Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urologist Wants To See Me About Kidney. Worried....


nosy parker

Recommended Posts

nosy parker Apprentice

Ok, so yesterday my GP called with results of my blood work.  Everything was great according to her.  My liver, my kidneys, my cholesterol etc... except for low ferritin.  So I was happy that all sounded good, but still wondering about the low ferritin.

 

My GI did my endo Apr. 2 and his secretary called to schedule me back on May 27th.  They don't call for follow-ups for nothing so I assume there's something.  But it wasn't urgent obviously because that was still quite some time away.  I kinda thought "aha I'm right, he found celiac".  I guess I'll find out in 10 days.  In the meantime he had also sent me for CT enterography (abdomen) to rule out crohn's before he even got results of the endo.  I like that he's thorough.

 

WELL, today when I got home I had a message from a urologist that wants to see me next Wednesday.  I was scheduled because of a consult request from my GI.  I thought "A urologist??? What the heck???"  Anyway called his office and his secretary told me it's because of my kidney and that my GI had made the request.  I'M FREAKING OUT!!!  Obviously something came up in the CT scan.  I'm thinking the worst now. OMG! I'm completely freaking out.  It's a holiday here on Monday so I probably won't be  able to reach my GI to ask questions.  I have no symptoms of kidney issues whatsoever.  They didn't refer me to a nephrologist.  If it's a urologist it makes me even more worried. They only touch kidneys when it involves bad stuff requiring surgery.  And of course I looked up his bio and he specializes in laparoscopy nephrectomy to remove cancerous kidneys. He's listed as general/oncological urology. 

 

I can't understand that nobody bothered to call me to explain anything and just left me to wander my mind alone.  I'm freaking out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Probably saw a kidney stone or two. They might not be bothering you but there are ways to get rid of them before they cause you trouble. Relax.

bartfull Rising Star

Your GI should be shot! Why do they think it isn't important to communicate with us? It is OUR bodies! They don't even consider that we are living thinking human beings! We are just "parts" to them. GRRR...

 

I hope it turns out to be nothing serious. Maybe your GI hasn't fulfilled his "quota" of referrals this month. I swear, they are all in on a money-making scheme. ("Hey, if I refer x amount of patients to you, can we split the $?")

 

Sorry, I'm a bit down on the medical profession. Please let us know as soon as you find out. In the meantime, (((HUGS)))

nosy parker Apprentice

Probably saw a kidney stone or two. They might not be bothering you but there are ways to get rid of them before they cause you trouble. Relax.

 

Ok, I'm trying to breathe...... I just googled low ferritin and kidney cancer and that REALLY didn't help.  Sometimes I hate the internet (or myself for being such an info junkie)  I don't know how I will make it to next Wednesday. 

 

Why would I need to see anyone if they found kidney stones?? If that's what it is, I sure don't feel anything.  Do they have to get rid of them?  Is that urgent?  Because the reason I'm freaking out is that they are seeing me SO QUICKLY!  The health care system here doesn't move that fast for unimportant stuff.  I just had the scan last Friday and already I'm being seen by the urologist.  Before I've even had my follow-up with the GI. Would this be important to deal with that fast?  For some reason, I doubt it. 

 

I'm freaking out. 

nosy parker Apprentice

Your GI should be shot! Why do they think it isn't important to communicate with us? It is OUR bodies! They don't even consider that we are living thinking human beings! We are just "parts" to them. GRRR...

 

I hope it turns out to be nothing serious. Maybe your GI hasn't fulfilled his "quota" of referrals this month. I swear, they are all in on a money-making scheme. ("Hey, if I refer x amount of patients to you, can we split the $?")

 

Sorry, I'm a bit down on the medical profession. Please let us know as soon as you find out. In the meantime, (((HUGS)))

 

I soooo agree.  I am really angry!  Wait until I speak to them!  Don't they realize that this is going to worry someone to no end!!??  Actually I think if they have something bad to tell you they sure as heck aren't going to do it over the phone, right?  So what else can they do but call you asap and set up an appointment, without saying anything at all?  It's not like the secretary is going to call and say "Hi the CT scan you had done showed cancer in your kidney and the doc wants to see you asap!"  I dunno.

 

Thanks for the hugs. It helps.

Dozey Apprentice

Hi, please try not to worry too much. I had something similar recently. I was diagnosed with very low B12 and my doctor said he would refer me to a Gasrto. The letter came two days later with an urgent appointment for the following week. I was terrified especially as cancer was mentioned in the letter. It turned out to be nothing, just an appointment to rule out anything serious. And some years previously I had a phone call from my surgery to say the doctor needed to see me asap over some blood test results. I spent the weekend worrying, only to be told I was anaemic and needed iron tablets. Obviously I was pleased things had been taken seriously and teated quickly. The trouble is I don't think secretaries are allowed to give out information. Your appointment is possibly a precautionary one. But if it is something, then you are getting it dealt with quickly.

Jo

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748

    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.