Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Terry Wahls Protocol


thleensd

Recommended Posts

thleensd Enthusiast

Are any of you familiar with and/or trying the Wahls protocol? 

 

Dr. Wahls is an MD with MS that is treating herself through diet. Her story is incredible, and I think has great implications for Celiac Disease and other autoimmune disorders. Her TED talk is here: 

 

After limited recovery going gluten free, I went Paleo and started improving. I started the GAPS diet, and got even better, but not yet 100% Maybe 60% (fatigue, pain, brain fog). I started seeing a great D.O. and have added in limited potatoes and raw milk. I'm doing better... but I noticed when I don't eat enough greens, I don't feel as well. My DO has also greatly limited my daily sugars (no sweeteners, and only some fruits - mostly berries)

 

Enter Wahls protocol: Grain free (she's also dairy-free), mostly legume free (very similar to gaps), but her focus is on getting nutrients through diet. Each day, she advocates three cups of leafy greens, three cups of sulfur-rich vegetables, three cups of bright colored foods. In addition to that, grass fed meats, wild fish and healthy fats. She also advocates eating organ meats once per week and seaweed once per week. Of course, probiotics and ferments as well. She's on-board with many of the GAPS/Weston Price ideas. 

 

I'm experimenting with tweaking my diet to bring it to this level. I'm doing pretty well with the veggies and greens (although my low energy days are made worse when I don't have energy to make more!). When I eat this way for a few days in a row, I feel great. 

One thing I'm having trouble with is the organ meats. Grass-fed, organic is pricey and hard to find. Considering mail-order. I'm admittedly a bit scared by organ meats. Simply fear of the unknown, I know. I need to work that out. Also, I have trouble finding good fish that isn't $$$$. Fish in the store is notoriously mislabeled. Not going down that conversational road right now!

 

One thing she doesn't talk about is nuts. I'm currently cooking with (soaked, dehydrated) nuts... and some raw ones too - almonds and walnuts only, as well as sunflower and pumpkin. She also doesn't talk about eggs, but my DO wants me eating plenty of those, which I'm happy to do. 

 

I'll return and report as I can... meanwhile, have any of you tried this? Anyone interested in trying this?

 

For those of you that are super food science nerds like me (like I've become because of Celiac!), here is an expanded lecture by Dr. Wahls (complied on a paleo blog - scroll down) : Open Original Shared Link

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I'll take a look at it, but in the meantime, here is what I DO know: my lifelong friend Suze adopted a grain-free and sugar-free diet right after she was DXed with MS. Eventually, she went paleo, ... then, vegetarian....LONG before these diets were "cool" (I mean 25 years ago)

 

She eats POUNDS of veggies a day, plus soy for her protein (which I have tried to tell her is not necessarily a good idea--hormone

and thyroid disruption and all)..but she has kept her MS at bay, even running the Boston marathon at one point.

She is not in a wheelchair and she takes minimal pharmaceuticals. She is inspiring. :) and she agrees, she may have been a celiac

but we'll never know.

 

So, for some people, a certain "protocol" may work...and for others, it may be so restrictive and not at all helpful.

 

We all seem to be different when it comes to healing our bodies.

  • 4 years later...
plumbago Experienced
On 5/27/2013 at 4:46 PM, thleensd said:

Are any of you familiar with and/or trying the Wahls protocol? 

 

Dr. Wahls is an MD with MS that is treating herself through diet. Her story is incredible, and I think has great implications for Celiac Disease and other autoimmune disorders. Her TED talk is here: 

 

After limited recovery going gluten free, I went Paleo and started improving. I started the GAPS diet, and got even better, but not yet 100% Maybe 60% (fatigue, pain, brain fog). I started seeing a great D.O. and have added in limited potatoes and raw milk. I'm doing better... but I noticed when I don't eat enough greens, I don't feel as well. My DO has also greatly limited my daily sugars (no sweeteners, and only some fruits - mostly berries)

 

Enter Wahls protocol: Grain free (she's also dairy-free), mostly legume free (very similar to gaps), but her focus is on getting nutrients through diet. Each day, she advocates three cups of leafy greens, three cups of sulfur-rich vegetables, three cups of bright colored foods. In addition to that, grass fed meats, wild fish and healthy fats. She also advocates eating organ meats once per week and seaweed once per week. Of course, probiotics and ferments as well. She's on-board with many of the GAPS/Weston Price ideas. 

 

I'm experimenting with tweaking my diet to bring it to this level. I'm doing pretty well with the veggies and greens (although my low energy days are made worse when I don't have energy to make more!). When I eat this way for a few days in a row, I feel great. 

One thing I'm having trouble with is the organ meats. Grass-fed, organic is pricey and hard to find. Considering mail-order. I'm admittedly a bit scared by organ meats. Simply fear of the unknown, I know. I need to work that out. Also, I have trouble finding good fish that isn't $$$$. Fish in the store is notoriously mislabeled. Not going down that conversational road right now!

 

One thing she doesn't talk about is nuts. I'm currently cooking with (soaked, dehydrated) nuts... and some raw ones too - almonds and walnuts only, as well as sunflower and pumpkin. She also doesn't talk about eggs, but my DO wants me eating plenty of those, which I'm happy to do. 

 

I'll return and report as I can... meanwhile, have any of you tried this? Anyone interested in trying this?

 

For those of you that are super food science nerds like me (like I've become because of Celiac!), here is an expanded lecture by Dr. Wahls (complied on a paleo blog - scroll down) : Open Original Shared Link

 

 

[First let me preface my comment with: I understand this is an old post!]

I can only surmise from the grand total of 1 response that not many on celiac.com are doing that diet. But I am currently knee deep into the Wahls protocol in terms of reading and learning about it. The last week, due to a painful aphthous ulcer, I went sugar free. Not grain-free, quite, but nearly, and I just ate a buttload more vegetables than I normally do (which is a lot, normally), probably 4-5 cups a day. I feel like I have lost a little weight (my BMI is usually around 22 or 23) but I'm most concerned about the abdomen, of course. I feel like that area is less bloated than normal, is what I can say after a week. To go whole hog into this protocol, as with any diet, requires a huge commitment. I'd like to, but at the same time, I would want the support of other people and so far, that is not happening. I've been sugar free before. What that has taught me is how to drink coffee without sugar,a great thing to learn. This past week, though, I haven't even drunk coffee. Only water and green tea. Not getting empty calories from beverages is by itself huge.

This woman (Terry Wahls) makes so much sense. She is a great writer and communicator to boot. I am youtubing and downloading like crazy and have placed a hold on her book at the library. I am anxious to dialogue with others about it.

Plumbago

On 5/27/2013 at 4:46 PM, thleensd said:

When I eat this way for a few days in a row, I feel great. 

This is very true! In general this week, I can't think of anything that particularly bothered me, and really I wasn't even that hungry. What did concern me (and again, I didn't go whole hog into the protocol) was that I was less kind of interested in food, this has its pluses and minuses. I like to be inspired by food. Perhaps it just requires time to adjust.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,346
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.