Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Gluten Accidentally, But Didn't React! Why?


katiehammond

Recommended Posts

katiehammond Newbie

Last night I went out of my comfort zone and tried a new restaurant, Tin Drum Asian Cafe.  I ordered the sweet and sour stir fry with sauteed chicken from the gluten free menu.  The food was delicious, but it wasn't until after I had devoured ALL of the chicken that I realized the chicken was not sauteed, but fried. Fried in a gluten-full breading that I have been fearful of for the past 3 and a half months. I do not know why I did not notice that the chicken was fried when they brought out my bowl, but it did not take long afterwards for me to begin to panic.  This was the first time since my diagnosis in April that I had eaten a substantial amount of gluten.  

 

My usual symptoms of gluten poisoning include dull aching pain in my upper abdomen that begins about 30 minutes after eating and lasts for a few hours.  Last night, however, I felt no pain at all! This was exciting, but also confusing. What would cause my body to not react to the gluten this particular time? In the past I have reacted to meals at restaurants where I could not identify the source of the gluten. It doesn't seem to make sense to me.

 

Does this ever happen to anyone else? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

As you ordered from the gluten free menu, it is possible that your chicken was fried or sauteed in Rice Flour.  P.F. Changs does the same using rice flour, and lightly dusts the chicken, for several of their gluten free dishes.

 

But, yes, sometimes... often times, things are just a mystery. :rolleyes:

dani nero Community Regular

This isn't the first time I read about someone consuming considerable amounts of gluten and having a reaction different from what they were expecting. The same thing happened to someone who had been gluten free, then started eating toast for their gluten-trials. I'm not sure if their story ended with a late reaction however. Let us know if you start reacting, as I'm really curious. 

 

Even if you're not symptomatic, you should probably still double up on probiotics and drink a lot of water. 

notme Experienced

since i have been gluten free for quite awhile, my reaction to getting glutened starts slowly - headache, neck pain, etc,  soooooo tired and very, very snippy - full on 'validation' doesn't come for 2 days for me.  gives me time to clear my schedule.  for 14 days.........   :(  so far that has been my normal 'glutening' - it used to fool me into doubting if "those doctors" weren't wrong.  AGAINNN   :(  but no, just delayed.

 

hi, i'm arlene, and i have celiac....................

 

edited to add:  what dani says:  i would probiotic up and drink alots of water.  also wanted to add that i have avoided being glutened since february, so it's sort of a record for me.  the longer you keep at this, the better you get at it  :)  

Adalaide Mentor

I get pretty immediate symptoms when it happens to me, but it passes (lol) quickly. Sort of. I then have the same time frame of about 2 days to clear my schedule, clean my house, get ready, because I am about to become useless. I get to be useless for about a month with another 2 weeks afterward where I only feel mostly pathetic.

 

At home, I made breaded chicken balls. They look exactly like the sweet and sour chicken/pork/whatever you get at any take-out place. They are gluten free and are made so quite easily. There is no way based on appearance or taste that anyone would know that they aren't your standard take out "breaded" chicken. (Not breaded at all, because it is done entirely with starches and rice flour, which doesn't seem far fetched to be completely natural in an Asian kitchen. Did you ask them if it was accidentally the wrong thing or are you simply assuming it was based on appearance?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748

    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.