Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamins

tinylittlepotofjelly

Recommended Posts

tinylittlepotofjelly Newbie
tinylittlepotofjelly
Posted

Hello everyone, 

 

Sorry - I feel like I may ask a lot of questions over the next few weeks as I settle into this. I have not been officially diagnosed with celiac (waiting on blood results) but have been recommended to begin a gluten free diet by my doctor to see how I feel when not on gluten as he suspects that even if the blood comes back negative my problems might be caused by gluten. 

 

Anyway, I am aware that it is possible I am deficient in vitamins (it certainly feels as though I don't digest food properly and have no energy from it as I am always either suffering from C or the big D!), though my vitamin D levels came back okay. However, I also have an intolerance to foods that contain copper (soy, nuts, pork, milk and dark chocolate, avacado etc.) and was recommended by a nutritionist that I supplement vitamin C, B vitamins and manganese a few years back (sadly I couldn't afford any more appointments after that first one and she was not open to answering questions over the phone!). I tried these vitamins at the time and discovered I ended up with D almost straight away each time and that they also made me feel nauseas. I tried them again recently and found the same effects. 

 

I just wanted to check if others had experienced this? Is it likely that because my body can't absorb nutrients just now then vitamins will just come right through me (so to speak!)? 

 

Any advice would be helpful. I understand any advice given here is not medical - I am just trying my hardest to get better but I don't want to take anything that will make me worse either so it would be nice to hear others experience. My doctor is not the most knowledgable about vitamins etc. and I can't afford to see a nutritionist right now! 

 

 

Edit: i'd also be interested to know how many people had to go onto a whole food diet to feel better... I have a partner that loves to bake (and has bought gluten free flours for that purpose!) and I have a tendency to eat some chocolate (as in maybe half a bag of white chocolate buttons) and a diet soda almost every day... - I was just curious if those things are likely to slow down any recovery I see or if all I should change to begin with first of all is gluten and then take it from there? 

 

Thanks again! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

I did a post on Vitamins and Minerals almost the same as this one. There is some info in there :) Yes it is tru vitamins will pass thru you so you can take more. Thats the way I understand it anyway.. I am taking alot of Vitamins didn't make me feel any better so I take even more of them. Then in my thread if I am reading right I can triple what I am taking. Vitamin D helps with energy levels I need that !! I have Zip for energy .. If you can absorb just a bit of these vitamins life will be better for you!! 

I am sure someone with more knowledge than me will come in and knock everything I just posted down. I am just writing what I am understanding. Some suggest getting tested to see what vitamins your lacking.

1desperateladysaved Proficient
1desperateladysaved
Posted

 

 

 

I just wanted to check if others had experienced this? Is it likely that because my body can't absorb nutrients just now then vitamins will just come right through me (so to speak!)? 

 

Any advice would be helpful. I understand any advice given here is not medical - I am just trying my hardest to get better but I don't want to take anything that will make me worse either so it would be nice to hear others experience. My doctor is not the most knowledgable about vitamins etc. and I can't afford to see a nutritionist right now! 

 

 

Edit: i'd also be interested to know how many people had to go onto a whole food diet to feel better... I have a partner that loves to bake (and has bought gluten free flours for that purpose!) and I have a tendency to eat some chocolate (as in maybe half a bag of white chocolate buttons) and a diet soda almost every day... - I was just curious if those things are likely to slow down any recovery I see or if all I should change to begin with first of all is gluten and then take it from there? 

 

Thanks again! 

Greetings Litlle Bowl,

 

What vitamins did you take?  I happen to know from D experience that magnesium causes diarrhea and the body can be more touchy at first.  If you are taking more than one, you might want to stop all, take a 4 day break, and then try one at a time.  I say a 4 day break, because my functional Medicine Nurse tells me that it takes 4 days for antibodies to die down.  I always use natural and often organic vitamins.

 

In order to combat my celiac symptoms beginning 30 years back I got more and more into whole natural foods.  I often an some relief of symptoms, but I did not know I had celiac.  As a result I gained in discipline to eat nothing but a healthy diet.  I am definately un-American in that respect!  Now, after 30 years of celiac symptoms I got diagnosed.  I used supplements to great advantage.  Infact supplementssaved my life and helped me to tread water the last 6 years of my illness.  I did have help to determine which supplements to take.  Now, after about 18 months of gluten free diet I am Better!  If you have more questions about whole foods or supplements I would be glad to share what worked for me.  I shared some of it in a thread yesterday, so PM me if you need more.

 

D

tinylittlepotofjelly Newbie
tinylittlepotofjelly
Posted
  • Author

 

 

Thanks W8in4Dave - I will check that out! 

