Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd


NateJ

Recommended Posts

NateJ Contributor

Just curious if anyone here has tried this and what if any results they got from it. I ran across it while reading from other blogs.

Looking for opinions. Does it sound like a scam?

THanks

 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

If you are asking if I think the promotional scare tactics on that site proclaiming  the "miracle of curing diarrhea" and that "celiacs are slowly dying"  because they do not follow the SCD diet...is a scam approach for you to buy something off the internet?  (well, yes)

 

Have people tried this diet and had success with it? So I hear.

 

You could just go Paleo (there, that was free advice :)) I hate when people "sell" dietary advice in ebooks when there is so much valid info out there that kind people post and share without looking for $$$.

 

I guess what matters is...what are looking for from this diet?

NateJ Contributor

I'm sure I'm looking for the same thing most people here are looking for. Help finding relief.

I've done Paleo, didn't help. I've done FODMAPS, didn't help.

So I continue to look for answers.

IrishHeart Veteran

I'm sure I'm looking for the same thing most people here are looking for. Help finding relief.

I've done Paleo, didn't help. I've done FODMAPS, didn't help.

So I continue to look for answers.

 

 That's why I asked, Nate. I hate to see you trying stuff that may not work and waste your $$$

 

Many people do really well on the paleo diet (but I found it was too limited and I needed the complex carbs from brown rice, quinoa, etc) to feel better when I started to exercise again.

 

Hey, as I recall, you were going back to the doctor. Did they run any tests?

NateJ Contributor

i had another celiac panel ig thing done. all of it was really good, which means i'm not getting glutened.

I also had a CT of stomach and kidneys done. Nothing was seen in my gut from that, but my kidneys are full of stones.

I'm also supposed to have scopes done again, but i dont' like the GI doctor at all. trying to figure out when and how i'm going to do that as I have no one to take me to the procedure.

other than that, status quo of misery.

fatjacksonthecat Rookie

Sorry to hear your not feeling so well as I can def relate. About two months ago I had been taking nsaids for a while not knowing how bad they were for the stomache lining and I think it damaged my gut lining so bad I couldnt hardly eat anything for two weeks.It was either that or I was getting glutoned or reacting to something over and over again by an unknown source. Well, out of desperation I tried the closely related version of the SCD diet which is the GAPS diet.I believe that the SCD diet was taken from the GAPS diet. I will say that it did seem to calm my gut down quite a bit and the soup made with  broth and bones was really soothing.They also talk about eating fermented foods so I made some homemade kimchi and started drinking kefir as well.The kimchi has been amazing. Everytime I get a flare or acid feeling in my stomache I eat some kimchi and the pain goes away shortly afterwards. Its supposed to be really good for digestion and said to have trillions of probiotics.

 

Anyways, yea I could see it working IF you could stay on it. It was soooo restrictive and like Irish heart said it got to the point where I was like, just give me some kind of grains already!I also dont like how the SCD page has "why celiacs slowly dying" on it. It just didnt sit well with me and then how you have to order the info seemed a bit disingenuous. Im not saying the diet wont work though cause it did seem to help me for a while at least.I havnt tried FODMAPS yet. Is it as restrictive as SCD or GAPS?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748

    kathleenconley
    Newest Member
    kathleenconley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.