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Thyroid Med Back Order

Colleeney

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Colleeney Apprentice
Colleeney
Posted

Help, what are people doing with the manufacturer's backorder on Levithoid? I was put on Synthroid am had gluten reactions. I'm so discouraged. I take a very small amount so it took 2 months for me to figure it out. Actually my Obgyn did noting my escalating pain was coincidentally when they changed the meds. I became so horrible to my family, starting losing muscle mass despite my continuing with plates and trying to run, foggy brain. I want to scream now because I am having to restart recovery from reactions AND am not on any thyroid meds. Haven't gotten a call back from primary as I don't think she knows what to do. Any help??

 

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kareng Grand Master
kareng
Posted

Many of us use Synthroid safely.

shayre Enthusiast
shayre
Posted

Help, what are people doing with the manufacturer's backorder on Levithoid? I was put on Synthroid am had gluten reactions. I'm so discouraged. I take a very small amount so it took 2 months for me to figure it out. Actually my Obgyn did noting my escalating pain was coincidentally when they changed the meds. I became so horrible to my family, starting losing muscle mass despite my continuing with plates and trying to run, foggy brain. I want to scream now because I am having to restart recovery from reactions AND am not on any thyroid meds. Haven't gotten a call back from primary as I don't think she knows what to do. Any help??

I feel your pain!  I could not tolerate Synthroid at all.  I had horrible headaches and had terrible brain fog.  This was before I knew that I had trouble with gluten at all.  Well, if it has gluten in it...now I know why.  I react to even the smallest amounts of contamination.  I put myself in the super-sensitive category on this site, and fortunately those people helped me a ton! Very small amounts build up in me also.  After 3 yrs of being on Synthroid and feeling like crap my endo put me on Armour Thyroid.  This is the natural version made from dessicated pig thyroid. I must say...THANK GOD!!!  I felt so much better, and for the first time...my thyroid was regulated too.  My thyroid has been stable for about 3-4 yrs now, and it no longer is an issue for me at all with how I feel.  There is a generic version of this too from ACELLA, which I switched to because of insurance.  My endocrinologist told me that EVERYONE that he switches from Synthroid to Armour Thyroid love it  and NEVER want to go back to Synthroid.  That poses the question...why start people on Synthroid in the first place?  Why not start them on something natural?  That would make too much sense probably.  I urge you to go get this prescription ASAP!!!!!!!!!!!!  And maybe start checking out the super senstive forum on this site.

Adalaide Mentor
Adalaide
Posted

Take a generic? There are generic manufacturers of levothyroxine, it seems silly (imo) to switch medications over the name brand not being available for a while. If it were me I would simply tell my doctor I wanted to be back on the medication that worked and didn't cause me any problems, and find a local pharmacy that supplies it through a manufacturer that you can verify the drug is gluten free. (Always do this before you fill a prescription, you can even call around before you call your doctor to see what "brand" they would use for X drug of X strength then call the manufacturer.)

Colleeney Apprentice
Colleeney
Posted
  • Author

I feel your pain!  I could not tolerate Synthroid at all.  I had horrible headaches and had terrible brain fog.  This was before I knew that I had trouble with gluten at all.  Well, if it has gluten in it...now I know why.  I react to even the smallest amounts of contamination.  I put myself in the super-sensitive category on this site, and fortunately those people helped me a ton! Very small amounts build up in me also.  After 3 yrs of being on Synthroid and feeling like crap my endo put me on Armour Thyroid.  This is the natural version made from dessicated pig thyroid. I must say...THANK GOD!!!  I felt so much better, and for the first time...my thyroid was regulated too.  My thyroid has been stable for about 3-4 yrs now, and it no longer is an issue for me at all with how I feel.  There is a generic version of this too from ACELLA, which I switched to because of insurance.  My endocrinologist told me that EVERYONE that he switches from Synthroid to Armour Thyroid love it  and NEVER want to go back to Synthroid.  That poses the question...why start people on Synthroid in the first place?  Why not start them on something natural?  That would make too much sense probably.  I urge you to go get this prescription ASAP!!!!!!!!!!!!  And maybe start checking out the super senstive forum on this site.

Thanks, I figured out I'm super sensitive a few months ago and as you the build up of a trace amount almost drove me crazy. Elsewhere in the forum history there were concerns about Armor. Is it a specific name I should ask for?

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