Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fingernail Problems


dburkett

Recommended Posts

dburkett Newbie

Hi,

I'm about 6 months gluten free and ever since I got diagnosed and eliminated gluten my fingernails have been doing strange things. First, about a month or two into my gluten-free diet they began growing in very white, and grew that way about halfway up, then the white stopped there (my nails continued to grow, though). I assumed maybe this was my healthy nail starting to grow. The more strange thing started about 2 months ago. The tips of my nails, 3 on left hand 2 on right, so far) are starting to separate from my nail beds. It's a little uncomfortable when it's happening but not actually painful. Everything I've looked up doesn't seem to fit. I'm sure it's Celiac related, but I've read iron defiency can cause it and I'm on iron supplements for the first time, so my iron is higher than it ever has been. My nails never gave me real problems before, so why now? I see a Celiac specialist and she doesn't know why and suggested I see a dermatologist, but I haven't. I figured if the Celac specialist doesn't know, I'll only get frustrated when the dermatologist doesn't know what's going on. Has this happened to anyone? Anyone have thoughts on what's going on?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Take your doctors advise and go see the dermatologist. They know much more about skin, hair and nails than a celiac specialist will. The issues you are describing could be signs of something other than celiac going on so get that appointment as soon as you can.

frieze Community Regular

Hi,

I'm about 6 months gluten free and ever since I got diagnosed and eliminated gluten my fingernails have been doing strange things. First, about a month or two into my gluten-free diet they began growing in very white, and grew that way about halfway up, then the white stopped there (my nails continued to grow, though). I assumed maybe this was my healthy nail starting to grow. The more strange thing started about 2 months ago. The tips of my nails, 3 on left hand 2 on right, so far) are starting to separate from my nail beds. It's a little uncomfortable when it's happening but not actually painful. Everything I've looked up doesn't seem to fit. I'm sure it's Celiac related, but I've read iron defiency can cause it and I'm on iron supplements for the first time, so my iron is higher than it ever has been. My nails never gave me real problems before, so why now? I see a Celiac specialist and she doesn't know why and suggested I see a dermatologist, but I haven't. I figured if the Celac specialist doesn't know, I'll only get frustrated when the dermatologist doesn't know what's going on. Has this happened to anyone? Anyone have thoughts on what's going on?

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,115
    • Most Online (within 30 mins)
      7,748

    Catherine Driscoll
    Newest Member
    Catherine Driscoll
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.