Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Living In Japan With Celiac?


teehee

Recommended Posts

teehee Newbie

Hi,

first of i should introduce myself. I'm a 23 year old guy living from Sweden, the country with maybe the highest levels of celiac disease in the world what I've heard. I've been a celiac almost my entire life, i got my diagnose when i was 2 and have been on a gluten-free diet ever since. I'm not sure what sensitivity levels there are, but if i mistakenly eat something with gluten and it can be very small amount it take almost precisely on hour before everything thats in my stomach, well, comes back up so to speak.

To my question then, I've been thinking of going to Japan for at least one year studying the language and culture. But my celiac is holding me back (which it have my whole life), in Sweden it's a very commonly known thing and you can order food almost everywhere that is gluten-free, so i have become very comfortable with living here with my celiac. And so I'm a little afraid that it's not so common in Japan and what i have read it isn't. So my question for anyone living in Japan on a gluten-free diet on the forum, how does it work out? Can you ask for gluten-free food at restaurants? And how easy is it finding gluten-free ingredients, such as soy sauce for example?

/Nicko


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

The first thing to do is research some of the older threads on  the forum as they contain a lot of good information. I've had an office in Japan for 30 years and although celiac for only 8 or so. I've not had a problem in japan once I could explain to the chefs about my allergy. They dont all get it but most of them do. Having to explain it in japanese is something you'll have to learn. In other messages on the foorum I posted the name of a few  english speaking doctors in Japan who can help with  language and celiac. There are also the popular  cards you can  download  explaining it in kanji. -- finding  gluten-free soy sauce is not always  easy  but you can get  things shioyaki  as well as go to health food stores like at Yokohama station and get the  gluten-free shoyu--  . Also you want to make sure you understand  miso. When miso is made with kome koji its not a problem but mugi -- barley miso can be.  Hacho & aka miso can go either way. I trained as a chef in Japan so I'm kind of spoiled and I have a lot of chef buddies  but finding things at  any izakaya is possible.  Finally, IF you can  find my old friend Hansg through the japan clubs in Sweden, He can help. He translates Swedish into japanese and worked for a number of years at the embassy in Tokyo. Great guy too.

Ken

 

Hi,

first of i should introduce myself. I'm a 23 year old guy living from Sweden, the country with maybe the highest levels of celiac disease in the world what I've heard. I've been a celiac almost my entire life, i got my diagnose when i was 2 and have been on a gluten-free diet ever since. I'm not sure what sensitivity levels there are, but if i mistakenly eat something with gluten and it can be very small amount it take almost precisely on hour before everything thats in my stomach, well, comes back up so to speak.

To my question then, I've been thinking of going to Japan for at least one year studying the language and culture. But my celiac is holding me back (which it have my whole life), in Sweden it's a very commonly known thing and you can order food almost everywhere that is gluten-free, so i have become very comfortable with living here with my celiac. And so I'm a little afraid that it's not so common in Japan and what i have read it isn't. So my question for anyone living in Japan on a gluten-free diet on the forum, how does it work out? Can you ask for gluten-free food at restaurants? And how easy is it finding gluten-free ingredients, such as soy sauce for example?

/Nicko

teehee Newbie

The first thing to do is research some of the older threads on  the forum as they contain a lot of good information. I've had an office in Japan for 30 years and although celiac for only 8 or so. I've not had a problem in japan once I could explain to the chefs about my allergy. They dont all get it but most of them do. Having to explain it in japanese is something you'll have to learn. In other messages on the foorum I posted the name of a few  english speaking doctors in Japan who can help with  language and celiac. There are also the popular  cards you can  download  explaining it in kanji. -- finding  gluten-free soy sauce is not always  easy  but you can get  things shioyaki  as well as go to health food stores like at Yokohama station and get the  gluten-free shoyu--  . Also you want to make sure you understand  miso. When miso is made with kome koji its not a problem but mugi -- barley miso can be.  Hacho & aka miso can go either way. I trained as a chef in Japan so I'm kind of spoiled and I have a lot of chef buddies  but finding things at  any izakaya is possible.  Finally, IF you can  find my old friend Hansg through the japan clubs in Sweden, He can help. He translates Swedish into japanese and worked for a number of years at the embassy in Tokyo. Great guy too.

Ken

 

Thank you very much for your information, i will try and search for the older threads, forgot about that before i started this one, sorry about that. This gives my so mush hope that it wont be difficulty at all living in Japan with celiac

as I first thought.

 

/Nicko

kenlove Rising Star

I'll be there in Nov. so if you would like to meet some chefs in Tokyo just  send me a message here. Do you know where you will be yet?   Bottom line is you have to be careful in Japan but its not a problem. There are   types of cuisinie like Yuba ryori which are gluten-free and amazingly good although more expensive. Good luck!

Ken

 
Thank you very much for your information, i will try and search for the older threads, forgot about that before i started this one, sorry about that. This gives my so mush hope that it wont be difficulty at all living in Japan with celiac

as I first thought.
 
/Nicko

  • 2 weeks later...
Pauliewog Contributor

I have lived in Japan for 20+ years and the past year and a half of that has been gluten free. I would not say it is easy at all. There is no knowledge of "gluten free" so no packaging is labeled. Some snacks are labeled for allergies and list wheat. But then there is fine print that says "processed in a factory or on equipment that uses wheat." To me, that is not gluten free. Risk is too high. I have eaten in a restaurant once since Dec. and that was a nice sushi place where I brought my own wheat free soy sauce.

 

If you plan to live here I think it is easier than just coming to travel. You can set up your own kitchen and cook. I make sure to prepare all my meals and take my food with me if I am out. With planning it can be done, but I would not say it is by any means easy.

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748

    TDeb
    Newest Member
    TDeb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.