Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Months Bloody Diarrhea


buttertoffeegal

Recommended Posts

buttertoffeegal Newbie

Hey all, any suggestions/help would be appreciated to work toward solving my issues. I want to lay this out as easy as possible but be thorough--

 

- Diagnosed with celiac Jan 2012. I never "cheat"; rarely eat out. I'm 100% confident this issue is not directly related to gluten.

- Feb 2012 red blood in my stools off/on. Always when taking melatonin. I was stressed at work & thought that was the issue too.

- The blood was (and still is) always associated with an urgent feeling to go that is sprung on me.

- Quit job end of Feb - issue stopped. Bloody again in April seriously the day after I took melatonin. I've heard that people with autoimmune disorders may have problems with it and so I stopped.

- Went to the doc in April for an unrelated issue and mentioned that the blood started up again. Doc checked for internal hemorrhoids and found none; wasn't too concerned.

- I now have bloody diarrhea. Daily, multiple times a day (sometimes as much as 5 times)

- When not bleeding, stools were pale, narrow, small, ribbonlike for about a month. Now constant diarrhea.

- Stool is mucousy; blood bright red. If shaped like a regular (small) poop instead of a big mess, it will "disintegrate" upon flushing.

- Associated "wet farts" that will leave what is best described as minor amts sediment in the toilet as well as red blood.

- I feel very little pain unless during those urgent moments. Pain is minimal. Constantly feel bloated though (high up around stomach/belly button). Have throbbing pain ocassionally on lower right pelvic area and doc ruled out ovary issues w/ultrasound. Occassional pain on right side very close to belly button. All in all the pain is fairly insignificant. 

- Constant headaches/fatigue/neck pain/eye aches EXACTLY like before I was diagnosed with Celiac disease. I am not anemic. The doc checked this week.

- Considered milk protein intoler. and stopped all milk (even butter) and eggs. No help (though I did get milk in my diet half way through).  I am back to eating milk and eggs because I felt it didn't change anything. I have heard that responses are delayed but reasonably how much?!

- I eat *very* minimal amts of sugar; no soda in about 3-4 months (it causes me severe stomach aches and acid reflux). Only processed foods generally are gluten-free Udi's bread and Van's gluten-free crackers. Other than that I eat pretty much whole foods.

- I have lost 12 lbs in 4 weeks. I don't consider this a lot (have a lot more to go) and am exercising a lot more so this is good to me. When not exercising/watching my sugars I don't gain or lose at all even with all of the diarrhea issues.

- Medications: Birth control (Tri-Nessa), complete multi-vitamin for women, 2000 ius of Vit D, and 2 probiotics (PB8). 

 

Okay, I know that was a lot... So I went to the quick care a few days ago after a month of trying to control this issue with food to no avail and the doc looked at me like I was crazy. She said there was nothing that she could do for me except make sure that I wasn't anemic and check a stool sample for parasites. I was hoping for an antibio or something cuz the gut issues seem to indicate inflammation and infection. I was very concerned with the anemia because when I was diagnosed with celiac disease I needed to get an iron infusion. I'm okay on iron apparently. I have yet to provide the stool sample but will do so tomorrow. The quick care doc said I need to see a GI doc and I have no insurance. She straight up said that a GI will likely not see me without cash or insurance so I'm out of luck.

 

I'm looking for any suggestions. I just hope to get the bleeding under control and work toward healing my gut. I am considering the BRAT diet for a spell but can't live on that. I'm also considering the hardcore GAPS diets and a million other things to work this out before seeing a GI but I don't want to be stupid about it. That's a long time to be bleeding every time I go to the bathroom.

 

Suggestions? THANKS!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



whitepine Apprentice

Hi there,
Sorry to hear that you are having such a hard time with your health. It is very difficult when you are constantly unwell and your doctor isn't budging about things. It does sound like you have a lot of inflammation and even though you aren't anaemic, blood in the stool is usually good cause for concern. The only thing I can suggest is to stop taking the birth control and see what happens. I have found that taking birth control has drastically increased my problems with my bowels and stomach.

 

Your symptoms seem almost ulcerative colitis like in nature. Have you ever had a colonoscopy, maybe this is how you were diagnosed a celiac? Has your doctor checked for appendicitis? It is possible to have chronic appendicitis.
Do you take any pain killers? These can cause problems with gastrointestinal bleeding if you take non steroidal anti inflammatory drugs like ibuprofen, naproxen, and asprin. If you are , stop or cut back or take aacetaminophen only when you really really need it.  

Hope this helps.



 

buttertoffeegal Newbie

Hi there,

Sorry to hear that you are having such a hard time with your health. It is very difficult when you are constantly unwell and your doctor isn't budging about things. It does sound like you have a lot of inflammation and even though you aren't anaemic, blood in the stool is usually good cause for concern. The only thing I can suggest is to stop taking the birth control and see what happens. I have found that taking birth control has drastically increased my problems with my bowels and stomach.

 

Your symptoms seem almost ulcerative colitis like in nature. Have you ever had a colonoscopy, maybe this is how you were diagnosed a celiac? Has your doctor checked for appendicitis? It is possible to have chronic appendicitis.

Do you take any pain killers? These can cause problems with gastrointestinal bleeding if you take non steroidal anti inflammatory drugs like ibuprofen, naproxen, and asprin. If you are , stop or cut back or take aacetaminophen only when you really really need it.  

Hope this helps.

 

Thanks, whitepine. I have never had a colonoscopy and don't take pain killers. I used to take a lot of ibuprofen but I cut back on that a few months ago. I had considered stopping the birth control as well and will seriously consider that now that you have suggested it as well. It is very frustrating to go to a doc that either won't hear you out or feels like the issue is too great in nature to help you because you don't have insurance. Anyway, I will forge ahead! Thanks for your reply!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    CC324
    Newest Member
    CC324
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.