Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pmdd Or Pms?


Marie1976

Recommended Posts

Marie1976 Enthusiast

Hi everybody, I haven't been on here in a while...

 

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

 

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be. 

 

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

First, the prescription problem. Don't just drop off a prescription then ask a pharmacist if they are safe. Go to the pharmacy, ask what brand they will use to fill the prescription with and for a phone number for that company if possible. (If they don't have a phone number you can get it easily from the internet.) Then, call yourself. Drop the prescription off only when you know it is safe. I do not bother with manufacturers whose exclusive contact information is either email or international phone. Thanks, I'll pass on the language barrier since we have enough problems getting people we share a first language with to understand our issue. This is a personal choice that not everyone makes, nor advocates, and I am sure that some have found success contacting companies in this way. Once you have verified that a pharmacy can fill your prescription from a safe manufacturer, drop it off. When you pick it up, verify the manufacturer before paying. This seems neurotic, but I always do.

 

As for do I have these issues? My husband would probably tell you I am a psychotic you know what for several days, and maybe a bit more than a week before my period. I have simply learned to deal with it by attempting to keep my mouth shut and not speak for a week. My Grammy taught me as a little girl that if I don't have anything nice to say, not to say anything at all. I try to apply that rule. This generally meets with alternating amounts of success, but I am not finding this disruptive enough in my life to medicate.

gfkikamonster Newbie

Not a doctor, of course. But I have been diagnosed with PMDD and it's a lot more than PMS. Not only are the symptoms more severe, but they also cover more of the month. I have problems while I'm ovulating and for at least a week before my period as well as during.

That being said, a doctor should be able to help whether it is bad PMS or PMDD. I have done anti-depressants but now have been having good luck with just birth control to balance my hormones.

As to the prescription question, I think the other poster had good suggestions. Any medication can have gluten (and I have found some by mistake) but few actually do. Still need to do the research on whatever is prescribed.

ravenwoodglass Mentor

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

Marie1976 Enthusiast

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

ravenwoodglass Mentor

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

pricklypear1971 Community Regular

Hi everybody, I haven't been on here in a while...

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be.

Thanks in advance.

I've been struggling mid-cycle lately. I am Hashis - and we're working on it, but this mid cycle thing feels hormonal - because it has happened days 9-18 for 3 months.

And it is horrid. I feel like I'm having a thyroid flare - and maybe my thyroid is going a bit nuts, but oh man, it's somehow linked to my cycles.

I am currently on progesterone the last 2 weeks of my cycle - when I generally feel better. We are considering extending it to full cycle but lower dose the first half.

So, if you haven't had your thyroid worked up, and hormones...these may be factors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

 

With prescriptions and OTC I simply say that in addition to celiac and needing gluten free I also have a wheat allergy and I need to know for sure that the starch and fillers are not wheat derived. I'm annoying like that. :lol: Drugs and foods are two whole different ballgames we deal with.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.