Greetings Litlle Bowl,

 

What vitamins did you take?  I happen to know from D experience that magnesium causes diarrhea and the body can be more touchy at first.  If you are taking more than one, you might want to stop all, take a 4 day break, and then try one at a time.  I say a 4 day break, because my functional Medicine Nurse tells me that it takes 4 days for antibodies to die down.  I always use natural and often organic vitamins.

 

In order to combat my celiac symptoms beginning 30 years back I got more and more into whole natural foods.  I often an some relief of symptoms, but I did not know I had celiac.  As a result I gained in discipline to eat nothing but a healthy diet.  I am definately un-American in that respect!  Now, after 30 years of celiac symptoms I got diagnosed.  I used supplements to great advantage.  Infact supplementssaved my life and helped me to tread water the last 6 years of my illness.  I did have help to determine which supplements to take.  Now, after about 18 months of gluten free diet I am Better!  If you have more questions about whole foods or supplements I would be glad to share what worked for me.  I shared some of it in a thread yesterday, so PM me if you need more.

 

D

 

Thanks for this, taking one at a time is a good idea, it seems obvious now you say it but I never thought about taking just one and seeing it if also caused me to run to the bathroom straight away. I feel a bit lost with where to start though. I have taken magnesium in the past but via a spray so it didn't affect the digestive system so much (though within a week I was running to the bathroom again) - but the others I had that were recommended where B vitamins and vitamin C. I can't take a multi-vitamin as I can't have copper and I can't find a copper free multi here in the UK. 

 

I would love to hear more about what worked for you with regards whole foods and supplements as I don't know where to start to some degree but I can't work out how to PM you! (I'm new to forums - can you tell ;) 

 

Anyways, thanks again all for your feedback - it's invaluable at this time. 

w8in4dave Community Regular
w8in4dave
Posted

If you can try and find vitamins and minerals that are Gluten Free ... Yes there are some out there. Not all have Gluten in them but some do. You can probably do a search on line.  Amazing how much stuff has Gluten in it!! I am still amazed! before I read a label I try and guess " Is Glutenized yes or no?" And so many times!! I have been wrong!! So yea make sure!! You get vitamins with out Gluten , then make sure you take them one at a time to see how they affect you! Look up symptoms and stuff ..Have you gotten your blood test back yet? 

tinylittlepotofjelly Newbie
tinylittlepotofjelly
Posted
  • Author

If you can try and find vitamins and minerals that are Gluten Free ... Yes there are some out there. Not all have Gluten in them but some do. You can probably do a search on line.  Amazing how much stuff has Gluten in it!! I am still amazed! before I read a label I try and guess " Is Glutenized yes or no?" And so many times!! I have been wrong!! So yea make sure!! You get vitamins with out Gluten , then make sure you take them one at a time to see how they affect you! Look up symptoms and stuff ..Have you gotten your blood test back yet? 

 

No bloods back yet - could take another three weeks (painfully slow!) but five days on the gluten free diet so I'm hoping if gluten is my problem then I will start to feel a bit better soon. My head is already feeling a bit clearer but I can't tell if that's just me being hopeful (is 5 days too soon to see results!?) 

 

All my current vitamins are gluten free at the moment but they seem to really upset my stomach. I'll do as suggested and start taking them one at a time for a while and see how it goes. Do you have any idea how long it normally takes to see results from vitamins? 

 

Thanks! Hope you're recovering well! X

w8in4dave Community Regular
w8in4dave
Posted

It was 3 days and I started feeling better, not my head I still have that fog. But it is better. You know some vitamins do have a tendency to up set stomaches so you may want to look  into the ones your taking. And I know that lactose can be a problem with Celiacs so if your still ingesting Lactose you may want to stop. I know it is hard to sift threw every thing we take and do. Some suggest making a food diary. That might be a good idea .... 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

 

 

Thanks W8in4Dave - I will check that out! 

 

Thanks for this, taking one at a time is a good idea, it seems obvious now you say it but I never thought about taking just one and seeing it if also caused me to run to the bathroom straight away. I feel a bit lost with where to start though. I have taken magnesium in the past but via a spray so it didn't affect the digestive system so much (though within a week I was running to the bathroom again) - but the others I had that were recommended where B vitamins and vitamin C. I can't take a multi-vitamin as I can't have copper and I can't find a copper free multi here in the UK. 

 

I would love to hear more about what worked for you with regards whole foods and supplements as I don't know where to start to some degree but I can't work out how to PM you! (I'm new to forums - can you tell ;)

 

Anyways, thanks again all for your feedback - it's invaluable at this time. 

 

on the upper right of your screen you should see an envelope with a 1 (my message) or higher number on it.  If you click on this you should be able to see a message I sent.  I hope it works for you.

 

I am very excited to talk about natural means of solving.  

 

I didn't know how to send a PM at first either.  Time helps solve these things.

 

D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.