Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Still Healing Or Is It Cc

niese

Recommended Posts

niese Explorer
niese
Posted
  • Author

That friend I mentioned above also had C.difficile and after taking all the antibiotics, then the MC raged and she was a mess. My intestinal tract was inflamed from mouth to rectum and I believe the probiotics helped reduce the inflammation and get the bowels regulated. I had bowel issues for my entire life. Not any more.

Again, just a suggestion.

 

Maybe this will shed more light?

 

 

Open Original Shared Link

thank you I learned alot from that, running out to get some probiotics  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

thank you I learned alot from that, running out to get some probiotics  :)

check them for gluten-free, DF status....and multi-strains! 

niese Explorer
niese
Posted
  • Author

check them for gluten-free, DF status....and multi-strains! 

confused what is DF status and multi strains mean?

IrishHeart Veteran
IrishHeart
Posted

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

niese Explorer
niese
Posted
  • Author

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

duhh on the DF I just couldn't figure that one out.  Culturelle is the one I had my eye on, only one our Walmart has and it just right on package gluten free so I was happy.

Gemini Experienced
Gemini
Posted

No seperate toaster yet but then again I haven't had bread in over 2 months, refuse to pay those high prices and I haven't had the energy to bake but when I do yes I will be getting one.  My thought is to get a toaster oven however I just know it will be used for gluten food but I figured its easier to clean it out before I use it, any thoughts on that

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster oven myself and like them very much.  I have a gluten-free household to it's easier for me.

niese Explorer
niese
Posted
  • Author

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster ooven myself and like them very much.  I have a gluten-free household to it's easier for me.

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

 

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

niese Explorer
niese
Posted
  • Author

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

I hear that

frieze Community Regular
frieze
Posted

I hear that

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

IrishHeart Veteran
IrishHeart
Posted

I hear that

 

I know it may be difficult considering you live together, but honestly, she will have to take your diagnosis seriously or risk having you ill

indefinitely. Your husband surely must realize this?

 

This can be done without causing a fight. You just need a little space for your things. You know best how to handle it, but many people on here co-exist with WEs (wheat eaters) without any trouble at all 

and if you need some assistance with that, they will come to your aid.  :)

Gemini Experienced
Gemini
Posted

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

niese Explorer
niese
Posted
  • Author

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

niese Explorer
niese
Posted
  • Author

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

we both have tried to talk to her over and over.  The main problem is she thinks all doctors are stupid and don't know what they are talking about.  When I first told her I had Celiac she looked it up online and read some article that said gluten-free diet doesn't show much improvement for ADHD and said see this gluten-free diet won't work for you. Tried to point out they are referring to ADHD I don't have that plus the article was dated 2006 and so much has changed since then.  She's the type that knows everything about nothing.  Don't get me wrong I do love my mother-in-law we get along wonderful, but sometimes she gets something in her head and you can't get her to understand nor accept the facts.  I guess she feels this is her home and if I were to change anything she lost control of her castle, but I just have to find away to work this all out.  

frieze Community Regular
frieze
Posted

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I wouldn't trust her not to sabotage you.

IrishHeart Veteran
IrishHeart
Posted

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I would trust her not to sabotage you.

 

 

This! I totally agree.

frieze Community Regular
frieze
Posted

This! I totally agree.

sometimes ya gotta work with what you're given, banging your head agin the wall, ain't gonna change 'er.  Y'all will gest end up with a soar hade!

1

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.