Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Wanting To Attend Any Social Functions Involving Food


Shanmegjilal

Recommended Posts

tarnalberry Community Regular

Thank you so much for all of the input.I'm trying so hard to not let this ruin my life but instead of getting better at dealing I feel like it's getting harder.I just feel like EVERYTHING involves food.I go and pretend I'm fine but inside I'm so upset...It's definitely the psychological part of this disease that's wearing on me.I guess somedays are better than others and I don't want people to not include me yet I just dread anything where food is involved....If I don't want to go to someone's party because I feel awkward and just don't feel like explaining my restrictions is that ok or am I giving in to this??? What excuses can I use to not go without saying "my diet"? Thank you

 

Same thing I tell my 3-year old.  "Wheat makes me sick.  So I don't eat it."  End of story, really.  If they press, you can either take the "it's called celiac disease, and it's an autoimmune reaction that damages the intestines preventing me from absorbing nutrients in food leaving me very sick" route or the "I'm totally tired of talking about my medical history.  How was your weekend?" route.  Short, sweet, SIMPLE, but honest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Renaye Contributor

I don't like to go to parties either. The ones that bother me the most is going to my in-laws where food is heaven and everyone tries to go on a diet.. My kids always come home feeling sick. I am amazed of my attitude towards food now because there are really so many foods that is unhealthy. Even my kids notice the difference. What bothers me the most is that my mother in-law really tries to accomodate me by fixing me a baked potato, plain grilled meat and takes some vegetable out before dumping a sauce over it for me as I am diary free also. So I have this plate of food sitting on the counter, plain, while everyone is filling there plate with "real" food. It makes for a long day when you are there for both meals.

So the "tables turned" when I had my son's b-day party and I could eat almost everything. No one could believe it!!!

My suggestion is that if you don't feel comfortable, stay at home, just as long as your immediate family is ok with it. "I have other plans" should be enough for a social gathering but find something to do if you don't go because sitting at home and thinking about it will not be good for you either.

Sometimes when it is a long function, I would come later. It will get easier. I am still dealing with it. Bring a side dish that is inexpensive to share that you can make a meal on. No one may notice the difference or as suggested before, eat something before. I am still struggling with vacations. So far I booked a suite and it is a few blocks from Trader Joes, so I hope I am in good shape for my trip to Chicago!! Good Luck!!

Renaye

cap6 Enthusiast

Perfect. I've found it's all in the attitude.

But I hate. And I do mean HATE "I'm sorry", or "oh, that's terrible". You know what's terrible??? Being sick. And listening to other people who are sick, when they complain of symptoms that you know have a strong chance of being food related (and watching them shove that food down their throats).

That's terrible. That's who I feel sorry for.

Me, I'm BETTER!

Amen!!!    Ahhh  the replies the float thru my mind as I am smiling.......   lol!

Carolann444 Rookie

I know how you are feeling.  I have been on the diet again now for a few months.  After being told I don't have celiac to now finding a good doctor who has diagnosed me with celiac.  I feel great when I am on the diet.  But it gets old when people bring food into work, or everyone wants to go out to eat, or you go to a wedding and there is everything you can't eat, etc, etc.  I feel like I don't want to do anything either because I have very severe reactions and I can't afford, not like any of us can, a mistake with food.  It is difficult and I guess it gets easier but sometimes I feel like I just don't know what to do and I"m not prepared.

Hello, I have been going to parties,BBQ's,etc for the last few years since being dx'd but now I have started to decline invitations because I find it so hard to go and watch everyone else eat and comment on how good everything tastes and  having to pretend it doesn't bother me. I find it's easier to eat at home first rather than bring my own food to events because it's hard to heat it etc. with a lot of people around and I've had people ask to try my food,etc!!!.  People ask what they can get for me to have and can't understand why I won't use their grill,etc.I just don't like explaining it all the time....I guess i"m kind of burnt out from this!! I try but I feel like I'm becoming more and more antisocial....Anyone else go through this? Thanks

Carolann444 Rookie

I got sick of the social awkwardness that comes with bringing your own food or having to explain, so I stopped going. I'm not really involved in much that would require me to go, (I don't do church or anything like that) so it's usually not a big deal for me. When I have social eating functions, I have them at my house and I cook everything. If friends want to pitch in, I have them bring the raw ingredients and help me cook.

 

It isn't ideal, and I'll admit that I've become pretty depressed about the state of my life. I miss eating in restaurants, being normal...etc. I also am in recovery from an eating disorder that I developed as a result of gluten making me fear food. Since being in recovery, things have gotten a little better. I'm trying not to fear and just to trust that things will be okay if I do eat something. I'm also looking into enzymes that might (although I don't want to get my hopes up) help protect me from trace amounts from cross contamination. My main goal is to be able to eat out again.

Oh wow, I have had similiar things happen to me.  I was afraid to eat for awhile and lost weight and my doctor really got onto me about it!  I think that snapped me out of it some but I still think food is evil lol.  I had wondered if anyone else goes through this too.  I really need to be able to talk with others with celiac since no one around me seems to understand the severity of it.  And it seems I explain over and over and people don't get it.  I don't blame them though since I didn't understand it when I first learned about it.  I told someone the other day, you don't know what its like to go to a restaurant and see people pick up a menu and order whatever they want!  I know its healthier but it does make me feel like a freak or something.

christianmom247 Explorer

I was diagnosed with celiac over a year ago, and it's still hard to sit and watch everyone else eat food that I can't touch.  But it's no ones' fault--it's just the way it is.  I have this problem, but so many others I know have bigger burdens to bear.  So I just bring my own food, tell people honestly why I can't eat what's served, and count my blessings that the gluten-free diet has made me healthy again!

karichelle Newbie

When we had my mother-in-law's birthday party, my husband and I volunteered to bring the cake. We got a gluten-free & vegan cake from an awesome bakery (the same one who made my bday cake last year) and took it, and everyone loved it.

 

This could be a good strategy for family events.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,176
    • Most Online (within 30 mins)
      7,748

    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...