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Scott Adams

Mushroom (Neroli) Memorial Thread

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It is with great sadness that I share the very bad news that one of our long-time board members and moderators passed away recently due to complications resulting from a stroke that she suffered a few weeks ago. She was very helpful to many on this board, and this thread is the place to share your thoughts and memories of her. She will be missed dearly by all she touched with her kindness, and I never got to say "thank you" to her for serving as a board moderator--thank you! 

 

 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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I am stunned. She is the " iron lady " to me. One of the best people on c.com and one of the first to reach out to me
so long ago. Always an elegant lady,  but also one of the toughest broads I have ever met! 

She always teased me on threads and she told me more than once to "grow a thick skin, IH. Do not take anything personal and  stay as compassionate as you are."

We often shared PMs and our love of grammar and word play.

I am crying my head off right now and thinking.. ...buggers!! .  we  lost a great gal today. dammit, dammit, dammit.
She loved scotch, i know and I would tell her "blech, Shroom!"  but I will toast her with gin.... again and again

I told her "you are my NZ stop when I am well enough to do my world tour " and she said "you better hurry!"
 

So glad I told her more than once "i just love you ...and I appreciate your wisdom, kindness and enormous sense of humor." I recently told her the response she gave to a newbie was just the most amazing thing ever. (Because it was.)

 

And to her dear Hubs, Clayton...she always spoke of you with so much love! My heart aches for you.

 

She is my hero and her "let's start a thread of stupid stuff doctors say"  reigns supreme.

 

Cheers, Shroomie! Love you madly ...and now I have to stop because  I cannot see the keyboard anymore. :(


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Thank you, Scott. Our Shroomie was a force to be reckoned with for sure! She spent years on this board giving great, knowledgeable advice laced with caring and a wonderful sense of humor. Shroom somehow always had just the right words and was so generous with her replies.

She was a fixture on the "Tickle Me Elbow" thread, and it was there we became friends. I will miss checking in with her there and the silly banter that has ensued through the years.

Rest in peace, Shroomie.

My thoughts are with her husband, family and friends.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I had to read this 3 times before it sank in.  I still am having trouble comprehending that Mushroom is gone.  You know, and this is true, the other day her name just popped into my head.

Out of the blue and I thought....where has she been?  I haven't seen any posts from Mushroom.   I was going to ask Irish because I know how close they were.  Now I know and it makes me sick to my stomach. 

 

I lost a co-worker last summer.  He died of a heart attack, very suddenly.  We were close and I was so upset because I had been on vacation, moving into my new home and I thought of him the same way I thought of Mushroom.  He just popped into my head and I thought how I would seek him out as soon as I returned to work.  Then I got a call from others at work to tell me he was gone.  I never got to say good-bye and that will bother me forever.

 

Rest in peace, Mushroom, and my heartfelt condolences go out to her family.  God has scooped up another good one and it isn't fair that He always takes the best ones before their time.  :(

 

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Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Thank you for letting us know, Scott.

My thoughts are with all her family and friends, especially the ones here.

She will be missed.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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rest in peace, shroomie.  thanks for all the great advice and helping to hold everybody's hand through this sometimes tough life we are trying to live.  i sure will miss you, especially on the cooking 'channel' xxoo and prayers are with your family.


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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Thank you Scott for letting us know

 

 

When I was new to these forums Mushroom was one of the first to reach out to me . Thur my gluten induced fog Mushroom was a beacon , the voice of reason and encouragement. She gave me  hope  and knowledge  that  I so desperately  needed  at  start of my journey . She will be sadly missed. :(


Gluten free Oct/09
Soy free Nov/10

 

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I am shocked.  I've only known her for a year but she made a great impression on me and touched another's life.

 

 

To the Admin,  Moderators, and her close friends and family, I am deeply sorry for your loss. And praying for your strength. 

 

 


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

smiley-face-making-cocktail.gif

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Oh my. I'm shocked and heartbroken. When I first came here it was Mushroom, Irish, and Skylark who reached out to me with their knowledge and their compassion. I haven't seen Skylark here in a long time either and I'm almost afraid to ask...

 

Mushroom, I know you have a special place in Heaven. People as kind and giving as you are so rare in this world.

 

To her family, I thank you for sharing her with us, and you will all be in my prayers.


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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Shroomie, You helped me. Heck, you helped thousands. I miss you already. I can't believe I won't see your words of wisdom on here anymore. Rest in peace dear girl. You earned it.

My thoughts turn now to her family. May they be content in the knowledge that Shroomie has gone on to help others in another place.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Neroli was a friend to me, and to so many here. She was a pillar of strength, offering help and support to all who came here looking for it. Life threw her many challenges, and she overcame them all, until this last one.

She will be missed. Her wit always livened up anything she was in on. Rest in peace, my dear friend.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Shroomie was a great resource for this forum.  She gave good advice and spiced it up with humor often.  For someone who wasn't feeling too well herself she sure put in a lot of effort to give helpful answers to people's questions.  I think that shows love for her fellow humans.  My condolences to Clayton and her family.  The Lord made a fine catch today!  I imagine he's smiling real bright about now.  Happy trails to Shroomie!


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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This news just continues to seem completely unreal to me...how can Shroomie be gone? Brilliant, hilarious, compassionate.....and a real fighter. I am sure that the legacy she left is monumental, and a big part of it is the countless lost, sick, frustrated people whom she helped on this forum.

Thank you so much, Neroli. This place will never be the same without you.


Emily

diagnosed type one diabetic 1973

diagnosed celiac winter 2005

diagnosed hypothyroid spring 2006

But healthy and happy! 253.gif

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.

--Pierre Joseph Proudhon (1809-1865)

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she took the time on my very first post to bold things I should include in my symptoms list to give to my GI, and that was only the start of her help.  I noticed she hadn't posted in awhile, but I thought maybe moderators rotate schedules, and she was on vacation.  too bad I was wrong  :(  

 

thank you for sharing your knowledge with others, Mushroom, and giving ideas about what to try next.  you will be missed!


Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 

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I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

 

We are sending the link for this thread to her hubs.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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I haven't posted yet, because I didn't really know what to say. Still don't.

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.


 

 

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I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

 

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Neroli was such a dear friend to so many here on this forum including myself. She will truly be missed but never forgotten. My prayers go out to her family and all her friends.  


gluten free 12/11

dairy free 2/12

soy free 10/12

corn free 10/12

nightshade free 10/12

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I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

And a big bowl of split pea soup with lotsa croutons!

We had some great legume/lectin chats. Shroom really knew her stuff on all things food sensitivity.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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