Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Really, How Reliable Are Blood Tests?


taynichaf

Recommended Posts

taynichaf Contributor

I've had people tell me that there are many false negatives and the blood testing isnt all that reliable... and then theres the people that say false negatives are rare with blood testing.... WHICH IS IT?!

 

I'm really freaking confused on wether or not to go through with my endoscopy or not because my tests were negative(although they were not the full panel :/  )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Pretty reliable. Ask the experts:

Open Original Shared Link

Open Original Shared Link

Deaminated Marcus Apprentice

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

taynichaf Contributor

Pretty reliable. Ask the experts:

Open Original Shared Link

Open Original Shared Link

Awesome, thanks!

taynichaf Contributor

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

Ok... I'll make a new doctors appointment and have all the tests picked out and everything... thanks! And I will do research on the other two, but I don't think I have crohns because I have C instead of D, and weight gain instead of weight loss.

Deaminated Marcus Apprentice

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

taynichaf Contributor

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

Lol, I know this now! I'm not leaving the office unless it's the tests I want!

Thanks for everything


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.