Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Needs To Be Done

Streetlegal

Recommended Posts

Streetlegal Apprentice
Streetlegal
Posted

I suppose this is venting more than anything, but, as I am going through a really bad patch where my stomach/intestines sound like a washing machine, and I am downing imodium and pepto like candy, I really feel that enough is not being done to help celiacs.

 

I am sick of the lack of choice, particularly the lack of texture in the food I eat.  I eat pretty much the same stuff day in day out.  Of course, if you read the media and the chattering classes, the view is that gluten-free is everywhere.  Well, no it ain't.  I live in San Francisco and I still struggle to eat out.  I have started to take risks . . . and ended up sick.

 

More needs to be done.  More general awareness, better chef training, more options.  

 

I wish so much I was wealthy like all these so-called successes.  You would then see the success I would make of my global chain of gluten-free restaurants.  Seriously, that is all I care about nowadays--my dream of opening wonderful restaurants instead of the pathetic measly so-called choices I am meant to get excited about.

 

I feel patronized and robbed by restaurants, as if they are gracious to offer me ONE crappy gluten-free meal.  It is abysmal.  Give me the money and I will do what needs to be done.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

here are some reviews from other gluten freers of various places to eat in SF:

 

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

kareng Grand Master
kareng
Posted

San Fransisco is one of the better places to eat gluten-free. Of course, I'm referring to real restauruant's not fast food. Nice places will do a better job than a fast food place.

I have only been to SF 1 day since I have been gluten-free. I had a lovely breakfast at Mariposa. I can't see how they could have glutened you for breakfast or lunch. I didn't have time to try any of the other places, unfortunately.

You certainly aren't eating out everyday? That isn't good for anyone, gluten-free or not. There are lots of wonderful " normal " foods to fix at home. Many foods never have gluten in them so you don't even have to change the recipe.

https://www.celiac.com/forums/topic/75238-the-whats-for-dinner-tonight-chat/page-423#entry876962

https://www.celiac.com/forums/topic/87765-what-did-you-have-for-lunch-today/page-19#entry876904

Just a disclaimer about these links - Loves is a crazy good gourmet cook. If you don't aspire to that, you might just read her posts for fun

Streetlegal Apprentice
Streetlegal
Posted
  • Author

San Francisco is one of the better places--and that is what makes me so mad.  SF is not nearly half as good as it should be.  I want to be able to live a life where I can go out and expect, say, one in every four or five restaurants to be gluten aware, instead of making the long side-trips to the same few restaurants again and again and again.  I am fed up of being treated like a second-class citizen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.