Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Test Results

BSVD

Recommended Posts

BSVD Rookie
BSVD
Posted

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ksee Rookie
Ksee
Posted

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?

That is a for sure. You need to stop gluten,

BSVD Rookie
BSVD
Posted
  • Author

That is a for sure. You need to stop gluten,

Thank you so much for your reply:) I am feeling alone in all this. I have stopped gluten, but was wondering if it was really necessary.

nvsmom Community Regular
nvsmom
Posted

Yes. You are positive on 3 out of 3 tests. It doesn't get much more positive than that.  :( Welcome to the board.

 

There is a lot of info around here so look through the threads. Ask questions or just vent. the people around here are very helpful and encouraging. And hang in there... the first few weeks are often the hardest, mentally and physically.

notme Experienced
notme
Posted

you're not alone - this is a good place to learn how to keep yourself eating safe and healing well.  soooo....

 

welcome to the best club you never wanted to join   :blink:

Ksee Rookie
Ksee
Posted

I started feeling better very quickly, within a few days, but I have read it is different for everyone. I already knew a lot about nutrition, and healthy eating. My diet has always been simple, whole foods with simple processing if any so it was easy for me to get the gluten out of my cabinets and fridge. That could of been a reason for my rapid improvement. 

I hate eating out, for so many years it was all I could do because of my work. That is all to say, I have not had a hard time changing this one thing. I don't know yet how sensitive I will be to accidentally contacting unrecognized gluten. 

I can say the benefit of only one thing, decreased pain and digestive problems, is by itself reward enough to make any effort worth the gain. That isn't the only benefit though. I think I'm like the blindfolded person asked to describe the nature of an elephant by holding it's tail. I have a sense of something large but as yet can only hold to a thin rope.

Hang on tight, ride that elephant  :D it's gonna be great!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748
    Jean Kemling
    Newest Member
    Jean Kemling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...