Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who See Gastroenterologists


seraphim

Recommended Posts

seraphim Contributor

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Monnie1229 Newbie

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

kareng Grand Master

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

kareng Grand Master

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I'm curious- if you have never been to a GI, how were you diagnosed with Celiac? So few people have a family doc that feels comfortable diagnosing with just blood tests, symptoms and results. It might be helpful for others to hear your doctor's process.

seraphim Contributor

Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

seraphim Contributor

I also did enterolab but I know many of you don't accept that but it got rid of those symptoms I was having and my family doctor has celiac listed on their system. Biopsies and blood tests have been known to miss it as well. They can't always get to the area of the bowel most affected. I know I'm not glutening myself just for an "official" diagnosis. I felt too horrible.

kareng Grand Master

Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

I wasn't answering you - I quoted the new person, Monnie. She seemed to need a little info.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seraphim Contributor

Sorry on my kindle I didn't even notice that. I thought you addressed it because of a couple threads I have regarding histamine etc.

seraphim Contributor

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

Monnie1229 Newbie

Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

I know that celiac is not an allergy, but I have seasonal allergies for ALL seasons (no off season for me) So my 1st thought was to do allergy testing. I immediately stopped eating wheat and felt better then started looking up sites for Gluten Free recipes and came across this site. I have to follow up with my Gastro Dr in Sept. cause I had the appt already and when I tried to get an earlier appt they didn't have any. I have seen that you have to be eating wheat for the testing and am not looking forward to going back to feeling that way.

Monnie1229 Newbie

Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

I will make sure to ask my Gastro Dr about those tests. I also want to know exactly what is wrong, but do not look forward to feeling bad again because I have to eat wheat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,922
    • Most Online (within 30 mins)
      7,748

    gizmoziz
    Newest Member
    gizmoziz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.