Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Have A Lump Behind Their Jaw?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

I havent seen anything like this related to celiac, but i just thought i should ask. under my ear lobe in the back of my jaw i can feel this pea-sized bump. It doesnt stick out or cause much trouble, but sometimes when I start chewing something I get a shooting pain where the lump is. It doesnt happen all the time, but it seems to be happening more and more. Ive noticed it for a few years, and when I brought it up to my doctor he just said swollen lymph nodes and didnt do anything about it. Also, it dosent hurt to touch it or anything....

 

Anyone no if this could be a symptom of celiac? (im not a diagnosed celiac)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

 

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

taynichaf Contributor
taynichaf
Posted
  • Author

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

 

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

Oh my gosh!... I'm so sorry!.. I hope you get help for that soon!

 

And I can wiggle it a bit, so no cancer :) I'll just bring it up to my new doctor and see what he has to say.

 

But hopefully all goes well for you XOXO

foam Apprentice
foam
Posted

My Tumour is rock hard but mobile and painless, but that's only because of it's location in my neck, I wouldn't worry too much about a pea size lump but watch it and if another one comes up, then you can really worry. Mines egg sized (on a good day) and generally much bigger than that. It's not allways the case but most of the time a tumour with smooth rounded edges is OK, anything with webs and weird edges, not ok. As to are these things related to gluten, I'd say... nearly everything is !

VeggieGal Contributor
VeggieGal
Posted

I saw the title of your thread and jumped on it. My "lump" is different though. Yours does sound like a lymph node. I have some of those too, swollen and rock hard. They SAY that if they can be wiggled around it's infection. If they are hard and don't move when you try to wiggle them, it's cancer. I don't know if that's true in every case, but that's what I have read.

My other "lump" is on the jawbone itself and it too is rock hard, doesn't wiggle, is the size of a chicken egg, and hurts so bad it takes my breath away. I can't get my mouth open enough to even eat. I'm on a liquid diet right now. Someday, if I'm still alive by then, I'll get insurance...

Thats scary, I have a pea sized lump that doesnt wiggle or hurt (feels like bone) behind my ear which I've had for about a week but I'm sure I've had one before awhile back and it just went on its own (assumed it was just abit of gristle).

I've got to the point where I'm fed up of going to the doctors and feel like I live there ! so I was hoping it was just vanish again. Suppose I best get it checked :(

sisterlynr Explorer
sisterlynr
Posted

In 2007 I had two lumps around my ears/jaw.  The lump right behind my ear was painful and felt like it was oblong.  Just next to that lump was another that was about the size of an egg.  It did not move around nor was it painful.  I was sent to an ENT for examination.  

 

There are salivary glands (3) in that area of your face/neck.  The salivary glands empty into the lymph nodes if there is infection, whether viral or bacterial.  My Parotid gland was the painful one.  The ENT sent me to have the other lump aspirated to determine if it cancer.  Mine was NH Lymphoma.  They removed that lump but didn't touch the Parotid gland.  It has facial nerves which run through and around it and if excised can affect your facial nerves and cause paralysis.  I was told my parotid gland most likely was full of cancer.  I was Stage IV NH Lymphoma by 2008 and had RCHOP Chemo.  The cancer had metzed to my liver, spleen, nodes in the neck and all over my body.  I am in remission for 5 years now and happy to be alive!  God is good and I credit my being alive to prayer and God giving my Oncologist wisdom, in my treatment.

 

NH Lymphoma can be credited to Celiac Disease, especially in the colon.  My Oncologist never determined if it was from Celiac.  I would suggest that you look up salivary glands or parotid gland for your research.  

 

 

VeggieGal Contributor
VeggieGal
Posted

In 2007 I had two lumps around my ears/jaw. The lump right behind my ear was painful and felt like it was oblong. Just next to that lump was another that was about the size of an egg. It did not move around nor was it painful. I was sent to an ENT for examination.

There are salivary glands (3) in that area of your face/neck. The salivary glands empty into the lymph nodes if there is infection, whether viral or bacterial. My Parotid gland was the painful one. The ENT sent me to have the other lump aspirated to determine if it cancer. Mine was NH Lymphoma. They removed that lump but didn't touch the Parotid gland. It has facial nerves which run through and around it and if excised can affect your facial nerves and cause paralysis. I was told my parotid gland most likely was full of cancer. I was Stage IV NH Lymphoma by 2008 and had RCHOP Chemo. The cancer had metzed to my liver, spleen, nodes in the neck and all over my body. I am in remission for 5 years now and happy to be alive! God is good and I credit my being alive to prayer and God giving my Oncologist wisdom, in my treatment.

NH Lymphoma can be credited to Celiac Disease, especially in the colon. My Oncologist never determined if it was from Celiac. I would suggest that you look up salivary glands or parotid gland for your research.

Thanks for sharing and thats great news you're in remission and you caught it in time :) . Just shows its always best to get our concerns checked out. God bless ..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    5. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.