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Help Reading Test Results


ryattswanson

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ryattswanson Newbie

My sister was diagnosed with Celiac two weeks ago and I am in the process of being tested. I have had the celiac blood tests that came back negative but my sister's numbers were low and I have two little boys so her GI doctor suggested that we have the genetic done. I did have the tests done...and here are the results are as follows:

 

DQ Alpha 1  01, 02:01

DQ Beta 03, 05  serology Equivalence 9,5

 

I have no clue what any of this means...can anyone help me?

 

And it also says

 

Genetic Pairs Present- no

 

My guess is that its negative so I don't carry the genes. But I have tried to google this and I do NOT understand it at all...

 

Thanks in advance...and I love this site


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Lisa Mentor

This the full panel for Celiac:

 

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

I assume you were tested with the above.

 

 

Only 20% of people who carry the genes will carry on to develop Celiac. The other 80% , who carry the associated gene, will, never develop Celiac.

ryattswanson Newbie

I Did Have Those And They Were Low So they Said Negative...I Am Wondering If These genetic Tests Say I Don't Have TheGenes

nora-n Rookie

 your lab results are DQ 9 and DQ 5, since 03* or 02* 03* means DQ9 and 01* 05* means DQ5.

 

The labs are looking for the pairs: 05*02* and 03*0302

 

Open Original Shared Link

 

 

There is at least one DQ9  celiac here on this forum, as DQ9 is very close to DQ8, but the risk for celiac with DQ9 is less than with DQ8 or DQ2

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    • RMJ
      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Thanks for your assistance. 
    • trents
      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
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      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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