Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Venting


NotMollyRingwald

Recommended Posts

NotMollyRingwald Apprentice

Please excuse my pity party but its either post on this website full of prople who get it or run screaming through the neighborhood and get locked in the looney bin.

I've had about all I can take of this gluten challenge. Admittedly I've let of go too far (eating too much gluten), partly because I'm desperate for confidence in a diagnosis (+ of -, idont care, i judg want to be sure my test results are accurate) and partly because I'm mourning the loss of my childhood comfort diet (processed junk food). My head is such a mess. Headache and brain fog so thick I cant thnk straight, exhausted despite more sleep than usual, dark circles under my eyes, horrible smells all around me (body odor and gas, despite stict hygiene measures), it hurts to lie down, it hurts to sit up. Stomach acid boiling, constant acod in the back of my throat. Everyone at work has noticed, they keep asking me if m ok, that I look sick. And I AM sick. The worst part is the Ffect on my fmily. I'm missing out on time with my son, breaks my heart when he asks me if I'm still sick..."you not sick anymore mommy?" He's not even four yet...i don't remember telling him I as sick, but he obviously gets that something is wrong with mommy. :*( My marriage is strained. Hubby is trying to understand, but he just doesn't. My libido is gone, all I want to do is sleep/lay down... He is being as supportive as he can, but its not fair to him... Plus i just realized that i most likely ahve to keep eating gluten for longer thN i was thinking, unless the GI is able to schedule for an endo right away, ive got AT LEAST 2ore weeks of hell i fromt of me. Ugggggggggh. I just want to curl into a ball and hide. My optimism and positivity are gone. I hope they come back.

Sorry for the negativity. Just had to get that all out. Maybe looking back at this post will help me stay gluten free someday....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NotMollyRingwald Apprentice

Ps please excuse the typos and grammar errors. On my phone...and frankly scarlet I don't give a da*$.

SeekingSarah Apprentice

((((((hugs)))))

shadowicewolf Proficient

Look at it this way, there is only two more weeks to go. You've made it this far, you can do it!

kareng Grand Master

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!

( that was what you said, wasn't it? )

notme Experienced

((((((((((((((hugs, kiddo, hang on, you're almost there)))))))))))))))))

Celiac Mindwarp Community Regular

IT WILL GET BETTER AFTER (all of it iykwim)

My husband has back and even better version of me than the one he married.

It is always worth calling for cancellations. I wrote down my gluten challenge symptoms and my doctor saw me pretty sharply.

I know you want the definitive diagnosis, but many of us are ncgi, and experience massive benefits from gluten-free. Your body has made it very clear.

We are all rooting for you and will be here for your journey back to health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NotMollyRingwald Apprentice

Thanks everyone!! I can't tell you how grateful I am for this site...having support from people who really know this hell is invaluable. 

 

I woke up feeling more positive this morning. Heard a few songs on the radio on the way to work that were encouraging, and a reminder that I'm not alone and foresaken, there is amazing support here and He is always with me.  Reminded me I need to be thankful the symptoms aren't much worse, caz they really could be a LOT worse. I can get through this day.  I can get through the rest of this challenge.  Then I can start healing and get my life back. It will be ok. :)

 

 

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!



( that was what you said, wasn't it? )

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

kareng Grand Master

 

 

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

 

I know.  Just wanted you to laugh.

NotMollyRingwald Apprentice

I know.  Just wanted you to laugh.

:D  well done!! :lol:

kareng Grand Master

:D  well done!! :lol:

 

 

The neighbors would have been talking about that for years!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.