Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiacer


plittrell

Recommended Posts

plittrell Newbie

So I found out in Nov 2013 I have celiac. Though it is getting easier to handle the limitations, Some of my family and co-workers just don't get it. Cross contamination has been a huge issue for me. How do I deal without sounding like I need a pity party for one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

(psst!  it's only july ;)  )  (or do you know the winning lottery numbers - :D)  

 

cc IS a big deal!  my husband came home from hunting once and was excitedly telling the tale of his latest conquest while i was making a huge pot of spaghetti sauce.  he ripped off a piece of (gluteny bread and dipped it right into the WHOLE POT!!!  DAHHHHH!!  i was all like:  i hope you like sauce because you just made that ALL YOURS.

 

different things work to convince/educate different people.  for my kids/grandkids, i wrote a def metal song:  DON'T TOUCH MY CREAM CHEEEEEEZZZZZZZZZZZZZZZZ!!!  AURGHHHHHHHH!!  i sing it to them if they need a reminder.

 

my buddies drink, so they need the sharpie in big letters GLUTEN FREE to remind them not to touch my stuff.  my bestie eats everything without reading that, so i get 2 packages of (for example) ham and i hide one so she doesn't stick her hand right into the whole thing as she is likely to do :)  i love her, but if there's 2 bags of chips, she will contaminate the brand that i can eat.  

 

everybody, after 3 years!, is getting better at it.  if they have a doubt, they ask or eat something else.  i came home one night and freaked out because somebody *moved* my jelly and we had a house full of college kids........  so, freaking out is an option lolz one good hissy fit goes a long way  :)  i'm sure there are others on here who have good suggestions - welcome and good luck!

bartfull Rising Star

Pretend you are your child. You wouldn't let anyone contaminate your child's food, right? And you wouldn't tolerate anyone make fun of your child or not take his disease seriously, right? Well, you just put your foot down, tell people you have a real medical need and that it should not be an issue for them whatsoever. YOU are the one who has to deal with the diet, and YOU are the one who has to deal with the consequences of contamination. If they have a problem with you bringing your own food to an event, it is THEIR problem.

 

Perhaps if you point out to them that they would never say or do those things to someone with a peanut allergy? And when they say "A peanut allergy can kill a person but a little wheat won't kill you", you can say, "No, but it'll give me what feels like a severe case of food poisoning, so unless you're willing to eat a little bit of e coli infested meat so we can be sick together, let's just drop the subject and let me take care of my own health."

niese Explorer

Pretend you are your child. You wouldn't let anyone contaminate your child's food, right? And you wouldn't tolerate anyone make fun of your child or not take his disease seriously, right? Well, you just put your foot down, tell people you have a real medical need and that it should not be an issue for them whatsoever. YOU are the one who has to deal with the diet, and YOU are the one who has to deal with the consequences of contamination. If they have a problem with you bringing your own food to an event, it is THEIR problem.

 

Perhaps if you point out to them that they would never say or do those things to someone with a peanut allergy? And when they say "A peanut allergy can kill a person but a little wheat won't kill you", you can say, "No, but it'll give me what feels like a severe case of food poisoning, so unless you're willing to eat a little bit of e coli infested meat so we can be sick together, let's just drop the subject and let me take care of my own health."

I like how you put it about the e coli, I will be using that line.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.