Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Request More Tests....


taynichaf

Recommended Posts

notme Experienced

Little vent-My Mom is another story.  She tries to be helpful, except I've asked if she cannot loudly proclaim in the grocery store, "Do you see any of your gluten foods?"   I bite my tongue because I want to say, yes I see PLENTY of gluten foods, but I need gluten-free.  Do you think next time we're near the diet coke, I should loudly exclaim, "Do you see any of your aspartame beverages?"  end rant

 

 

LOL *snort* 'aspartame beverages'  that is too funny - i'm going to do that to my mother-in-law!  she is constantly trying to feed me cupcakes - i don't know if she is just dumb or what her deal is - but she does love the aspartame beverages.  ima hafta tell her sugar is the same thing don't worry about it hahaha - thanks for the chuckle :)

 

tinychef - settle down, now.  everything's gonna be alll right.  my son is a diabetic so let me tell you this:  it's hard to figure out what combination of things are going to make you feel better!  when he was first diagnosed his sugar was all over the place so we had to figure out how to feed him, whether his background worked better for him taking it in the morning or at night, should he have a bedtime snack, blah, blah, blah - it took awhile but he is doing well with it.  it's all a learning experience - you can have a million tests and still be paralyzed with no hard and fast answer.  but, yes, get your stuff together and ms. karen will help you sort it out.  we're all here for you. now, go wash your face, put on your big girl pants and let me see that smile.  yeah, that one  ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

And don't forget to clean your bathroom!

( maybe I should aim that comment about 6 foot high at my house?)

If you have all your Celiac lab work reports....post what you have. Give the "ref. ranges" and the answers. If it looks completely odd, message me. Maybe I can help you figure out what to post. If we need to, you can cover your name, address, hospital, etc and scan them and email them to me. Then I can explain what the ranges are or tell you the stupid doc didn't give you what you thought you had! Cause.....that never happens ( said sarcastically).

taynichaf Contributor

And maybe a few loads of laundry and clean your bathroom? :)

Hahahahahhaha! I actually do need to do my laundry... bad! Ha, i'll do that too:)

taynichaf Contributor

And don't forget to clean your bathroom!

( maybe I should aim that comment about 6 foot high at my house?)

If you have all your Celiac lab work reports....post what you have. Give the "ref. ranges" and the answers. If it looks completely odd, message me. Maybe I can help you figure out what to post. If we need to, you can cover your name, address, hospital, etc and scan them and email them to me. Then I can explain what the ranges are or tell you the stupid doc didn't give you what you thought you had! Cause.....that never happens ( said sarcastically).

I just got more blood work friday... So I should get the results by this coming friday, and then i'll post! The doctor also did other tests. She did one to check for iron deficiency anemia... So if that says im anemic again, I think I can tie that back to eating gluten again(last time I got tested ai was gluten light/free for awhile and it came back borderline, but normal) But I will deffinatly talk through it all with you, thanks.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,589
    • Most Online (within 30 mins)
      7,748

    MM-110722
    Newest Member
    MM-110722
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.