended Posts

Susansmum Newbie

Hi,

I have just been told by my specialist to start my gluten free diet. I had my gastroscopy on Friday and I have to go back and see him in two weeks, but I have to go gluten-free between now and then.

How long does it take for the symptoms to subside??

I am now learning that gluten free does not always mean wheat free??

Guess I should visit the health food store tomorrow :)

I also have Graves disease and bi-polar, so I should probably check my meds to make sure they don't have gluten in them...

Anyway just wanted to say hi :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Hi,

I have just been told by my specialist to start my gluten free diet. I had my gastroscopy on Friday and I have to go back and see him in two weeks, but I have to go gluten-free between now and then.

How long does it take for the symptoms to subside??

I am now learning that gluten free does not always mean wheat free??

Guess I should visit the health food store tomorrow :)

I also have Graves disease and bi-polar, so I should probably check my meds to make sure they don't have gluten in them...

Anyway just wanted to say hi :)

<{POST_SNAPBACK}>

Hi and good morning to you! Welcome to the world of gluten-free eating. First of all, you really didn't give much information as to how long you have probably had celiac disease before you were dx. The healing rate has many variables - the amount of damage done, your own natural healing rate, the length of time from onset of celiac disease to dx. You probably will be feeling better in about three weeks - but only if you are truly gluten-free! Beware of cross-contamination and hidden sources. And yes, a product can be wheat free but not gluten-free. You must look for rye, barley and oats. You didn't state where you are located, but oats in the U.S. are severly cross-contaminated. Studies have been done on oats and celiac disease, but the studies were too small for definite yes or no for those with celiac disease.

Anyhow, you will probably get responses from other forum members who have Graves and have been dx with bi-polar. Graves and other thyroid problems seem to be very common with celiac disease sufferers, and the bi-polar may be in response to your body not being able to handle the gluten. But of course, checking your meds for gluten is very wise. I don't go to my health food store very often as I am a label reader and have found spaghetti sauces, soups, and many mainstream items to be naturally gluten-free. My meats are broiled or poached, lots of veggies and fruits. You will learn what you like and what's really good for you. Just maintain a high protein diet and you won't even miss all of your favorites because you will be feeling much better. It's a different lifestyle, but after awhile it will be second nature. Sorry this is so long and rambling, but again welcome!

Guest nini

welcome to the board and welcome (hopefully) to feeling much better very soon! I've been dx now for 2 1/2 years and am finally really starting to feel human again. I did start feeling better right away, but it took me awhile to completely get all of the hidden glutens out of my diet. You don't have to go out and buy a lot of specialty gluten-free foods (sure you can try a few here and there, some are good, some are terrible!) you can eat gluten-free by sticking to a diet that is as close to the way nature made the food as possible. There are a lot of companies that are good about not hiding any ingredients in their labeling and Wal Mart is even starting to label their Great Value brand products that are gluten-free... Fast food restaurants even have gluten-free menus available on some of their websites and their are mainstream restaurants that even have gluten-free menus that they keep on hand! You'll get the hang of it and you've got this board to come to for any questions you have!

Remember, there are no stupid questions!

Guest BellyTimber

Like they've said, anywhere between 3 weeks and 3 years (like me) ...

You've come to the right place, don't forget your proteins and your green veg, eat simple foods ...

Best wishes,

julie5914 Contributor

Welcome! Gluten - free is all you need to worry about, and it should mean wheat free. Wheat free does not always mean gluten free, however, so be careful with that one. I felt better immediately, but certainly not 100%. It was a noticeable difference, but I think it is going to take a while (several more months in addition to the 4 already) for me to get back up to 100% healthy, if I can ever get there. I suppose 95% is good. Glad you found it and get to start feeling better! Here's to no gluten accidents! Be careful!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    2. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    4. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.