Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness?


Guest Kalynn

Recommended Posts

Guest Kalynn

I know that muscle weakness and fatigue are symptoms. My question is, does anyone experience muscle weakness all over some times? And such great exhausion after say a day shopping or running errands like you have to take a break and rest before contining your day? Sometimes it's like my arms and legs are just about to give. Usually after I rest for a while, or when I get up in the morning, I feel better.

Does it ever seem like you start out well, but by 5:00, it's all you can do to get dinner on the table? Sometimes after work, I'll take a short nap, then I'll be find for a while.

I am stilllllllll pre-dx, waiting for my blood tests that were done the first of this week. Just looking for some input.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
I know that muscle weakness and fatigue are symptoms.  My question is, does anyone experience muscle weakness all over some times?  And such great exhausion after say a day shopping or running errands like you have to take a break and rest before contining your day?  Sometimes it's like my arms and legs are just about to give.  Usually after I rest for a while, or when I get up in the morning, I feel better.

Does it ever seem like you start out well, but by 5:00, it's all you can do to get dinner on the table?  Sometimes after work, I'll take a short nap, then I'll be find for a while.

I am stilllllllll pre-dx, waiting for my blood tests that were done the first of this week.  Just looking for some input.

Thanks.

<{POST_SNAPBACK}>

oh yeah, the great fatigue. I remember it well and DON'T want it back. I thought of it as swimming upstream in a molasses river in January. And since you've already had the blood tests, why don't you go gluten-free just to see how you feel? Once the gluten is out of your system, you will start to heal and the body will feel much better w/ more energy. Promise.

Guest Kalynn
oh yeah, the great fatigue.  I remember it well and DON'T want it back.  I thought of it as swimming upstream in a molasses river in January.  And since you've already had the blood tests, why don't you go gluten-free just to see how you feel?  Once the gluten is out of your system, you will start to heal and the body will feel much better w/ more energy.  Promise.

<{POST_SNAPBACK}>

Actually, I went gluten-free the day after the blood tests, I was just waiting (anxiously) for them to take the blood so I wouldn't compromise the accuracy of the test. My muscles are sore and sometimes weak, especially if I do something repetitious. I have been gluten-free for a week now and my stomach doesn't hurt after every meal, the pain under my left rib has pretty much subsided, and I go to the bathroom a little more normal. Were your muscles sore? How long did it take before the muscle/fatigue problem started to subside?

jerseyangel Proficient

I had terrible fatigue the first 3 mo. or so after going gluten-free. You sound like I felt. I'm almost 5 mo. now and the fatigue is much improved but I still get tired late afternoon--it comes on suddenly and I feel better if I lay down, even for a short time. I also still have muscle aches in my thighs and neck. You sound like you've made some progress after just a week :) stick with it, it really does take time but little by little you will get more of your energy back.

Guest Kalynn
I had terrible fatigue the first 3 mo. or so after going gluten-free.  You sound like I felt.  I'm almost 5 mo. now and the fatigue is much improved but I still get tired late afternoon--it comes on suddenly and I feel better if I lay down, even for a short time.  I also still have muscle aches in my thighs and neck.  You sound like you've made some progress after just a week :) stick with it, it really does take time but little by little you will get more of your energy back.

<{POST_SNAPBACK}>

Thanks so much for the input. It's hard sometimes to remember to hopefully soon I will feel better. Especially after being so sick for so long without knowing why. I appreciate your help.

Guest Kalynn
oh yeah, the great fatigue.  I remember it well and DON'T want it back.  I thought of it as swimming upstream in a molasses river in January.  And since you've already had the blood tests, why don't you go gluten-free just to see how you feel?  Once the gluten is out of your system, you will start to heal and the body will feel much better w/ more energy.  Promise.

<{POST_SNAPBACK}>

Thanks. It's reassuring to know that other people have felt the way I do and feel better now. It's really something to look forward to! You guys are great.

julie5914 Contributor

Yeah, I am 4 months gluten-free and am still sore. I have started taking it a lot easier and now do not wake up so sore, but my legs and butt still can't seem to handle much. Shopping will do me in in no time. I think it will be better soon though. I am about to start some supplements - I had pretty extensive damage, so I do not think I am absorbing everything yet. It is definitely better than before the diet though, but it is hard for me to tell if that's because I finally quit trying to work out every day or if it is because of the diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,634
    • Most Online (within 30 mins)
      7,748

    Nasia
    Newest Member
    Nasia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.