Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pins And Needles And Celiac


KerryLad

Recommended Posts

KerryLad Rookie

just wondering if anyone gets pins and needles in hand or face when they eat wheat or aything? i have them now 3 weeks and afraid they wont stop cause they are cracking me up :( its my intestines are def at me and stinging down there and hurting a small bit whenver i eat i feel sick after it and sting alot my blood results came back negitive from celiac but i reallt think its that making me sick any idea how many people get pins and needles from it ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

KerryLad Rookie

It may be due to a vitamine deficiency, indirectly caused by Celiac.   Have you been to the doctor to run a full panel?   In the old days (several years ago) it used to be called an "Executive Panel", but your doctor would know.  I certainly would recommend it.

got full bloods done and all came back ok vitamins levels etc tyroid perfect all good like... and i know its intestines and stomach like and its cracking my up my hands are getting sore and my left wrist is very sore :(

ravenwoodglass Mentor

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

KerryLad Rookie

Did they test your B12? It should be over 500 not over 250 as the old normal level low point used to be. It won't hurt to try a sublingual B12 supplement to see if it helps. Do tell your doctor you are supplementing though because supplementing will raise the levels in the blood tests.

ya all my b vitmain levels are good taken b12 the last 2 weeks as well like everything is good with my bloods and thats what bugging me celiac test came back clear negitive.. i have being eating chicken wraps latelly thinking there was no wheat in them and there is no wonder im not healing :(

GF Lover Rising Star

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

KerryLad Rookie

Kerry,

 

From this thread and the other one you started with this same issue, it is becoming clear that you do not have a good understanding of what Gluten Free really means.  Please read the Newbie thread and do some self education.   Of course, we are always here to help but you must further your knowledge if you are to be successful with this life change.  I would also suggest you take it more seriously.  I don't me to sound harsh but this is my opinion.

 

Best of luck,

 

Colleen 

im new to it and trying to understand it and trust me im taken it serious would not be here otherwise or for the fun of it im suffering like and trying to figurre and get answers like 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.