Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Sick Can Cc Make You?


answerseeker

Recommended Posts

answerseeker Enthusiast

well it happened again. I don't know if I am actually reacting to the trace gluten in gluten free foods or if I'm just not being careful enough. The first time I posted about the Betty Crocker mix making me sick and now yesterday I made myself gluten free pancakes (from a mix) and my family regular pancakes.

 

I had gurgling in the evening not too bad but today I woke up nausiated. Really feeling like I'm going to throw up. Does this sound like cc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

I can only speak from personal experience, but I too, get the symptoms you are describing, when I have been contaminated with wheat/gluten. Sometimes though, the thing you suspect to be the culprit is not at all, and it turns out to be something else. The only sure way is to keep a food journal of everything that passes your lips and a list of symptoms after eating them.

Hope you feel better soon.

notme Experienced

food journal is your friend!  :)  i have a secondary sensitivity to soy that will mimic a gluten reaction, but it doesn't last as long as a 'glutening' - headache, gas/bloating/D, fatigue, etc.  it used to fool me (and make me crazy "what did i eat i was so careful?!")  on the other hand, sometimes it's something stupid like my shampoo or using hand sanitizer, lolz or kissing the husband <yeah, i had to learn that one the hard way.  i did *not* believe that................... :wacko:

cyclinglady Grand Master

Do you have a dedicated pancake turner? Spoons, etc.?  I glutened myself twice, by not carefully scrubbing out a pot that I cooked regular macaroni and cheese in.  I think I missed scrubbing the handle.  So, now, I have a few pots, spoons, Tupperware just for my gluten eating daughter.  Even the turner is dedicated to her.   Other than mac and cheese (it's cheaper when her buddies are over), I make her "noddles" for school lunch or pancakes for breakfast -- but those are the only gluten things made in my kitchen.  If anymore episodes occur, gluten will be out completely!  

 

Since you're reacting to the pancake and cookie mix, you might have problems with Xanthan Gum.  It can be derived from soy, corn, wheat or dairy.  Probably the Betty Crocker's Xanthan gum contains soy since it's states that it contains soy ingredients including the obvious soy Lecithin.  Maybe it's an intolerance to soy.  

 

Finally, giving up the wheat means more celiac disease folks turn to rice.  Consumer Reports indicates that rice is high in arsenic.  How much rice are you consuming?

bartfull Rising Star

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

And although everyone is different, those symptoms sound typical of CC.

 

That being said, it's still early for you and it's possible you just "react" to nothing in particular. I know I certainly did - things like lettuce, gluten-free cottage cheese, sweet potatoes, you name it. I don't think it was the particular foods, it was just EATING. Give yourself some time to heal and it'll probably stop happening.

 

But DO use a mask when cooking with regular flour. Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

answerseeker Enthusiast

  How much rice are you consuming?

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

answerseeker Enthusiast
 Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

my kids tasted mine and actually preferred my gluten-free ones to theirs. they also loved the gluten-free cookies I made and when I make pizza I make gluten-free pizza and they love that too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

When I get exposed to gluten via dust in the air, my sinuses seem to flare up more than my gut, feeling as if I have a sinus infection.

But I've also had a bad experience with a gluten-free pancake mix, and when I researched the one ingredient in it that I didn't know much about, I think it may have been causing it's own problems outside of a gluten reaction. Apparently, guar gum is such a concentrated fiber that it absorbs a lot more liquid than other fibers. When they use it in diet aids, they say to drink lots of water with it but the pancake mix came with no such warning.

My cross contamination reactions increase in direct correlation to the amount of gluten.

• The least amounts, found in products being sold as gluten-free but still likely to contain some parts per million, don't have symptoms per se, but I can tell and I don't buy them again. I just don't feel right for 6-12 hours or so.

• The next level up, say from a contaminated cutting board at the butcher's counter or when ordering a salad from a restaurant, may have the irritability, headache, and brain fog but only lasts two or three days.

• The next level up normally comes from full meals made at restaurants where no one knows about cross contamination and the entire kitchen is a danger zone even if my food is "gluten free". So when I suspect it is contaminated utensils and cooking surfaces that prepared multiple items, I get stomach gurgling and gas which can last up to eight hours, plus the irritability, headache, then brain fog, with about five or six days to recover completely.

• And thankfully, I have no idea how I would react if I ate something that actually contains a full-on gluten ingredient because I haven't done it since going gluten free.

If you think you're reacting to the parts-per million, many of the manufacturers who ONLY make gluten-free foods and nothing else do a much better job. I've never sensed any gluten in anything made by Glutino or Udis. But I don't trust the gluten-free foods made by any manufacturer that shares their prep space with gluten.

tarnalberry Community Regular

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

...

 

Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

 

This.  You cooked with wheat flour; of course you got contaminated.  My family always gets gluten free pancakes.  I can do gluten free oats, so now we do oat flour pancakes, and they're awesome (and freeze well), but previously, I used Pamela's mix.

cyclinglady Grand Master

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

 

Besides the arsenic theory (ha!  pretty far fetched but possible....), you might be intolerant to rice.  I react mildly to it, so I just eat it every few days.  Not daily.

dilettantesteph Collaborator

Cross contamination is enough to return me to full blown symptoms where I can't make it to the toilet in time, my back goes out, my vision blurs, I can barely get out of bed from fatigue, all my joints ache, I can't think straight, and I'm so depressed that I would kill myself if I had a gun handy.  That isn't much fun.  That's why I'm so careful.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.