Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found A Great Doctor For My Daughter!


greenbeanie

Recommended Posts

greenbeanie Enthusiast

I thought I'd post something happy for once...

 

After six months of trying to find a good PCP for my four-year-old daughter, we finally met with a superb doctor yesterday who actually read her health history and agreed that we do have legitimate concerns about the ongoing digestive problems she's had since infancy! 

 

I'd been seriously discouraged because her previous doctor was awful, then we called four different pediatric practices and waited for months for an opening on their cancellation lists but never got in, then finally got an appointment with a family practice doctor who took one look at my daughter's file and said that all this digestive stuff was "way too complicated" for her and refused to even give my daughter a routine physical. A very kind nurse stopped us as we were leaving (very discouraged and near tears), and she finagled an urgent care appointment with one of the other doctors in the practice. He took one look at the long list of symptoms I'd brought (which were all well-documented in her file - but no one else had even bothered to read it) and said that of course it made sense to order blood tests for celiac and anemia, and of course we should see a pediatric GI doctor. He ordered the tests right then and there! It wasn't the full panel, but at this point I was just so grateful for his help that I wasn't picky. And the best part was that he agreed to be my daughter's new PCP, even though he was officially not accepting new patients. We have an appointment to see the pediatric GI doctor in July. 

 

After years of frustration, my daughter and I are finally both on parallel tracks to figuring things out! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Great!  :)  I hope this works out for you all. Sub-par doctors who won't put in an effort to help can really wear down after a while....

GottaSki Mentor

Hip...hip...hooray!

 

I'm doing a happy dance for you...sucks that finding a doctor that listens is the exception rather than the rule, but very happy for your family today!!!

1desperateladysaved Proficient

I hope this will bring about some happy changes for you all!

 

Diana

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,069
    • Most Online (within 30 mins)
      7,748

    shyloh
    Newest Member
    shyloh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.