Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed. Wondering If This Could Be Celiac Or Ibs?

chucklestheclown

Recommended Posts

chucklestheclown Newbie
chucklestheclown
Posted

Hello. I'm wondering if what I'm experiencing could be Celiac's or just severe IBS. I gave birth to twins in May of 2012, and starting about 6 weeks postpartum, I started experiencing bouts of diarrhea IMMEDIATELY after eating anything. Following the diarrhea, I started having quite severe gallbladder attacks about 3 nights per week. On 7/24, I had my gallbladder removed.Following my gallbladder surgery, on 7/29, I lost one of my children to SIDS. After this, the symptoms I had prior to the surgery started to come back. Now, I've included all of this, because I've read that Celiac's can be trigged after a life-changing event, and all three of those happened in the course of three months. Since then, I've had two weird rashes that I cannot explain, like poison ivy, weeping, and pretty itchy. The first appeared on my bum, and was there FOR weeks. A few weeks after that one went away, another one started around my eye on my face, and was the same way. It only lasted about a week or so. I'm certain neither of these were poison ivy, as I had spent those months confined to my house following the death of my daughter. 

 

 

My diarrhea is the worst. It starts about 15 minutes after eating anything with severe abdominal pain. it comes in spurts you could say. It'll bother me for a few weeks, then be gone for a few weeks, etc. This spurt has lasted well over a month. My primary care doctor suggested IBS, but I told her that spicy and greasy food doesn't bother me the same way that a subway sandwich or a hot dog does. I've got a referral to see a G.I. on Monday (6/24). I'm curious if I'm  heading in the right direction for this? Or if I should have just accepted the IBS diagnoses from my primary care doctor and taken the meds? Does this sound like Celiac? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

OH! I'm so sorry about your baby! That has to be one of the hardest things to get past!

Yes. I would say you are on the right track with Celiac. Let me look up a couple of things you can print and take with you to the GI. You can keep them in your purse and have them in case he blows you off or doesn't know much about Celiac. Be right back....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

I'm so sorry for your loss.

I agree with Karen, you should get tested. This report has lots of info and lists the most common tests. Open Original Shared Link

Best wishes.

chucklestheclown Newbie
chucklestheclown
Posted
  • Author

OH! I'm so sorry about your baby! That has to be one of the hardest things to get past!

Yes. I would say you are on the right track with Celiac. Let me look up a couple of things you can print and take with you to the GI. You can keep them in your purse and have them in case he blows you off or doesn't know much about Celiac. Be right back....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Thank you for these sites! I will try to remember to get them printed and take them with me. When my primary care doctor made the appointment for me, I mentioned to her that I have a feeling it may be Celiac's or a gluten sensitivity. So, hopefully my doctor mentioned that when making the appointment with the GI, so they know this ahead of time. :) 

I've also suffered from migraines for the last 9 years. I also have a left temporal fossa arachnoid cyst, and was going to be tested for peripheral neuropathy before becoming pregnant with my first child. I put the test on hold due to the pregnancy and no medical insurance, and never followed through with it. I'm reading that this too can be related? 

kareng Grand Master
kareng
Posted

Migraines are a symptom. Not sure about the cyst. I know I have not had more than 4 migraines in the 3 1/2 years I have been gluten-free. Those 4 were not very bad and went away with Excederin

chucklestheclown Newbie
chucklestheclown
Posted
  • Author

Migraines are a symptom. Not sure about the cyst. I know I have not had more than 4 migraines in the 3 1/2 years I have been gluten-free. Those 4 were not very bad and went away with Excederin

Oh I know the cyst isn't, it's genetic.  :P For years I thought the migraines were a result of the cyst, but my neurologist insists that they're asymptomatic.  I've been through oodles of prescriptions for them,and nothing has helped. I'll be somewhat excited if everything goes as planned and I can start becoming gluten free. I'm excited to hopefully start feeling better! 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748
    dalimoda
    Newest Member
    dalimoda
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.